Research Track
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Oral Presentation
Ellen McGeoch
OBJECTIVE: Choosing health insurance is a complex and often confusing task. Consumers who make a poor health plan choice miss out on the opportunity to save money in the best case or fall into financial crisis in the worst case. The design of the ACA’s health insurance marketplaces and the data they present to consumers influence complex health plan choices. We compared the choice environments of the public state-based marketplaces (SBMs) and HealthCare.gov (HC) in the fourth open enrollment period (OEP4) to the third (OEP3), plus exchange websites run by private companies. We also compared total cost estimates (TCEs) for various plans from the public exchanges to estimates on private exchanges for a uniform consumer. TCEs sum the monthly premium with expected cost-sharing (deductible, copays) based on a consumer’s expected health care use.
» Read More
Oral Ignite! Talk
Meghan Izak, Julia Romanyszyn, Will Barker
Participation and engagement in clinical research are the main cause of delays in the development of new treatments. Solvers from the William Tennent – Lilly High School Challenge show us a way to humanize research participation to generate an emotional connection among volunteers and patients at large who have a stake in seeing better treatments become a reality.
Panel Discussions
Monika Wittig, Steven Keating, Raheel Ata, Michael Golway
Grasp the ever-advancing practices of additive manufacturing in medicine... from empowering patients and doctors with greater visualization abilities in diagnostics to custom surgical models and life-saving implants. Meet patient pioneers exploring cutting-edge technologies in their quest to empower their own engagement with paths of care. Understand the impact of a production process capable of delivering mass customized solutions.
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Poster Presentation
Brian Mayrsohn
With the increasing burden of chronic diseases such as obesity and diabetes, there is a strong need for a low cost solution that can be scaled for the masses. Games for health is touted as that solution. A major benefit is that they can improve the delivery of care across the healthcare continuum while also increasing reach and patients buy in. Successful health games are based on theoretical frameworks, which require the successful implementation of game elements.
» Read More
Poster Presentation
John Magnus Roos
Personality factors have gained increased interest in cancer research during the last decade. The patient´s personality seems to influence coping strategies related to the outcome of cancer, such as reaction to the diagnosis, side effect of treatments and the impact of cancer on daily life. The main challenge will be to support clinicians in identifying vulnerable patients who are likely to have poorer coping strategies and therefore poorer cancer outcomes.
Panel Discussions
Michael Mcconnell, Stanley Shaw, Yvonne Chan, Stephen Friend
Today’s mobile phones (especially smartphones) are becoming
powerful platforms for communicating, computing and sensing. Mobile health “apps” have generated great
interest as a means to improve self-tracking in health and disease. At the same
time, smartphones can also enable new paradigms in clinical research. Potential
benefits of smartphone-facilitated clinical research include longitudinal, more
continuous data collection; novel phenotyping through passive and active
measurements; access to a broader, more geographically distributed pool of
participants; and using communication tools to foster participant engagement.
Equally important, smartphone apps can help participants benefit from their own
study data to an unprecedented extent, and contribute to a new culture of
clinical research participation that is more centered on participants. This
panel includes leaders from academic medicine and industry to discuss recent
momentum in smartphone-based clinical research.
» Read More
Oral Presentation
Osman Ahmed, Carol Bond
Background: Peer-to-peer
health networks such as online discussion forums have created new ways for
people, especially those living with a long term condition, to access health
information. There have however been concerns about the quality of information,
and the ability of the public to understand and evaluate that information [1, 2]. The term “apomediation”[3] has been used to describe
the shift from professionals as the information gatekeepers, to individual-led
signposting or use of technology-based solutions such as bookmarking.
This
abstract presents the findings of a study analyzing how people using online
discussion boards adopt this apomediation role, the types of information they
share, and how they share this information.
Methods: Four
discussion boards for people living with diabetes were selected for inclusion
in the study, based on the volume and frequency of new posts.
» Read More
Oral Presentation
Chandra Osborn
Over 1,500 mobile apps assist in the management of diabetes. Meta-analyses suggest diabetes apps improve A1c by -.49%. To our knowledge, no study has evaluated a diabetes app with passive data tracking on a smartphone and smartwatch with in-app support from a Certified Diabetes Educator (CDE). Over 250,000 people with diabetes and pre-diabetes worldwide use the One Drop | Mobile app.
» Read More
Oral Presentation
Qian Hu
Mining Audio Cues from PTSD Interview Recordings (MACPI) is a web based prototype system. This innovative tool is designed and developed to assist clinicians in conducting diagnostic analysis of PTSD interviews. It enables automatic transcription and phonetic indexing of the interview recordings so that the interview recordings can be accessed and analyzed with search and retrieval for systematic, quantitative, and correlational analysis. The interviews can be conducted in the office or via telephone.
» Read More
Panel Discussions
Dan Duffy, Doug Lindsay , Sarah Kugler , Courtney Sermone
Intro: You’ve been given a diagnosis. The disease is serious, but you have serious medical professionals working on it. You say, ‘I think I’ll have a look for myself.’ You research incessantly, and are now another addition to many a physician’s worst fear: patients who think they know better than the doctors, themselves. But what happens if and when you actually do know better? Pt 1: Once thought to be a disease of reproductive organs, Polycystic Ovarian Syndrome is now known to be triggered by metabolic means.
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Poster Presentation
Bari Dzomba
The purpose of this dissertation was to examine elements of leadership behaviors in online health and wellness communities, and be able to predict when leadership could occur in an online community. Communication behaviors of those who influence other members in terms of initiating comments, triggering replies, and conversations were analyzed to look for leadership characteristics. The research utilized a secondary dataset containing postings from participants across eight global online health and wellness communities on public social media websites: a) TEDMED, b) MyNetDiary, c) Nike+Fuelband, d) Forks Over Knives, e) Runner’s World, f) MyOptumHealth, g) America’s Health Rankings, and h) UHC TV. The observations took place over a six-month period, used content analysis, social network analysis (SNA), and inferential statistics to identify and predict the elements of leadership in online health and wellness communities.
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Poster Presentation
Thomas Krohn
While a minority of patients consider clinical trials as part of their treatment options, clinicaltrials.gov receives >112 million pageviews per month. Almost half of them are patients or their caregivers. Yet clinical trials struggle to find patients and many trials do not complete. Trial sponsors try many avenues and approaches to reach patients for THEIR trial.
» Read More
Oral Presentation
Vivian de Ruijter, Brian Huynh, Kay Hung, Catherine Wong, Brian Bradley, Alison Keiper, Ankit Goyal, Iretiayo Akinola, James Wall, James Lau
Introduction : In the last two
decades there has been a major shift toward more minimally invasive laparoscopic
surgeries (MIS). MIS has proven benefits for patients over traditional open
surgery, such as less postoperative pain, shorter hospital stay and faster
recovery time. However, the costs and infrastructure requirements of MIS remain
high and limit the availability of best practice to those who can afford it or
have access to its facilities. Currently, laparoscopic surgery requires a
dedicated operating room that houses costly equipment such as laparoscopic
cameras, video-processors, monitors, and cables.
» Read More
Oral Ignite! Talk
Komal Kumar, Andrew Cameron
Background: Currently, there are over
100,000 Americans awaiting deceased donor kidney transplants. Despite the
overwhelming demand, only about 15,000 kidney transplants occur each year. With
rates of deceased donation stagnant, live donor kidney transplant is the only
area for expansion of the organ supply. Unfortunately, many patients with end-stage
renal disease report significant barriers to identifying a live donor.
» Read More
Oral Presentation
Risha Gidwani, Donna Zulman
Objective: Individuals are increasingly going
online to obtain health information from both professionals and peers. We sought to understand the health
characteristics of persons who consume online health information and the specific types
of health-related information they seek. We also sought to evaluate the
characteristics of persons who engage with the internet for the purposes of
consuming versus producing online health information, and specifically, whether
healthier versus sicker persons engage with health information technology in
these different ways.
Study Design: Data were obtained from the Pew 2012 Health Survey, a telephone survey of 3,014 English- or Spanish-speaking adults living in the United States. We used multiple logistic regression to
examine the association between sociodemographic and health characteristics and
the consumption or production of online health information. Sociodemographic
variables included age, sex, race and education.
» Read More
Oral Presentation
Nandakumar Selvaraj
Background: Fall is one of the leading causes of morbidity and
mortality. It has serious consequences, particularly in senior population,
including decline in physical and cognitive abilities, and worsen chronic
illnesses, behavioral and socioeconomic issues. Real-time fall detection and
automatic notification to a healthcare/homecare provider may facilitate rapid
medical response, mitigate the effects of the fall, and reduce the medical
costs. HealthPatch ® is a disposable biosensor worn on the chest that detects
falls in real-time using posture angle, acceleration of chest and vital signs.
The performance of fall detection in a large clinical study conducted in both
controlled and free-living conditions is presented.
» Read More
Oral Ignite! Talk
Nandakumar Selvaraj
Background: Home sleep
monitors have evolved to complement the expensive laboratory based
polysomnography (PSG) for screening of moderate-to-severe sleep apnea syndrome
(SAS). However, the success rate of home tests has been found to be low due to
many limitations including low compliance, obtrusive sensor attachments, and complex
procedures. HealthPatch ® is a
disposable biosensor worn on the chest that remotely monitors ECG, acceleration,
vital signs and actigraphy measures, and has been found to be very useful in
numerous clinical applications. U.S. Food and Drug Administration has cleared HealthPatch
clinical-grade patient monitor for in hospital and home use. The study presents the efficacy of wireless
patch sensor for screening of moderate-to-severe SAS. Methods: An overnight
PSG study recruited 85 volunteers (age: 21−80 years,
female/male: 41/44 and Apnea-hypopnea Index (AHI): 0.1−87.7)
of healthy and SAS patients, and was conducted at California Sleep Institute, Palo
Alto, CA, USA.
» Read More
Oral Ignite! Talk
George Gibson, Karen Braun
It has ben well established that failure to communicate effectively with patients leads to poorer clinical outcomes. In the face of this seemingly obvious truth the reading and computing competence required for understanding many of the most popular sources of disease state and treatment information available to consumers continues to rise. This study presents the historical trend for a number of authoritative and popular web content outlets focusing on type 2 diabetes. Low complexity and fast methods of establishing critical determinants of patient capability are presented and their application in a pilot program targeting persons with type 2 diabetes receiving Medicaid are discussed.
Oral Ignite! Talk
Ian Aronson, Chuck Cleland, David Perlman, Theodore Bania
Research
in Progress
Will
a tablet-based intervention encourage more reliable HIV risk reporting by young
patients and facilitate testing?
Background:
Many
of those most at risk for HIV may not report risk factors (including
substance use and sexual behavior) that greatly increase their likelihood of
HIV infection. Some may not disclose risk or engage in any discussion of HIV
because they fear consequences of stigma. Others may decline HIV testing
because they, perhaps erroneously, believe they are not at risk.
Existing
data show young people face increased HIV risk, and risk is further elevated
for people who live or socialize in areas with high HIV prevalence.
» Read More
Oral Presentation
Bonnie Feldman
Improving the diagnosis and treatment of
autoimmune diseases (and other complex chronic diseases) is a major unmet
medical need that calls for a re-framing of clinical trials using new digital
tools and big data.
