I have had an extraordinarily complicated case of Crohn's Disease for approximately 30 years, and I have shared every aspect of how I manage it with the general public in an attempt to de-stigmatize the disease and help other people learn from all I have been through. I first accomplished this when I wrote the book, "Confessions of a Professional Hospital Patient," in 2001 and appeared on numerous TV and Radio shows, such as NBC's "Today Show." Once Health Care Social Media ("HCSM") became an effective global communications tool, I launched my blog at www.HospitalPatient.com, where I regularly write about topics which help people around the world living with chronic diseases such as Crohn's.
I am also a daily regular contributor to Twitter where my handle is @HospitalPatient and I try to further enhance the value of the hcsm landscape via several YouTube Video Channels such as youtube.com/healthcareinterview in which I conduct Video Interviews with influential figures in hcsm. All of this has now led me to start a charitable foundation called "Crohn's Disease Warrior Patrol" so that through hcsm I can match veteran IBD patients with new IBD patients so they can visit them and offer them the "TLC" necessary to get through the often very difficult stages of the Crohn's, Colitis and IBD diagnosis and treatment processes.
I’ve dedicated my life to sharing my 30 years of extensive and diverse experiences with the incurable, chronic and autoimmune illness Crohn’s Disease to help others around the world learn how to live with, and manage, their particular chronic disease. By virtue of 20+ surgeries and 200+ hospitalizations, I’ve developed a diversified knowledge and experience base, which I share with patients. I offer a humble, funny, informed and overall unique perspective to all healthcare participants: patients, providers, researchers, and business executives. I am also a frequent panel contributor at various healthcare conferences due to my affiliation with the Wego Health Speakers Bureau, as they consider me a leading voice with respect to Crohn's Disease and chronic illness advocacy.
My current venture forming the "Crohn's Disease Warrior Patrol" is a manifestation of all I have learned thus far, and I intend to use it to help thousands of patients. To that end, I cherish the opportunity to share my perspective with others at Medicine X so that we can mutually learn from one another and thus maximize what I believe is a technology-powered, grassroots patient movement for cutting-edge and cost-efficient healthcare delivered in a time- and cost-efficient manner. I have learned that, because of hcsm, managing a chronic disease and working with medical professionals is now about collaboration. It is that message which I wish to convey, focus, and widen so that it is embraced by patients and medical professionals around the world.