Adam Hayden (@adamhayden) is a graduate trained philosopher, blogger, and speaker. In June 2016, Adam was diagnosed with the aggressive and deadly brain cancer, glioblastoma (GBM), a grade IV astrocytoma. Following his diagnosis, Adam quickly found ways to apply his formal training in philosophy of science and medical humanities to confront his disease from two distinct, yet complimentary, perspectives. By way of his interest in the history and philosophy of science, Adam studies 20th century competing theories of carcinogenesis, or the origin of cancer. Motivated by the medical humanities, particularly narrative medicine and narrative identity, Adam regularly lectures to both medical students and clinical practitioners on topics related to living with GBM, which presents as both an advanced stage cancer and a nuerological disease. Adam’s involvement with the National Brain Tumor Society (@NBTStweets) brings Adam to attend scientific meetings and research roundtables, featuring top clinical neuro oncologists and researchers from leading academic and commercial labs. Adam is active with science communication (#scicomm) channels to learn effective methods to advocate for research funding in the brain tumor disease space. He co-moderates the Brain Tumor Social Media (#BTSM) monthly Twitter chat, (@BTSMchat), and he was a guest curator for the rotating curation (#rocur) Twitter account @Neurotweeps.
Adam serves as a consumer reviewer for the Congressionally Directed Medical Research Programs (CDMRP) Peer Reviewed Cancer Research Program (PRCRP). He is a class of 2018 participant for the American Association for Cancer Reserach (AACR) Scientist-Survivor Program, and he is a class of 2018 ePatient scholar for Stanford Medicine X | Ed. Adam is the advocacy chair for OurBrainBank, a non-profit, patient-driven smartphone app for people with GBM to better manage their disease by contributing to a world-first patient reported outcome (PRO) database for GBM.
Adam’s published work includes contributions to STAT News, PLOS Blogs, Science magazine, and A Philosopher’s Take. He is currently co-authoring a book chapter with the Indiana University School of Medicine Associate Dean of Faculty Development describing the utility of patient illness narratives as a vehicle for biomedical research advocacy. Adam is the co-founder of an endowed academic scholarship at Indiana University School of Liberal Arts for students pursuing an undergraduate or graduate degree in philosophy. Adam was recently awarded the Distinguished Alumni award by Indiana University School of Liberal Arts.
Adam lives with his wife and three young children, aged six, four, and two years old, in Indianapolis, IN.
Facing a life-limiting illness motivates Adam to do his very best work today, and he often jokes that if it weren’t for the terminal brain cancer, he’s in pretty good health. Adam documents his journey as a graduate trained philosopher living with glioblastoma at his personal blog, www.glioblastology.com.