New techniques, such as immune repertoire
sequencing, phenotype/genotype, microbiome and other -omics and biometric data
offer new ways of understanding the delicate dance of the immune system and how
it goes awry in autoimmune diseases. Advances in the collection, storage,
manipulation and analysis of large data sets are fundamental to this
understanding.
Yet, the clinical trial process has not yet
made much use of these new sources of data. Furthermore, digital advances:
mobile, social, apps, APIs, cloud, are only beginning to be applied to make
clinical trials faster, cheaper, and more informative. How can we re-imagine
clinical trials, asking new and better questions, using iterative thinking, to
help those with autoimmune disease? How can we rally patient communities to encourage data donation to a central autoimmune registry?
Case studies may include, MMRF, Genetic
Alliance, Open Medicine Institute, Clinipace, Cliniops, Transparency Life Science, ePatientfinder and others
Oral Presentation
Perry Gee, Deborah Greenwood, Lisa Miller
Background: People with type 2 make up 90-95% of all people with
diabetes. Failure to self-manage this condition can lead to serious
complications -- heart disease, stroke, kidney disease, blindness, and
amputations (CDC, 2014). Ongoing metabolic management is imperative to prevent
sever complications and increased mortality, it is the goal of self-management.
There is a strong relationship between social support and illness
self-management for the adult with diabetes (Nicklett and Liang, 2009). Evidence
indicates that social support is associated with adherence to diabetes
self-management activities, improved outcomes and reduced mortality in older
adults with type 2 diabetes. A diabetes online community (DOC) may provide the
social support necessary to promote engagement and self-management activities
for the person over 65 with type 2 diabetes.
» Read More
Oral Presentation
Conor Farrington
Background: The ‘artificial pancreas’ (AP)
is a new treatment for diabetes which allows for the automatic control of blood
glucose levels by replicating some of the functions of a healthy pancreas. The
system wirelessly links a continuous glucose monitor (CGM) and insulin pump,
both body-mounted, with a tablet-mounted algorithm in order to calculate and
administer the optimal amount of insulin required at any given time. Following
successful lab-based studies, researchers at the University of Cambridge are now
carrying out research on the safety, efficacy, and feasibility of the AP system
for pregnant women with Type 1 diabetes in the home setting. This research is
important because of potential gaps between lab-based efficacy and real-world
effectiveness – gaps which may emerge because of variations in users’ wider attitudes
towards science, medicine and (especially) technology.
» Read More
Oral Presentation
Julia Amann, Claudia Zanini, Sara Rubinelli
Background
Patient empowerment has become a central
focus in healthcare research and practice. Instead of viewing patients as
passive recipients of expert advice, empowered patients are becoming active
partners in the health management process. Enabled by web 2.0 technologies,
patients seek information and share their personal experiences online with
peers and healthcare professionals. This paper argues that these shared
experiences are invaluable resources for healthcare institutions, but are
currently not being fully harnessed.
» Read More
Poster Presentation
Rajiv Sethi, Stuart Carney
Background: My name is Rajiv
Sethi and I am currently a 4th year medical student. I recently completed
a project entitled ‘MBBS Curriculum 2020 Review’ with Professor Stuart Carney,
Dean of Medical Education at King’s College London. This involved a review of the
preparation for practice theme; the transition from medical student to
internship year. This is an important area in healthcare education with impact
on patient safety.
» Read More
Oral Presentation
Donna Zulman, Emily Jenchura, Danielle Cohen, Eleanor Lewis, Thomas Houston, Steven Asch
Background: eHealth technology such
as personal health records, web-based disease management programs, and mobile
applications can support patient self-management and health care navigation.
These tools, however, are frequently disease-specific in design. Optimization
of eHealth tools for patients with multiple chronic conditions requires an
understanding of challenges and technology needs specific to multimorbidity.
Methods:
We conducted
a qualitative needs assessment of patients with multiple chronic conditions
from an academic medical center and a Veterans Affairs facility. A screening
questionnaire was used to identify 330 patients with ≥ 3 chronic
conditions and with experience using health-related technology.
» Read More
Oral Presentation
Jerry Matczak, Barry Crist
Patients who participate in clinical trials generously contribute their data to advance medicine. But because of standard clinical research practices, this contribution doesn’t come easily. For example, many patients do not know clinical trials are a healthcare option, and if they do, they have no easy mechanism to find an appropriate trial. To participate in a clinical trial, patients must travel to a local research site (if there is one) and disrupt their lives to complete trial requirements.
» Read More
Oral Presentation
Floor Sieverink, Liseth Tjin-Kam-Jet - Siemons, Annemarie Braakman - Jansen, Lisette Van Gemert-Pijnen
Background
The rapid and ongoing digitalization of society leads to an exponential
growth of both structured and unstructured data, so-called Big Data. This wealth
of information opens the door to the development of more sophisticated personalized
health technologies. The analysis of log data from such applications and wearables
provides the opportunity to personalize and to improve their persuasiveness and long-term
use.
However, aren’t there any boundaries when using this data as input for data-driven
patient-centered feedback systems? If not technologically, then perhaps ethically?
Can we simply gather and connect all the information we can find on the Internet
and the patients’ health records without question, in order to increase the
match between the system, its users and the context?
Methods
In our current research, we use big data sets from digital platforms and
wearable technologies to support self-care, used by patients with chronic diseases
like diabetes, heart failure, COPD and mental health problems and their caregivers.
We apply machine learning techniques (algorithms) to identify patterns and
user-profiles in the log data sets from real-time use of technologies across
Europe.
» Read More
Oral Ignite! Talk
John Magnus Roos, Diana Africano Clark
Background:
Psychosocial
factors among cancer patients have gained increased interest during the last
decade (1 8, 9, 4). The idea is that psychosocial factors, such as personality
traits and coping strategies, influence the outcome of cancer. The outcomes of cancer
can be related to the stresses brought on by diagnosis, side effects of their
treatments, emotional distress, the impact of cancer on daily life, depression
etc (5,8).
Our
research questions are:
1) What personality traits influence outcomes
for cancer patients?
2) What coping strategies influence outcomes
for cancer patients?
3) How are personality traits related
to coping strategies?
Method:
The research
design for this study is a meta-analysis.
» Read More
Oral Ignite! Talk
Erica Savig, Larry Leifer, Rajni Agarwal-Hashmi, Barbara Sourkes, Harvey Cohen, Wendy Ju
Background:
Children receiving stem cell
transplants must be hospitalized in isolation for one to several months, while
facing the realities of life-threatening illness and intensive medical
treatment. It is a time of significant emotional and psychological distress, leaving
many children with post-traumatic stress symptoms well past hospitalization.
There is a lack of understanding of the patient emotional experience, and few
proven interventions that address the issue of emotional wellbeing for this
population. To this end, using a form of
design probes, we are performing a needs assessment, collecting perspectives
from patients and families concerning their emotional needs and stressors in
the clinical isolation environment. Design probes are research tools that have
been effectively used by designers to engage target user populations in
playful, reflective activities that help them share personal views on a
particular topic. They have been especially useful in situations where direct
questioning is ineffective, or in emotionally strained environments.
» Read More
Oral Presentation
Rachel Nosheny, Weiner Michael, Derek Flenniken, Philip Insel, Shannon Finley, Monica Camacho, Diana Truran, Scott Mackin
Background: The high cost of
identifying, recruiting, screening, and assessing eligible participants for neuroscience
clinical trials is a major obstacle to developing effective treatments. The BrainHealthRegistry.org (BHR), launched
in 2014, offers a unique approach to facilitate clinical trials for brain
diseases. The BHR captures online detailed,
longitudinal health and lifestyle information and measures of cognitive
function from a large cohort of registrants.
The overall goal is to accelerate development of new treatments for
brain diseases.
Methods: After registration and consent, BHR participants complete a
series of questionnaires, including measures of demographics, overall health,
medication use, memory, family history of brain disease, mood, sleep, diet, and
exercise. Participants also complete online neuropsychological tests (NPTs),
including the Cogstate Brief Battery and the Lumos Brain Performance Test. All tasks are completed online with no
supervision.
» Read More
Oral Presentation
Shiyi Zan
Background: Asthma is the most common chronic
condition affecting those under the age of 18, and account for an estimated $56
billion in healthcare costs annually. The Asthma Control Test (ACT) is a
reliable and valid means of detecting changes in asthma control over time, but
its utility has been limited to date, mostly due to its mode of administration
during scheduled office visits by paper format. Improving the accessibility of
the ACT, administering it more regularly, and using automated scoring to
provide instant feedback on current status and trends may be useful in gauging
success of therapeutic interventions and identifying deteriorations of asthma
control. We know that 95% of adolescents are online; 81% use some type of
social media, and 67% report that they use social media at least once a day.
» Read More
Poster Presentation
Liana Gefter, Nancy Morioka-Douglas, Eunice Rodriguez
BACKGROUND : The CDC reports risk of diagnosed diabetes is
significantly higher in ethnic minority populations compared to non-Hispanic
white adults. Additionally, in less than
a decade, prevalence of Type 2 Diabetes and prediabetes more than doubled among
US adolescents. The purpose of this
study is to evaluate the impact of a school based health program in which Family
Medicine residents train healthy at-risk adolescents to become diabetes
self-management coaches for family members with diabetes. Ethnic
minority communities have
historically been disempowered and distrustful of the medical system, and we hypothesize that for this reason teaching ethnic
minority youth to develop the skills and attributes necessary to be “e-patients”
is particularly important. The Stanford Youth Diabetes Coaches Program (SYDCP) aims
to utilize the most relevant technologies in combination with the in-person
benefit of physician interaction to support at-risk high school students and
their families to become equipped, enabled, empowered and
engaged in their health and health care decisions.
METHODS : The pilot study includes
97 adolescents from three San Francisco Bay Area high schools serving primarily
ethnic minority youth of low socio-economic status. Physicians came to schools once a week for
eight weeks and trained 49 adolescents to become coaches using web-based program
curriculum focused on health knowledge, communication, problem-solving, and
self-management skills. Each student
coached one family member with diabetes.
Printed program materials were available in Spanish and English. Student coaches and 48 non-participant
students completed pre- and post- test intervention questionnaires, and 15
student coaches and 9 family members with diabetes were randomly selected to give
in-depth interviews after participation.
Linear regression was used to determine differences in knowledge and
psychosocial assets on pre- and post-tests between student coaches and
non-participant students, and NVIVO to analyze interview transcripts.
RESULTS : After controlling for initial score, gender, grade, and ethnicity,
student coaches improved from pre- to post-test significantly compared to
non-participants on knowledge, belonging, and worth scales .
Student coaches reported high satisfaction with the program. Articulated program benefits included
improvement in diet, increased physical activity, improved relationship between
student coach and family member, and appreciation for having physicians in the
classroom.
CONCLUSION: Overall, this program can increase health
knowledge and psycho-social assets (worth and belonging) of at-risk youth and holds
promise to promote health literacy and healthy behaviors
among at risk youth and their families.
