In 2012, I became a patient guide for Novartis to share my experiences as a patient living and managing Multiple Sclerosis. As patient guide, I have completed over a dozen live speaking engagements, from Pennsylvania to North Carolina. Becoming an ePatient was crucial; I am creating a medium to have meaningful interactions with patients, caregivers, and the general public.
I decided to post my journey and life lessons learned about living and managing MS from an empowered perspective. I started tweeting about my travels, using Facebook to update my friends about the work that I have been doing as well as using Linked In to help me bring awareness to MS. I have made wonderful connections with other people living with MS via Twitter and Facebook that I frequently have conversations around potential treatments, diet, exercise and the like. I am currently working on my own website that is soon to be public to increase awareness and track my MS journey.
I believe that the future of healthcare will be a virtual experience first and then become personal. As a presenter, I strongly advocate to patients that they need to be part of their own healthcare conversation. My hope is that by attending Medicine X, I will be exposed to other like-minded individuals who are interested in and actively moving the needle forward in the utilization and value of patients as experts in their own healthcare. I hope to make great connections with other like-minded individuals, as well as learn best practices and innovative ways to continue the dialogue with patients.