The SYDCP utilizes the inherent altruism of teens to help their family
members and the aspirational goals of physicians in training to help communities
realize a diabetes education and prevention system that is accessible,
sustainable and reproducible - even for under resourced communities. Lessons learned include 1) web-based
curriculum needs to include more engaging technology leveraging best practices
as developed by colleagues in the School of Education; and 2) curriculum format
needs to maximize time for physician/student interaction and discussion. Next steps will include: significant revision
of teaching modules to incorporate “blended” learning; communication with
students via SMS texting; and use of Stanford Open Ed X platform to promote and
prolong program engagement and make content
widely available.
» Read More
Oral Presentation
Trevor van Mierlo, Douglass Hyatt, Andrew Ching
Background:
Digital behavior change interventions with social networks are common and have
shown much promise in improving health outcomes. For interventions that have
existed for several years, data analytics can give insight on demographic and
psychographic characteristics of registrants, as well as patterns of use. Research
methods in disciplines other than healthcare can assist in understanding relationships
and trends. For example, in economics, it has been established that consumers
are attracted to shopping malls with well-known anchor stores.
» Read More
Oral Presentation
Nupur Garg
Background:
Conventional healthcare research has long
been conducted as linear, static analyses, which is not representative of the
complex, real-life scenarios that define healthcare systems. For example, downstream
effects of interventions can happen in inter-connected realms of healthcare and
possibly over long periods of time but are often not accounted for. Also,
analyses are usually conducted on averages over a spectrum of demographics and
culture. In real-life, individual demographics are known to play a key
role in healthcare studies. Now, with electronic health records, big data has
the potential to advance healthcare research significantly.
» Read More
Oral Presentation
Ken Yale
Background: Several
statistical models are used to predict future healthcare costs, engage patients
to improve care and avoid deterioration
in their health. These models were created in the 1990s, and aside from
occasional updates, they have not changed much. Recent research using other
sources of data and advanced predictive analytics show a large increase in the
ability to predict who is at-risk of future clinical problems, and may be a
better, scalable way to determine appropriate patient engagement services, and
improve both population health management and personal health management. Predictive
models used to estimate future healthcare needs are usually financially focused
and based on age, gender, diagnoses and sometimes medications of individuals in
populations used to develop the models.
» Read More
Oral Presentation
George Chronis, Erik Stone
Background: Patient falls are major problems in
hospitals both for patients and the hospital.
Falls dramatically reduce patient health and safety and dramatically
increase the cost of healthcare.
Foresite’s Patientcare is a passive monitoring system that uses infrared
imaging and decision tree learning algorithms to drastically reduce patient
falls, thus increasing patient health and safety while reducing the cost of
healthhcare. Patient falls are among the eight
preventable conditions not reimbursed by CMS (Medicare and Medicaid) and
insurance companies. There are millions
of hospital patient falls every year costing hospitals billions of dollars in
unreimbursed expenses. This does not take into consideration
falls of elders in their living environment which are significantly larger
issues and are greatly reduced by another Foresite product, namely Eldercare. The goal of our study was to 1) identify
which patients are most likely to fall in hospitals and 2) reduce the number of
falls in hospitals.
» Read More
Oral Ignite! Talk
Lorena Macnaughtan
Background Technological
change often causes temporal institutional instability in many industries or
fields, because it challenges existing roles and rules of the game. Digital
technologies fostered even the creation of entirely new markets (i.e. digital
commerce or online advertising). Digital Health emerges as an interstice
between multiple fields and therefore it brings together multiple stakeholders,
with competing expectations, demands, values and rules of the game.
» Read More
Panel Discussions
Michelle Burke Parish, MA, Steven Chan, MD, MBA , Peter Yellowlees, MBBS, MD
Background: Health
information technologies — such as telemedicine — have been identified as
important tools in advancing the patient-centered medical home (PCMH) by
streamlining communication, boosting access, and decreasing time delays in
seeing a specialist from months to minutes. Within mental health, studies show
that telepsychiatry can help patients gain better access to specialists.
However, telepsychiatry (STP), which traditionally uses synchronous, live
two-way videoconferencing, has scheduling issues, cost limitations, and
administrative barriers — similar to in-person care — that have prevented
wide-scale use of this technology. A novel method, asynchronous telepsychiatry
(ATP), a virtual mental health visit, is a more rapid, efficient, and
administratively simple way for primary care providers to gain access to
psychiatric expertise —supporting a collaborative model of care.
ATP is an emerging technology in the field of mental health
that supports PCMH and in particular helps PCP's better manage patients with
comorbid physical conditions and mental illness.
» Read More
Oral Presentation
Audun Utengen, Tom Lee, Nisha Pradhan, Nick Dawson, Britt Johnson
Background : Healthcare conference participants use of social media, and
Twitter in particular, have grown to become a significant part of the
conference experience with 1,159,093 tweets for 2013. In our prior research
analysis with data from 2013, we observed a recent trend to promote patient
inclusive conferences. That analysis concluded that 65 out of 100 conferences
were found to have one or more patients in its top 100 influencers by mentions.
Those conferences with more patients were found to have a stronger social
performance with higher average number of tweets, larger reach with a higher
average number of participants and a more dynamic conversation with a higher
average tweets per participant.
In this follow up study, we will analyze this social dataset to
find reasons why patient inclusiveness has such a positive effect on
conferences.
» Read More
Oral Ignite! Talk
Steven Chan, Michelle Burke, Peter Yellowlees
Research in Progress Background: Healthcare providers typically
use live interpreters to communicate with patients who either do not speak
English or who have limited English proficiency. With the Affordable Care Act
(ACA) encouraging uninsured patients to obtain health insurance, the anticipated
demand for language interpretation will increase, as the proportion of LEP
patients for Medi-Cal and Healthy Families will increase to 41% by
2019. However, a shortage of interpreters exists because
medical interpretation incurs a typical $30 to $50 per hour overhead cost, there is a 35% decrease in earning potential for
medical interpreters versus government or scientific and technical
interpreters,
and using live interpreters increases doctor-patient encounter times by
57% versus phone interpreters. The quality of live
interpretation can also vary as there are legally and professionally no
mandated requirements for certification or quality control.
» Read More
Oral Presentation
Matthew Argame
Hearing loss
is a condition that does not discriminate; it is a condition that affects
people of all ages, ethnicities, and economical backgrounds. Often, hearing
loss is stigmatized as a disability for the elderly; however, this perception
ignores the importance of optimal hearing in children and young adults, who,
although they encompass a smaller population, are faced with greater challenges
in regards to socialization and developing a strong self-image in their
formative childhood years. From an economical standpoint, it is also a common
misconception that hearing assistive technology is reserved for the rich, given
that a pair of basic hearing aids can cost anywhere from $3500 to $7500. The
fact of the matter is, there have been many studies outlining the drastic effects
hearing loss has on a person and from these studies, many NGOs and government
organizations have implemented programs that provide hearing aids and
rehabilitative services to those in need, often at no cost.
» Read More
Oral Ignite! Talk
Marjorie Skubic, Marilyn Rantz, Colleen Galambos, Richelle Koopman, Alexander Gregory, Phillips Lorraine
Background: Chronic disease
management is the biggest health care problem facing the United States today.
In 2012, one in two American adults had at least one chronic condition, and 26%
of the population had multiple chronic conditions, accounting for 84% of US
health care costs. Chronic diseases especially affect older adults and often
result in dramatic health decline, hospitalization, complex treatments, and
high cost. Recognition of small changes in health conditions facilitates early
interventions when treatment is most effective, prevention of dramatic decline
is still possible, and costs can be controlled. In a previous pilot study, we
showed significant differences in health outcomes for an intervention group of
21 seniors with a sensor-based early illness recognition system, compared to 20
seniors receiving normal care.
» Read More
Oral Ignite! Talk
Nelya Koteyko
Background: Social networking sites (SNSs) such as Facebook enable information
sharing and the co-creation of new knowledge shaped by personal experience. As
such, SNSs have been heralded as a new source of ‘patient empowerment’ that
fosters democratisation of healthcare and self-management expertise through
social media use. Critics, on
the other hand, point out that this promissory view of an active, responsible ‘e-patient’
further extends the reach and power of medicine and marketisation of
healthcare.
However, in advocating SNSs, academic and policy communities have neglected
to consider how individuals already employ social media to perform and
negotiate health and illness identities. In contrast, in this study we approach
SNSs as an important source of data on discursive practices and situated
experience in relation to diabetes self-management.
» Read More
Oral Ignite! Talk
Patricia Duignan
Unlike the
performance sportswear industry, the multi-million-dollar medical apparel industry
has not been pushing at the research edge of medical garments and textile
technology. In most cases, medical garments meet basic requirements – they
clothe the professional in a recognizable way but offer little by way of
protection for the patient or the clinician. This is particularly evident in
the case of professional apparel for physicians despite evidence indicating that
contemporary physician garments can harbor contaminants and facilitate the
transfer of these contaminants from patient to patient. Healthcare Associated
Infections (HAIs) are among the most serious problems facing modern medical
care and conceptualizing medial garments that will reduce or eliminate the
transfer of HAIs is a motivating factor for this research.
» Read More
Business Track
Oral Ignite! Talk
Julie Wheelan
The lifeblood of any successful company stems from a sustained stream of commercially viable innovations, both incremental and breakthrough. In some industries — namely retail and consumer products — companies have long recognized the power of partnering with other brands as a means to develop new and unique products, generate renewed excitement, and reach new customers. These partnerships often make the brands involved seem more distinctive, more interesting, and more newsworthy — and, most importantly, infuse a new line of interesting products into the marketplace that cannot be replicated elsewhere. The practice of co-branding now extends to industries ranging from cosmetics, hotels, restaurants, fashion, household products, and charities, to name only a few. The one industry in which co-branding partnerships have not yet taken a strong hold, however, is healthcare.
» Read More
Oral Ignite! Talk
Jennifer Schneider
Whether due to perceived stigma, lack of information, or lack
of easy access to high quality, affordable care options, unaddressed or undiagnosed
cases of mental illness are a pervasive issue today in both the US and on a
global scale. In this country alone, according to the American Psychiatric
Association (APA), approximately 50 million Americans—or 22 percent of the
population—have a mental health problem that is serious enough to interfere
with their normal, daily functioning. But despite the crippling effect that
mental illness and behavioral health related sickness have on quality of life—and
both the indirect and direct costs associated across the healthcare ecosystem—all
too often, patients do not seek treatment.
But it no longer has to be this way.
» Read More
Oral Presentation
Laura Martini
President Obama announced the Precision Medicine Initiative during his 2015 State of the Union address, with the goal of making DNA data more useful for personalizing medical treatment to a particular patient. It’s clear that genetic screening will play an increasingly important role in healthcare in the future. In truth, information about a patient’s DNA already drives many medical decisions, sometimes in surprising ways. How have we gotten here? What barriers – technological, logistical and ethical – has the genetic testing industry already overcome to become part of routine medical care for some specialties? What challenges still remain in order for the field to live up to the expectations laid out in the Precision Medicine Initiative? Laura Martini, Director of Product Design at Counsyl, a health technology company providing genetic testing and counseling services, will discuss the medical genomics landscape as seen through the lens of her role doing user-centered design at a commercial testing lab.
» Read More
Oral Presentation
John Miles
In 2012 Health & Parenting set out to make a pregnancy app to help mothers-to-be enjoy their pregnancy and provide pertinent information in one helpful daily guide. Their app, Pregnancy+ , has over 3 million annual downloads, very high ranking and reviews in the App Store, and is the most popular independent pregnancy app world wide. The team's core goal is to make the journey of pregnancy more enjoyable, educate mothers with what to expect, and help them make better use of their time spent with healthcare professionals. Co-founder John Miles is from a design background and spent many years in the video game industry working for Electronic Arts. His approach to medical apps puts UX (user experience) and engagement as a high priority.
» Read More
Oral Ignite! Talk
Julie Wheelan
Rapid prototyping by
additive manufacturing — otherwise known as 3D printing — stands poised to
revolutionize healthcare in everything from regenerative medicine to cancer
research by facilitating cost-effective technological innovation on a scale
never before thought possible. In many ways, the
revolution has already begun. Knee implants and hearing aids are already being
manufactured. In 2013, a team at Princeton printed a bionic ear.
» Read More
Oral Presentation
Victor Wang
GeriJoy's specially-trained remote care team interacts with patients through a capitivating virtual avatar and expert system, providing 24x7 coaching, reporting, and personalized engagement to ensure that care plans are executed correctly and to report patient progress and urgent alerts to clinical managers for better informed interventions. Pilot Health Tech NYC recently awarded a total of $1 million to a handful of innovative pilot projects, and Pace University, Mount Sinai Queens Hospital, and GeriJoy were selected as award winners, to leverage GeriJoy's patient engagement platform to mitigate delirium in older adult acute care inpatients, as well as to reduce readmissions through post-discharge health coaching. Sanford Chamberlain Medical Center in South Dakota also has a Statewide Health Improvement Program grant to reduce cardiac and diabetes related readmissions through GeriJoy's post-discharge patient engagement and coaching program. Results will be presented from these pilot studies and there will be a brief explanation and demonstration of GeriJoy's unique patient engagement and reporting platform.
Oral Presentation
Dogan Demir
Several studies have reported negative impact of immobility
on health. as Dr. James Levine of Mayo Clinic describes it, "We lose two
hours of life for every hour we sit." In clinical environments, sedentary
behavior is commonly treated through the use of exercise and posture
correction. However, this type of intervention is generally limited by
patient's motivation to participate.
» Read More
Oral Ignite! Talk
David Harlow
ONC has announced a 10-year roadmap for electronic health
record interoperability. Why wait? Tools exist today that solve for interoperability and are
capable of rolling out a patient-centered health information exchange layer
that connects diverse EHRs to create a patient-controlled longitudinal health
record. Flow Health’s core offering and related applications are provided free
of charge to patients and their caregivers, health care providers and payors.
Existing data standards are leveraged in order to enable the free flow of
information, to enable clinical insights and better care management. Flow Health enables patient-centered collaboration by
solving several intransigent problems: (1)
Ensuring patient identity matching across
providers (2)
Creating a universal clinical data architecture
that accommodates data from multiple sources, and tracking provenance of each
data element (3)
Managing patient-centered consent so that the
patient controls who sees what Flow Health has an installed user base of 9000 physicians,
and deals are in place that will double that number in the near term.
» Read More
Oral Presentation
Julie Wheelan
Necessity
is the mother of invention. Many of today’s common consumer products were
simply the results of an individual inventor identifying a “pain point” and
invent the remedy.
But what
about life’s true pain points -- issues such as arthritis, hearing loss, or
hospital-acquired infections? Where will the solutions for these and
hundreds of other ailments come from? Medical-device innovation is a multi-billion
dollar industry with researchers and product developers searching for ways to
improve patient care and quality of life. But an often overlooked source for inspiration
are those who live or work on the front lines of health care who and who have the
necessary insight and expertise to add to the invention process.
» Read More
Oral Ignite! Talk
David Harlow, Robert Rowley
ONC has announced a 10-year roadmap for electronic health
record interoperability.
Why wait?
Tools exist today that solve for interoperability and are
capable of rolling out a patient-centered health information exchange layer
that connects diverse EHRs to create a patient-controlled longitudinal health
record. Flow Health’s core offering and related applications are provided free
of charge to patients and their caregivers, health care providers and payors.
Existing data standards are leveraged in order to enable the free flow of
information, to enable clinical insights and better care management.
Flow Health enables patient-centered collaboration by
solving several intransigent problems:
(1)
Ensuring patient identity matching across
providers
(2)
Creating a universal clinical data architecture
that accommodates data from multiple sources, and tracking provenance of each
data element
(3)
Managing patient-centered consent so that the
patient controls who sees what
Flow Health has an installed user base of 9000 physicians,
and deals are in place that will double that number in the near term.
» Read More
Oral Presentation
Kevin O'Malley, Shawn G. DuBravac
Dr. Shawn DuBravac is Chief Economist
and Haed of Research of the Consumer Electronics Association (CEA), the U.S.
trade association representing more than 2,000 consumer electronics companies,
which owns and produces the International CES, the world’s largest gathering
place for all who thrive on the business of consumer technologies -- with an
ever-increasing attention to the health and medical application of wearables,
quantified self, 3D printing, sensors, and big data.
DuBravac is the author of Digital
Destiny: How the New Age of Data Will Transform the Way We Work, Live, and
Communicate (Regnery, 2015), which explores how the world’s mass adoption
of digital technologies portends the beginning of a new era for humanity in the
realms of economics, health, travel and culture.
As Chief Economist and
Head of Research for the Consumer Electronics Association, Dr.
» Read More
Oral Ignite! Talk
Russell Olsen
Despite all the advances introduced into healthcare over the last 20
years, the biggest X factor in successfully treating patients is still the
patients themselves. If the patient is not engaged, then it is unlikely their
condition will improve. This is especially true of patients with one or more
chronic illnesses, which describes nearly 1 out of 2 adults in the U.S.
according to the CDC. In this presentation, “Empowering Providers
to Engage Patients,” Phytel Vice President of Innovation Russell Olsen will
briefly describe the vast need for improving patient engagement, and then
discuss the analytics, tools and automation providers need to find and engage
the right patients at the right time – on a population scale. At the heart of the
problem is the need to make it exponentially simpler for providers to reach out
and encourage the sickest patients to take better care of themselves.
» Read More
Oral Presentation
Anil Sethi
The future of the EHR (Electronic Health Record) is ... the PHR ( Personal Health
Record). It’s a provocative notion to suggest that within a decade of
the healthcare industry’s induction of its ERP system, the EHR will give
way to PHRs (despite multiple failed attempts at PHR innovation by
leading technology companies like Google and Microsoft). I’ll
extrapolate from other industries where supply chain participants have
been disintermediated by "the rise of the consumer." Just like
banking’s nondescript ERP systems have been relegated to the back
office, while disruption advances the consumer's front-line through
innovations in novel payment systems, medicines own EHR will become a
shadow of itself, which currently absorbs scarce resources and budgets.
» Read More
Oral Presentation
Dean Sawyer
A 55-year-old man with a history of heart disease is driving
to work on a Monday morning when his mobile phone rings. It’s his care manager with
a message: A pattern from the continuous streams of data from his wearable
biometric device indicates that he is in the early stages of heart failure
decompensation and is likely to be hospitalized in 14 days without an
intervention. The care manager goes on to say not to worry - his cardiologist
increased the dose of his diuretic in an intervention that has a 94% chance of
stopping the decompensation within 48 hours.
This is a fictitious example of “remote patient intelligence,”
but the breakthrough technology for collecting and analyzing actionable medical
data – for individuals as well as whole populations – is finally here.
» Read More
Oral Ignite! Talk
Emily Lu, Darla Brown
Doctors are limited to only 15 minutes per patient. Patients
feel they are not listened to. Important symptoms are missed, errors occur, and
health care quality suffers. In the absence of a miracle – creating more time –
what can patients and doctors do to make the 15 minute visit more worthwhile?
Inspired by the empowered patient movement and informed by
the principles of primary care medicine, we will present our strategies for
making the most of the 15-minute visit.
» Read More
Panel Discussions
Emily Lu, Darla Brown, Molly Lindquist, Michael Seres
Ask any successful entrepreneur for tips on what made them so
and they will respond: “Know your customer!” Know what makes them tick. Know
their needs and wants. Know their pain. It has also been said that, “Customers
think of problems, while entrepreneurs think of solutions.” So why do some
patients become healthcare entrepreneurs while others do not? And why should
more patients get involved in healthcare startups? We are entering a new era in healthcare where patients are
beginning to increasingly and visibly take charge of their health and the
health of their family members.
» Read More
Panel Discussions
Jeff Rubin, Shaundra Eichstadt, Alan Spiro
As healthcare continues to witness an exponential explosion
of data, tools and technology, we run the risk of equating technology with patient engagement. But data and
technology can only enable
engagement, not ensure it. Engagement
must start first and foremost with the individual. Understanding the context in which a person
is making a decision or taking an action is key, particularly when you are
offering a technology service or tool that is unfamiliar. Contextual issues
include competing responsibilities, finances, skills/abilities/knowledge and
emotional state, among others.
» Read More
Technology Hub Pavilion
Gary Jesch
Imagine the challenges faced by a child or adult with autism
who shares the same desires you have, to be a better version of yourself, to
thrive and to reach your potential. Perhaps you know a person who faces such
challenges. Perhaps you are a parent who is faced with adjusting your
expectations and becoming a caregiver in the most extreme sense. What cutting
edge technology can help you and your child with autism, both immediately and
long-term? Invirtua’s virtual reality software creates a computer-generated
“digital puppet” in a 3D environment, an animated character that can be brought
to life in real time by either the therapist, the parent or the person with
autism, so that it can interact and express itself with emotions, personality
and body language.
» Read More
Oral Ignite! Talk
Liza Bernstein, Meg Maley
There is needless psychosocial distress in the cancer experience. Per the US Institute of Medicine's "Cancer Care for the Whole Patient" report (2008), attention to patients' psychosocial needs is the exception in cancer care today. Our experience bears this out. Many cancer survivors and caregivers expect distress as an inherent part of their cancer story and are reluctant to seek help.
» Read More
Workshop
Rin Gomura Elkan, Siobhan Bulfin
How do you nurture relationships amongst patients and providers
online? How do you encourage one-to-one and one-to-many conversations? The aim
of this tutorial is to guide participants through best practices in online
community management, using examples from real online patient communities. This
tutorial is suitable for online community managers, both new to, and
experienced with, social networks in health. Participants will learn practical
ways to increase patient engagement for improved health outcomes. The tutorial
will also cover the value of extending the clinicians reach beyond the physical
setting and engaging with patients in the comfort of their home.
» Read More
Panel Discussions
Steve Sprieser, Chris Stout, Eve Phillips, Richard Gengler, David Cohn
According to SAMHSA and the CDC, more than 1 in 4 Americans will experience some form of mental illness in any given year, with national expenditures now over $240 billion. However, behavioral health has lagged compared to other areas in advancing technology into the workflow of providers and ultimately assisting in serving patient needs. Given the increase in digital health solutions on the market, digital behavioral health is now in a position to expand treatment and accessibility of recovery-related services in ways that augment or complement traditional systems of care delivery. Ranging from teletherapy to digitizing outcomes measurement, providers can now utilize technology across their entire population of patients.
» Read More
Poster Presentation
Rin Gomura Elkan, Siobhan Bulfin
Interventions which integrates mobile phone health services (mHealth) and social influence have been found to be both effective and well liked by users. However, a review of 34 health behaviour interventions utilizing mobile text messaging by Buhi et al.(2012) identified a gap in youth-focused mHealth interventions; the demographic with the highest smartphone ownership. Our presentation focuses on the findings from the smartphone application (app), GoalPost (http://goalpost.it/), which utilizes social influence, persuasive technologies and expert advice to aid smoking cessation. GoalPost was developed in partnership with Quitline New Zealand and New Zealand Smokefree (a branch of New Zealand’s Health Sponsorship Council), in consultation with the North American Quit Consortium and the British Journal of Tobacco Cessation.
» Read More
Oral Presentation
John Andractas
The patient experience is consistently a top
concern for healthcare leaders.
When thinking about how to improve, advances in clinical care and
environment are often the focal point. However, in an era of rising patient
responsibility, the patient financial
experience is often an overlooked component. Billing is the last impression left on a patient and can
potentially be one of the most damaging.
Worse, there is a correlation between higher patient responsibility and
bad debt, not to mention the many patients (insured or otherwise) who avoid
needed care due to the costs. A prominent McKinsey study shows 74% of patients
are willing and able to pay given the right conditions. A more consumer friendly approach to
billing has the potential to ensure patients have the right expectations from
the start, clearly understand their benefits and bill, and have a convenient
means to pay including financial assistance. Healthcare leaders face an
important opportunity to close a significant gap.
» Read More
Oral Ignite! Talk
Mahesh Chaudhari
Visualizing large-scale disconnected data in health care is
becoming one of the biggest challenges in the big data community. Challenges
arise from the heterogeneous and unstructured nature of data as well as complex
relationships between different entities. Modeling the data correctly in health
care industry helps in answering important questions such as professional
health care network analysis for better connectivity and referrals, analyzing
sales data for predictive analysis of accounts and sales reps, and providing
extensive insights into clinical trials.
These problems can be addressed by integrating disparate,
heterogeneous data sources for deriving analytics and meaningful insights from
the data.
» Read More
Workshop
Mandira Singh
How do you get your foot in the door with large healthcare systems when there is little access and few success stories? Entrepreneurs often lack the resources to go from a high-potential concept to a built-out service in market. However, the barriers to entry are not as insurmountable as one might think. Part of athenahealth’s core strategy is to help innovators connect with those in need of solutions. Mandira Singh, who heads athenahealth’s More Disruption Please (MDP) program, will reveal her tricks of the trade, including how to position a Health IT company to sell into the behemoths of enterprise, how to lower the sales cycle, and ways to effectively spend marketing and sales dollars. This will be a working session so bring ideas to pitch.
» Read More
Oral Presentation
Jenna Tregarthen
The need for scalable delivery of mental health care is now a major public health priority. For the 20 percent of Americans who suffer from a mental illness there are significant barriers to accessing quality mental health care and stigma continues to shroud seeing a “shrink”. Current models of care delivery are unlikely to ever meet the enormous need for psychological services. The emergence of mobile applications (apps) for mental health identification and treatment is potentially game changing. Apps can deliver consistent, evidence-based, and responsive treatments to individuals with unprecedented privacy, convenience and affordability.
» Read More
Oral Ignite! Talk
Jennifer Strickland
Why does one medication work for you but not for someone
else? A branch of science known as pharmacogenetics
promises to help physicians prescribe medicines based on patients’ unique
genetic characteristics that affect their response to specific medications. These
tests are changing how physicians think about and prescribe medications for an
array of complex conditions, such as mental health, pain and cardio metabolic
diseases. Millennium Health CEO Brock Hardaway can describe the
potential for pharmacogenetic testing to improve and save lives while also reducing
costs associated with prescribing the wrong medication. The company is a leader
in developing new genetic tests for a variety of conditions and in achieving
faster turnaround times—48 hours or less—to help doctors make more timely
diagnoses and treatment decisions.
» Read More
Oral Presentation
Matthew Maher
Continued advancements in genomics are shepherding a new era of personal and familial health information. But how are patients navigating this new space focused on probable risks? How does the experience of genetic screening shape a patient’s understanding of their own genetics and that of their family? Matthew Maher, a Product Designer at Counsyl, a health technology company providing genetic testing and counseling services, will discuss the challenges and opportunities in designing a patient experience that educates and informs, ultimately translating statistical risks into better patient outcomes.
Poster Presentation
Aytac Durmaz
Advanced
technology on various industries are helping us to develop better x-ray systems
for usage. We are developing innovative x-ray devices to use.
We
have a core team of 4, and we have 2 patents on hold up to now, which will
be 4 in the end of this year. We are developing new generation x-ray
systems with lower dose, tremendously improved imaging abilities, with easy
usage and low cost.
Our
medical direct x-ray system has many features depending on our core platform
technology SyncBox (patented); about multiple energy x-ray; which
helps us to observe soft tissues on x-ray like never happened before; also with
various developments we are trying to provide functional data acquisition, and
able to observe complex tissue degenerations such as meniscus, hernia. By
able to provide this information we are aiming to reduce MRI and CT usage
,and support the health system with better, cheaper and faster
diagnostics.
Our
innovative technology based on system optimization, image
processing, and controlling all the hardware and software
through out a single platform (SyncBox).
» Read More
Oral Ignite! Talk
Paul Grant
Creation Pinpoint® is the first service dedicated to
providing business intelligence and competitive insights from live conversation
among healthcare professionals in public social media channels. This unrivaled service is built on proprietary technology that is
currently monitoring more than 150,000 influential healthcare professional
social media sources and profiles among a wider index of over half a million
healthcare professional profiles. Launched in 2013 by Creation Healthcare in
London, UK, the service is now used to inform the strategies of more than half
the world’s largest pharmaceutical companies as well as NGOs including the
World Health Organization.
In this presentation, Paul Grant will share how insights obtained
through the service are shaping and informing strategies throughout the
healthcare industry, and more generally influencing the provision of medical
information in traditional offline and online activities.
After
setting up a rationale on why it is important that healthcare professionals are
discussing clinical matters online, the presentation will give practical
examples and case studies of the educational benefits for any team looking to
deliver value to healthcare professionals as a customer group.
Oral Presentation
Derek Newell
The rise of mobile technology and digital health has created an opportunity for employers to offer personalized, dynamic benefits designs that maximize employee health and minimize health care costs. Jiff creates simple, unique experiences that reward employees for making healthy choices. Through the platform, employees can choose to use their own consumer tracking devices and mobile apps, or ones issued by their companies, to participate and earn rewards. Using examples from well-known
companies, Jiff CEO Derek Newell will
demonstrate how its real-time data collection on a wide range of employee
health metrics can help employers measure the results of their employee health
programs and prove their value with real financial savings. These measurable
savings include company health care expenditures and a reduction in employee
health care premiums.
» Read More
Oral Presentation
Geri Baumblatt
Medical decisions are stressful. When
people receive a diagnosis of a serious illness such as cancer, people usually
feel overwhelmed; many experience things like cancer-related anxiety or in some
cases, even Post-Traumatic Stress Disorder. Fueled by fear, people often rush
into decisions without the proper time to absorb information and understand
their options.
Other times, with a chronic condition like
diabetes, people often reach a decision point when an additional medication is
needed.
» Read More
Oral Ignite! Talk
Paul Kudlow, Gunther Eysenbach, Alan Rutledge
Scholarly content represents the leading edge
of humanities knowledge. With over 5,000
new papers published across 27,000 online journals daily, many scholarly
articles simply never reach their intended audience and consequently fail to
generate the impact they deserve.
TrendMD was founded by physician-scientist Dr.
Paul Kudlow, and leading open access publisher of JMIR Publications, Dr.
Gunther Eysenbach, with the simple goal of connecting the right content to the
right audience. The two joined forces with Alan Rutledge, a talented software
engineer, to create a personalized recommendation engine that allows us to
distribute scholarly content across online journals and blogs and push content
directly to its intended readers.
When a publisher installs our free
recommendations widget on their journals and blogs, we start promoting their
content across our network and send them new and interested visitors.
» Read More
Oral Ignite! Talk
Dr. Mehdi Bouricha
In the face of the mounting
pressures on healthcare systems in all countries, new solutions are urgently
needed. Governments in developing countries will be unable to continue to
deliver quality services to all of their citizens with existing resources and
traditional methods. We propose through a new kind of
business models to increase the quality of African HealthCare systems, by
offering a free Big Data Health platform, able to collect genes, Behavioral
data and health data, and process it with Machine Learning algorithms that can
search and discover, behind patterns. Our Business Model is built on
Doctors in Developed countries paying Platform utilization fees for Emerging
countries MD’s.
» Read More
Oral Presentation
Karan Singh
Since the 1950s, the majority of innovations in mental health have been focused on the development of pharmaceuticals. But with nearly 1-in-5 Americans suffering from mental health illnesses and the cost of developing new drugs now exceeding $2.5 billion , the medical community is searching for new ways to understand, manage and treat behavioral health conditions. This includes management on both the individual and population levels. Additionally, today’s mental health patients have remarkably few tools to help them understand and manage conditions on their own—a surprising fact in an era defined by self-service and consumer apps. At Ginger.io, we empower patients to better manage their own mental health condition, and we empower providers to deliver better mental health care.
» Read More
Oral Presentation
David Shaywitz
President Obama kicked off 2015 with the Precision Medicine Initiative outlining a vision of data-driven science to improve health outcomes. Over the past few years, we have witnessed breakthroughs in the mapping of the human genome, which kickstarted this genomic journey to personalized medicine. We continue to blaze new trails as healthcare providers, businesses, consumers and the government all play critical roles in the era of medical discovery. Technology has been a key driver to medical advances in key fields such as biopharma, wearables and diagnostic-testing, and will be a key component to the overall success of the president’s initiative. Genetically-defined therapies have shown some success over the years, in oncology and cystic fibrosis for example, but what will be required for targeted therapies to become the norm in modern medicine? The simple answer to a complex undertaking is a combination of collecting, integrating and analyzing a range of data types – no small task, and one that is ripe for innovation with technology.
» Read More
Poster Presentation
Andrea Downing, Haibo Lu
CancerIQ is democratizing access to precision medicine cancer care. We make hereditary cancer risk assessment faster and
cheaper, so that patients can get direct access
to care, so that more providers can screen for
genetic risk factors, and so that specialists can
scale care to patients at lower costs. For our poster presentation, we will demonstrate our platform and discuss our unique approach to patient-centered design. In order to ensure that our product resonates with patients, we partnered with ePatient designer and founder of Brave Bosom, Andrea Downing. The NIH has outlined a new strategic vision for the 21st Century, which will shift the focus of research toward medicine that is Predictive, Personalized, Preemptive, and Participatory (NIH 4P’s). This strategic vision has great potential to be realized within cancer care through use of genomic technologies, which are rapidly becoming faster, cheaper, and more scalable. Yet, great barriers to widespread adoption of genomic-based cancer prevention strategies include limited knowledge in a rapidly evolving field, a growing shortage of cancer specialists and genetic counselors, complicated and fragmented care delivery systems, and mounting pressures to reduce cost. Despite lowered costs of DNA sequencing and increasingly powerful informatics tools, practitioners are unable to meet the needs of millions of patients newly diagnosed with cancer globally, and unable to serve family members at risk.
» Read More
Oral Ignite! Talk
Tatyana Kanzaveli
Every healthcare organization is aware of patients using mobile devices to manage their diseases/treatments, search for information and discuss their conditions. To address this healthcare organization started developing their own mobile applications. However custom developed applications have the following issues: - high development costs; - slow to market; - high support costs; - inability to quickly respond to changes in fast moving mobile space; - overload of mobile applications for patients - in many cases patients have to install more than 5 applications to manage one disease; - mobile applications are not personalized to each patients' needs resulting in overload of irrelevant information. These are some of the reasons that dictate a different approach to mobile applications development strategies.
» Read More
Oral Ignite! Talk
Thomas Sessa, Dayna Sessa
A rare disease is defined as a condition affecting less than 200,000 patients in the US. There are 7000 such diseases impacting 30 million patients and families in this country alone. We are building a platform that will allow patients with rare diseases and their caregivers to foster micro-communities, log real time home care data and input full EHR family & personal histories. With this we not only remove the barriers of isolation that often come with any disease, let alone a rare one, but we provide a platform for crucial data that was not previously collected in a structured way, particularly along the vertical of one disease. With that we're building a data analytics engine that highlights commonalities and perhaps some environmental & genetic causes of the disease otherwise not discovered for the purposes of treatment and acceleration of diagnosis. We can now provide vital information to clinicians & researchers, that was not accessible until this point. They now have access to patient behavior and symptoms in real-time, outside of the clinical environment--- making the communication between provider and patient more engaged, more empowered and more reciprocal.
Oral Presentation
Daniel Penn
Patients have critical information
that healthcare professionals need to deliver the best care. So, how can we
improve the communication of this information?
Shift Health, a full service health
IT company based in Toronto, Canada, envisions the patient-experience movement
as an opportunity to address patient/provider communication – a fundamental
interaction to the provision of effective care – by targeting a ubiquitous
health care tool: the patient questionnaire.
Traditional clinical questionnaires
reinforce inequality in therapeutic relationships. They are not designed to
engage patients and are seriously limited by poor uptake, survey fatigue and
complexity.
» Read More
Oral Presentation
Amos Adler, Bill Simpson
Despite advances in the use of mobile and digital health technology, there is still an enormous gap between delivery, adoption and long-term use of digital health interventions. Much of the work of the last few years has focused on short-term outcomes (<= 3-6 months ) and the initial uptake of digital health technology. MEMOTEXT has shown that by collecting disparate sources of data from patient
self-report, claims-data, wearables and EMRs, our personalized and evidence-based digital health interventions can achieve long term adoption and significant changes in patient behaviour. Validated in a number of clinical and commercial settings MEMOTEXT has spent the last few years creating a development methodology, building personalization algorithms and improving adherence to medications, blood-glucose testing, and overall treatment adherence. With a case study approach, we can demonstrate that the use of multi-dimensional data from patient self-report (e.g. mood, quality of life, perceptual barriers to adherence) combined with objective data sources (e.g prescription claims data, real-time blood glucose levels) can extend digital engagement over the long-term. MEMOTEXT has live pilot implementations in place with stakeholders including Pharmacy Benefit Management (PerformRx), Health plans (GreenShield Canada), pharmaceutical manufacturers (Genentech) and providers (Johns Hopkins University) to demonstrate the efficacy of employing a two-tiered data driven digital health intervention.
Oral Ignite! Talk
James Rutherford
The first objective or
mission of Top20Health.com is to be a better way of doing information
processing in healthcare for patients, students, and physicians with a global
perspective. That is, the first objective is to provide the best health care
directory as a useful service. Top20health.com is part of Top20.com which is
a general internet directory with a network of over 600 websites and the long term business objective is to be
one of the top 3 or 4 “go to” alternatives to the search engines.
Top20Health.com is a curated
(hand selected) open access (free) internet directory for healthcare. The problem is now not one of access to
information, but one of information overload and selection.
» Read More
Oral Presentation
Michael H Cohen
Wearable health technology makes medicine a triangular
collaboration between physicians, patients, and machines. This triangle changes
the business and clinical practice of healthcare by moving medicine out of the
doctor’s office, into an omnipresent, virtual stage where health and wellness
care is available anywhere and everywhere, 24/7, through multiple and diverse channels,
with the consumer/patient holding the remote.
This workshop focuses on what business (and clinicians) must
do to adapt to the changes in our medical future that wearable health
technology brings. Specifically, we will
discuss 4 key trends:
1. Telemedicine : Patients will no longer “visit doctors,”
but will understand that they are “wearing their doctor on their sleeves.” Physicians will be seen as disease care
experts, but patients will be self-reliant for prevention, wellness, and
fitness . By integrating quantifiable self-data into medical
decision-making, patients will claim more responsibility for their own health;
they will focus on preventative self-care and lifestyle changes; and they will view
physicians as experts who may only rarely be required—i.e., for treatment of
advanced conditions when self-care fails.
Understanding the telemedicine legal landscape will be crucial to meet
this changing marketplace.
2. Mobile care : Medicine will be driven by consumerization
and appification . Consumerization—the
movement from organization-driven offerings to consumer-driven priorities (such
as, in healthcare, yoga, herbal medicine, and alternative therapies) will not only
make patient-centered care the dominant paradigm, but also will increase the
market share for complementary and integrative medical approaches. Appification—the reduction of in-person,
clinical care to online or mobile visits—will further reduce the intimacy of
physical relationship between doctor and patient, and additionally drive
exploration of pluralistic approaches to care.
Obamacare, along with diminishing Medicare and private pay
reimbursement, will drive physicians to develop health care products (from dietary supplements to
medical devices and mobile medical apps) as a way to garner patient revenue. Overall, healthcare will move from the
service to the product sector.
Understanding key FDA rules will be critical.
3.
» Read More
Oral Presentation
Monya De, Nick Desai
February 2015 marked the launch of
Heal, a revolutionary means of getting medical attention on demand.
Based in Santa Monica, California, Heal's app and business were created in only
three months. Patients simply open the app and request an adult medicine doctor
or a pediatrician. Within one hour, the doctor arrives with a medical assistant
and equipment. A flat fee covers the visit, and patients can begin an ongoing, personalized
relationship with their favorite Heal doctors.
» Read More
Oral Presentation
Odie Fakhouri
LabCures
was founded in November 2013 in San Francisco's Bay Area. Our mission is to
organize U.S. research labs in the health sciences to one website and make them
universally accessible to the world. LabCures is taking the scientific
enterprise online and empowering people to find, fund, and share current
disease research that matters to them - direct to the lab.
» Read More
Poster Presentation
Laura Martini, Ellen Zwickl
With nearly every purchase the answer to “How much does that cost?” is a simple one. If you want to find the best prices on a pair of shoes, all it takes is a search engine and a few keystrokes. Consumers expect to be able to easily determine and compare the cost of goods. So, when it comes to their healthcare, patients rightly expect a straightforward answer to how much it will cost them.
» Read More
Oral Ignite! Talk
Travis Good, MD
The adoption rate of technological innovation
has exponentially accelerated with the time span between invention and
commoditization shrinking from decades to years. Considering the rise of cheap
storage and computing power, enterprises are now experiencing similar speed
gains to that of smartphones and their related burgeoning app stores. Health
care, however, has been the exception. The health care industry can increase
the pace of innovation to match the pace of other industries and decrease
compliance burdens by leveraging cloud computing.
» Read More
Oral Presentation
Kristen Daly
The
pervasiveness of social media networks combined with new
health monitoring devices and an increasing understanding of the
importance of social influence on chronic disease has created a
situation where health can be integrated into and change our
self-identity, our social relationships and our relationship with our
communities both local and global, on-line and in-person to a much
greater extent than in the recent past.
Health
has always played a role in social interaction and culture, to the
extent that rules
have had to be explicated barring health talk from conversation. 1
The TMI (too much
information) dining table conversation, falling into details of
health ailments or procedures, is a common comedic trope. Lately,
communication technologies
such as social networks have become more intimately intertwined
with our health, changing our cultural rituals, who we interact with
and even
how we perceive ourselves in the social structure.
» Read More
Panel Discussions
Skip Fleshman, Malay Ghandi, Robert Mittendorf, Ambar Bhattacharyya
Telemedicine may just be the biggest trend in digital health in 2015. As a partner focused on digital health investments at venture capital firm AMV, I spend a lot of time crisscrossing the country chatting with leading healthcare providers and insurers about their technology needs. By far the area they are most interested in is telemedicine. For hospitals, expanding telemedicine is a way to cut costs while providing consumers with the convenience they crave.
» Read More
Oral Presentation
Garrett Locketz
Today, surgical simulation exists as a valuable tool for
surgical training and task rehearsal by reducing the need for cadaver
specimens, allowing trainees to receive structured performance assessment, and
facilitating repetitive deliberate practice. Nevertheless, simulation platforms
are inherently limited by the number of programmed and designed cases/scenarios
available for practice, and the anatomy within the virtual environment will
invariably differ from that which is subsequently encountered in the operating
room. To address these limitations, we have developed CardinalSim – a validated
patient-specific virtual surgical rehearsal platform capable of rendering a
patient’s preoperative imaging data into a 3-dimensional virtual model upon
which a procedure can be rehearsed prior to the actual operation. In its
current form, CardinalSim allows a surgeon to explore a particular patient’s
anatomy quickly and efficiently in a surgically meaningful manner using a
haptic interface, providing valuable insights into the anatomic and physical complexities
expected at the time of actual surgery.
» Read More
Oral Ignite! Talk
Bhargav Sri Prakash
A presentation about
an iterative design-thinking approach to develop an entertainment oriented
therapy based on neuropsychology, will show how emerging technology platforms
such as HealthKit, Google Fit & Wearables are being harnessed to drive
health outcomes. This talk will
share a case study of the therapeutic value and health outcomes measured during
clinical trials of fooya - a mobile health App available via the App Store and
the Google Play Store. The goal is to share insights within the underlying design
premise that one of the first steps to behavior change in individuals, is
achievable by raising awareness to promote self-efficacy through vicarious
reinforcement and conditioning. The case study will focus on user data
generated by middle school campers across the country during the 2014
ExxonMobil Bernard Harris Summer Science Camp.
» Read More
Oral Ignite! Talk
michael nova
The proper goal for any healthcare delivery system should be to
improve the value of care delivered
to patients. It is not the number of different services provided, or the volume
of services delivered, that matters. It is the value of the care that is
important. There are two factors that substantially contribute to decreased
value in healthcare: unstructured health data and health care costs.
» Read More
Technology Hub Pavilion
Zhendong Song
Engaged patients are willing and able to self-manage and self-advocate. Engaged patients also have better outcome and cost less. To improve engagement it is important to have patients properly informed and motivated, especially for those living with chronic illnesses. Dr.Google is helpful, but it is not the ideal tool for long term engagement as many don’t have time, expertise or interest to sift through information.
» Read More
ePatient Track
Oral Presentation
Aleida Lanza
The explosion of self-tracking apps and devices is de facto evidence we have been
underestimating the ePatient’s ability to take control of their health in a meaningful way.
These first steps toward empowering the ePatient have produced a lot of data, with very little
analysis. The proliferation of health trackers merely beg the democratization of science for
better health, which have yet to deliver analysis. This void dooms these magnificent tools when
they are relegated to a drawer after six months, when they lose their ability to prove long-term
value as ambassadors to health.
Enter the DIY ePatient: In order to change the paradigms of delivery of treatment, meaningful use, and collaboration,
we must empower the ePatient with tools that, like bionic limbs, give them a digital reach that
can mitigate their need for assistance. It must necessarily begin with defining a new democracy
in health care delivery, which recognizes that in leveraging technology, we can also leverage
science, to improve treatment rates and better outcomes.
» Read More
Panel Discussions
Beth Toner, Leigh Anne Cappello, Lisa Gualtieri, Brooke Van Roekel
Patient engagement. Patient-centered. Patient empowerment. These phrases have become ubiquitous synonyms.
» Read More
Oral Presentation
Edward Shin
Yelp, TripAdvisor,
Facebook...there are myriad ways for consumers to provide feedback on goods and
services, however, in healthcare, these same social media sites do not provide
healthcare providers with meaningful, actionable data so that they can actually
respond to patients' feedback. Enter RateMyHospital® ( www.ratemyhospital.com ). With
RateMyHospital®, we set up an ADT (admission, discharge, transfer) feed with
the hospital. We are notified when a patient is discharged from the
inpatient setting or checks out of the outpatient practice and text that
patient a HIPAA-secure link to a patient satisfaction survey on their
smartphone. This consumer-friendly survey is based on a 5-star rating
scale and takes less than a minute to fill out.
» Read More
Panel Discussions
Steven Chan, Peter Yellowlees, John Torous, Josef Ruzek, Arshya Vahabzadeh
Persons suffering from
depression, posttraumatic stress disorder, bipolar disorder, schizophrenia, and
other psychiatric diseases have difficulty with today’s fragmented mental
health system. What if mental health support could be more accessible, optimize
wellness, enable global reach, and empower all patients?
Technologies to make this a
reality already exist: smartphones and wearable devices. 90% of Americans have access to a cell phone,
and a majority of psychiatric patients own smartphones, providing a portal for
consumers who may not want to seek in-person help or may face barriers to
mental healthcare. But challenges abound in clinically validating and
integrating this new paradigm of mental health into our existing systems. We
will discuss our research in combining physiological, psychological, and
behavioral metrics and real-time capturing of data. We will review how data analysis techniques
can monitor, assess, and treat mental illness — from mild everyday stress to
serious cognitive disorders.
» Read More
Oral Ignite! Talk
Martin Naley
The potential of
precision medicine is tantalizing. We
see news about technologies, tests, and new therapies every day. When people receive a cancer diagnosis,
however, they are stunned that the power of personalized medicine is just out
of reach. This insight led us to develop
a new company, Cure Forward, a website that helps patients play a more active role
in care planning through effective access to, and use of, their molecular
profiling test data. We envision a
future where patients will be able to work with their doctor to find a test,
receive their test results electronically, and put them to purposeful use,
including finding trials trials through a multi-sided marketplace. In this talk, we will describe the Cure
Forward product and the story and philosophy behind it. At this three-month inflection point, we’ll
also describe what is happening in this new community. We’ll share data and insights on
participation by patients and clinical trial recruiters, and we’ll candidly
assess the success and prospects of the program. Most of all, we’ll assess whether
mobilization of individual consumers is an effective catalyst for widespread
adoption of genomics in cancer care and increased patient participation in
clinical research.
Workshop
Danielle Edges
I believe that pediatrics is a special field of medicine. Discussions need to occur on how we can make it easier for parents and caregivers of medically complex children communicate with their child's medical providers. Be it email, patient portal, and the like, it is a discussion that needs to occur. How quickly should providers respond? There is many questions as to how this can be achieved. Also discussions on parent engagement in the process of care for these children is a very important topic that can be discussed.
» Read More
Oral Ignite! Talk
Lorraine Johnson
Many disruptive technology and sociological factors today
combine to allow patient powered research projects to take the helm at seeking
solutions to the medical problems that impact patient lives. Patient powered
research is research that is driven by patients and holds their interests at
the center. The technological forces that fuel these changes include the
computer advancements that allow big data research, which draws upon the 3Vs: volume
(vast data pools), velocity (quick research), and variety (types of data). In addition
to being able to compile and analyze individual medical data on a large scale,
these advances allow research to leave the ivory towers of academia and travel
down the tributaries to patient organizations, which may hold the keys to the
kingdom in big data—patient engagement and consent.
» Read More
Oral Presentation
Nancy Morioka-Douglas
Tom Ferguson coined the term e-patients to describe
individuals who are equipped, enabled, empowered and engaged in their
health and health care decisions. Our
hypothesis is that developing the skills and attributes necessary to be an
e-patient is particularly important in under-served, ethnic minority communities
and that as part of the Stanford Youth
Diabetes Coaches Program , high school students can be taught to develop
these skills for themselves and support their families to acquire them as well.
The CDC reports that compared to non-Hispanic white adults,
the risk of diagnosed diabetes was significantly higher in minority
populations. Additionally, in less than
a decade, the prevalence of Type 2 Diabetes and prediabetes has more than
doubled among US adolescents. Efforts
to address this through education are predominantly healthcare-centric, traditionally
where patients and community members passively receive information from
experts. What if we could seamlessly
integrate knowledge transmission and skill building into each person’s life
cycle? What if we could leverage the
inherent altruism of teens to help their family members and the aspirational
goals of physicians in training to help their communities to set up a diabetes
education and prevention system that was accessible, sustainable and
reproducible even for under resourced communities?
In our research we have
partnered family medicine residency programs with high schools in low income,
ethnic minority, at risk communities to bring residents into the high schools
to teach students to become diabetes self-management coaches for their family
members. The goal of the project is to
create web-based, innovative, effective, scalable, technology-enhanced curriculum
to support sustained participation of high school students and their families,
incorporating the best practices of secondary education with the most current
theories of behavior change for health improvement. The curriculum emphasizes
health literacy, goal setting for health improvement, and intra-family social
support for engaging in healthy behaviors.
Participating residents learn how to work in partnership with high
schools and gain an enhanced understanding of the communities they serve. After residency graduation, the web based
curriculum would be easy to access, efficient to use, and fun to continue to
teach wherever they might practice. And
the high school students, empowered by regular personal interactions with
physicians at their schools, internalize and share with their families the
realization that diabetes prevention and self-management coaching are part of
daily life, like the other life skills they are being taught, not a stand-alone
body of technical knowledge, dependent on an expert for access. This approach is cheap, leverages strengths
in low-income ethnic minority communities, benefits the whole family, and
provides experience in community health for physicians in training. Ultimately, the program has the potential to
support the development of equipped, enabled, empowered and engaged patients in
communities that have historically been dis-empowered and distrustful of the
medical system.
Oral Presentation
Jeremy Sohn
With increasing attention being paid to patient centricity
and implications for protocol design, sponsors are incorporating many
innovative approaches to improving the participant experience during a clinical
trial. Mobile patient engagement platforms are a key element to this strategy.
Such platforms offer a myriad of features to better engage patients, including
contextually relevant access to content, compliance and med adherence tools,
patient diaries, site communication tools, and enhanced data capture and PROs.
Mobile patient engagement platforms, or maybe better yet, mobile
patient-experience platforms, are designed to lead to improved compliance,
retention, and overall more predictable outcomes. This presentation will share insights learned from Centros'
deployment of its mobile engagement platform during clinical trials and examine
how these can be applied to improve protocol design and overall patient
centricity. The presentation will also explore how Centros' rapid prototyping
capability can be used to inform this process in real-time, including a case
study from a large pharmaceutical company.
» Read More
Oral Presentation
Bonnie Feldman
It’s still lonely in the world of autoimmune disease. Twenty years
after the promising biologicals of the 1990s, we need big data to advance
further. Despite $4B in digital health funding, autoimmune diseases have been
wallflowers at the party. But we aren’t just standing around: the community is
generating a digital pandemonium of self-help advice, especially dietary.
» Read More
Oral Ignite! Talk
Alexandra Destler
Four million babies are born each year
in the United States yet women are not receiving important safety information
from their obstetricians about exposure to toxic chemicals as part of their
prenatal education. Research from UCSF’s Program on Reproductive Health and the Environment shows that OBS lack the tools to discuss toxic
exposures with pregnant patients and aren’t counseling
pregnant women on toxic chemical risks. OBs are missing a ripe opportunity when
women are poised to make important changes in their lifestyle and behavior for
the health of their pregnancy and baby. A growing body of research shows that
many reproductive and health problems are caused by exposure to chemicals that
are widely dispersed in our environment and with which we come into contact on
a daily basis.
» Read More
Oral Presentation
Abigail Norman
A piece that I wrote for The Huffington Post was picked up by the American Society for Reproductive Medicine, and I think that it is a great anecdotal introduction to the reality of living with endometriosis. I have written and researched chronic pain — particularly as it relates to endometriosis—as an independent writer, journalist and scholar and feel that Medicine X would be a prime platform to begin having this discussion. Endometriosis, at present, has no cure. It is chronic, progressive, likely linked to autoimmune disorders and can quite malevolently rip a woman of her fertility.
» Read More
Panel Discussions
Sara Riggare, Susannah Fox, Michael Seres, Elizabeth Pollard
All over the world, patients’ voices are being heard more and more in healthcare and are increasingly seen as an important stakeholder in discussions on healthcare design and delivery. But what about medical research? Can patients add value beyond being research subjects?
In this panel we will discuss how patients’ opinions, knowledge, and experiences can make the whole research process better; from formulating the research questions, to designing, recruiting, and implementing the research as well as disseminating the research results. We will draw from our experience of different initiatives, like PCORI and NIHR. Members of the panel are:
Michael Seres is a long term patient having become the 11th person in the UK to undergo a rare bowel transplant and now coping with high grade B cell Lymphoma.
» Read More
Oral Presentation
Howard Look
Imagine a world where you own a digital camera, but you are
forced to use the software that comes with the camera in order to access the
pictures. Worse, if you want to share the pictures with Grandma, you have to
give her a proprietary image viewer in order to view the camera’s proprietary
image format. We would never stand for that, right? Now imagine that you have type 1 diabetes. You live with a
life-changing chronic disease that demands constant attention. Your pancreas
has stopped producing insulin, so in order to survive you must administer
precise doses of insulin throughout the course of the day.
» Read More
Poster Presentation
Joanne Helppie
BACKGROUND : The Administration on Aging reported in 2012 that
15.8% of those over 65 were having difficulty living independently. At the
same time, families are becoming more physically distant as the children move
around the country. This has created a
need for long-distance children and remote caregivers to be able to access the
information they need in the locations their loved ones reside, in order to
provide assistance when they cannot be there to physically provide help. Aging
Projects, Inc. (API) was created as an easy-to-navigate website to provide
information about maintaining the safety and quality of life to those aging at
home.
» Read More
Oral Presentation
Matthew Might
The widespread availability of sequencing is creating an
explosion of “one of a kind” disorders. Patients are being told
in record numbers: “You are the first and only we’ve ever seen.” Not long
ago, the diagnosis and discovery of these “black swan” disorders would
have been devastating. But, social media and precision medicine are
making it possible to fight and win against even the rarest
diseases. Dr. Might paints a vision of precision science and
medicine at the fringes of human knowledge through the story of his son — the
first patient ever diagnosed with the novel disorder N-glycanase (NGLY1)
deficiency. Might’s targeted use of social media for
case-finding made it possible to find undiagnosed and misdiagnosed
NGLY1 patients as far away as India in mere months rather than
years. Two and a half years later, a
tight-knit community of 26
NGLY1 cases has established a global, patient-driven research
coalition that is rapidly bringing the disease to heel through
breakthroughs in the cell biology of the disorder. Early therapies
have already been identified and trials for targeted treatments
are within striking distance. Ultimately, the NGLY1 community
seeks to discover more than a cure for N-glycanase deficiency; it is also
discovering a sustainable, scalable model for understanding, treating and
curing the rarest of diseases.
Through the lens of
NGLY1 deficiency, the talk will illustrate a rare disease roadmap: it will
briefly discuss going from undiagnosed to “one of a kind,” and then focus on
answering two questions: how do you create a patient community from scratch,
and how can small patient communities drive the science? While the examples of steps on the roadmap
are drawn from the NGLY1 community, the action items are general, so that other
patients and communities figuring out how to take the “next step” on the road
to understanding and treatment may do so as well.
Panel Discussions
Joseph Riffe, Christopher Snider, Britt Johnson
The psychosocial and psychological aspects of living with chronic illness and trauma all too often get overlooked due to time constraints within healthcare, a focus on the immediate problem at hand, and an inability to ever fully understand another person's life. This will be a candid discussion including a cross section of disease patients: Diabetes, Amputee, Rheumatoid Arthritis, and Rare Disease. Each panelist will discuss life outside of the physician's office and dealing with the stigmas of their diseases. Topics will include: friendships with "healthy" people, family, intimacy, stress on caregivers, and questions posted by Twitter prior to the conference. As well as how each demographic deals with the fatigue of being a patient 24/7. While each patient deals with the specifics of their disease, this discussion will highlight the commonality of being a chronic patient.
» Read More
Oral Presentation
Patricia Deegan
When I was 17
years old I had my first episode of psychosis, was hospitalized and diagnosed
with schizophrenia. I was told I would always be sick. My treatment
team advised me to take high dose antipsychotic medications for the rest
of my life and to avoid stress. The treatment and the prognosis of doom
surrounding my diagnosis were as disabling as the illness.
» Read More
Panel Discussions
Jodi Sperber, Susannah Fox, Colleen Young, Wendy Sue Swanson, Pamela Ressler
Privacy is an ambiguous, powerful concept that, while meant to
protect us, can shut down meaningful conversation and innovation. Discussions
of privacy often happen within silos, missing opportunity for translation
across professional and personal lines. This interdisciplinary panel will
unpack the meaning of privacy in health care, expand the audience’s
understanding of its nuances and practical applications, and inspire people to
build health systems based on trust, freedom, and discovery. Through flipping the panel, the panelists will tap into the
expansive collective knowledge of their social networks to inform and guide the
discussion in the months leading up to conference.
» Read More
Oral Presentation
Britt Johnson
For 48 hours, I live-tweeted the reality of my chronic
disease, creating an unfiltered insight into living life as a chronic patient.
Using the hashtag #ChronicLife, and registering it through Symplur, I utilized
their tools to bring quantifiable meaning to the narrative. What began as an experiment by one patient,
turned into a movement of honesty, communication, and education - and is still ongoing. While much of the
conversation initially appeared status quo to the patients, other stakeholders
that viewed the tweets all unanimously said they were profoundly changed from
the experiment. By the end of the 48 hr period, even the patients were changed (for
the better) as unforeseen insight was gained that will affect all research in
healthcare social media.
From this talk, attendees will learn how real-time honest
patient narrative created permission
for other patients to improve communication in all aspects of their lives, and permission for other stakeholders to participate in healthcare social media on a new level. This talk will look
at why the narrative was greatly altered amongst a large number of patients within a 48
hour period, and how our current research into social media might be failing to
grasp an accurate view of patients. Then
we’ll look at lessons learned and how we might apply them to improving the landscape
of healthcare.
Oral Presentation
Michel NADEAU, P.Eng., Roger Simard, B. Pharm.
50 Seniors from a high end senior home are each provided an iPad mini and connected health devices to self track their health. They are connected to their caregivers, mainly the pharmacist, doctor and nurses associated with the residence. Other parameters are tracked including nextgen biosensors and genomics in order to adjust their medication therapy. Our presentation shall provide findings from the project which lasts over several months in 2015.
» Read More
Oral Presentation
Hollye Jacobs
At the age of 39, as a
healthy nurse, mother and wife with no history of breast cancer in my family,
being diagnosed with the disease shattered my world. In an instant, I found
myself moving from the side of the hospital bed as a clinical care nurse, and into the bed as a patient. As an effort to share my
unique perspective - as a health care professional with firsthand patient experience
- I launched my award winning blog, www.thesilverpen.com . It quickly became clear to me that people are
hungry for peer-to-peer content and connection to help guide and support them
from diagnosis through recovery. In April 2014, my blog was
turned into a book, The Silver Lining, A Supportive and Insightful Guide to
Breast Cancer.
» Read More
Oral Presentation
Helmy Eltoukhy
Cancer is the second leading cause of death in the U.S. Considering about half
of all men and one-third of all women in the US will develop cancer during
their lifetimes , the disease unfortunately is something most Americans have
come in contact with, either personally or through a loved one or close
friend. Cancer can grow and mutate
rapidly. However, every cancer patient’s
disease is different from a genomic level.
This has led to the personalized treatment movement and has led to
patients taking an active role in determining with their physicians the right
therapies at the right time. For decades, the medical community has been fighting this
widespread killer with traditional tissue biopsies. However, patients and their
oncologists have a new tool to fight the disease: a non-invasive blood test (called liquid biopsy) that uses cutting-edge
cancer genomic technology to provide real-time insights into how the disease is
mutating and growing. By educating themselves on the latest tests and
technology available today, patients can have their blood examined before,
during and after treatment to ensure the chemo and radiation is delivering the
right medicine at the right time. This is giving patients a better level of
understanding into the disease’s evolution in their own body and an
unprecedented opportunity to get the adaptive care they need to effectively
fight the disease.
» Read More
Poster Presentation
Nelya Koteyko, Daniel Hunt
As the web
has become a principle source of health information for individuals in the
developed world, recent clinical literature has increasingly looked towards the
potentials of social media applications for communicating health information.
This medical research has focused particularly on the potential for sites s
such as Facebook to function as vehicles for delivering novel clinical
interventions to patients with chronic health problems. In doing so, it has
neglected to consider how individuals already employ social networking sites to
perform and negotiate their identities as people with long-term illnesses. In
contrast, this patient-centered study examines the role of social media in the
lives of people with type 1 and type 2 diabetes and the different practices
they employ in their ongoing representation of life with a long-term condition.
The study is based on an ongoing observation of 19 Facebook profiles created
and maintained by people with diabetes, and includes analysis of both
individual (status updates) and group contributions to a number of UK diabetes
support groups. The results reveal a range of concurrent practices and
activities such as displaying lay expertise and providing advice, demonstrating
integration into wider diabetes-related networks, and adopting a critical
position in relation to the norms of diabetes control.
» Read More
Oral Presentation
Sohini Stone
When patients seek
access to a doctor, it is almost always for 1 simple reason: to get
better. That’s usually where the
simplicity ends. What does “getting
better” mean to an individual patient? For some, it may mean finding a cure to
their ailment, while for others it may mean being able to get out of bed in the
morning to have breakfast with their families. Whatever the definition, getting
better means improving a patient’s quality of life, i.e. his/her “standard of
health, comfort, and happiness” (ref: Google dictionary). As electronic and other
nontraditional health services expand, access is also expanding, and patients
are becoming more actively involved in their healthcare. What was once a passive system of
paternalistic care delivery has now become a world of shared decision-making
and patient directed care. As providers
of these services, we presume these services result in a positive impact on
patient’s lives – how could it not?
After all, patients are now able to know more about their healthcare,
more easily access their own data, and interact with world-renowned
physicians. While improving access, these
services may also improve quality of care, and reduce the cost of health care.
However, are we actually helping our patients achieve their goal of getting
better (whatever that may mean)? In
other words, how do these expanding services impact patient’s quality of life? At Grand Rounds, we are
starting to work on answering these types of questions. Through our Office Visit and Expert Opinion
services, we offer patients access to top quality local physicians and remote
experts. Our mission is centered on giving
patients the tools they need to improve their health care, and results in
improving each patient’s quality of life.
As we expand our patient reach, we have begun spending numerous hours on
understanding the impact of our work on patient’s – not just in terms of
dollars saved (see Figure 1), but also in terms of if we are truly achieving an
improved quality of life. By introducing
metrics into our current and ongoing follow-up processes, we have started to
gain insight into these previously untouched areas.
» Read More
Panel Discussions
Dianne Johnson, Mary Bush, Karen Wernli, Susan Brandzel
In 2015, the Patient Centered Outcomes Research Institute
(PCORI) will spend $460 million on research of importance to patients and
caregivers. All awardees must have a component of patient engagement to involve
patients in the execution of the project. However,
there is little mentioned in the literature on patient engagement from the
patient’s perspective. The purpose of
our panel discussion is to share as patient partners and research investigators
the surprises, benefits of patient engagement, challenges encountered, and a model
for successful integration. Our goal for this panel discussion is to encourage
patients and researchers to adopt a patient partner model, learning from our
experiences.
» Read More
Panel Discussions
Michael Seid, Erin Moore, Joyce Lee, George Dellal
A collaborative chronic care network (C3N) is a
peer-produced learning health system. It is a platform that facilitates
collaboration among patients, clinicians, and researchers to produce
information, knowledge, and know-how to improve health and health care. Like other network production systems, a C3N
is composed of active agents self-organizing to fix problems important to them,
using tools that make the work easier to do and platforms that enable
aggregation of learning. Key features of a C3N are a culture of collaboration
between and among patients and clinicians, as well as tools to make collaboration
easier to do. The prototype C3N is ImproveCareNow, which has grown from 7
to more than 70 care centers and has improved the remission rate for youth with
Inflammatory Bowel Disease from 60% to 80% without new medications.
» Read More
Panel Discussions
Michelle Litchman, Amy Berman, Tom Delbanco, Sei Lee
As people age they are engaging
increasingly with technology in order to manage their health, better understand
illness, and make informed choices about care.
Evolving technologies allow older adults and their families to take hold
of their health and health care more actively, and today people can connect readily
with others who share similar challenges.
Electronic medical records can enable fully transparent relationships among
patients, families and providers. And technology is even helping both providers
and patients with the most complex health problems understand the likely course
of a disease. This panel will highlight efforts to harness innovative technologies
that support the needs of the largest segment of health care utilizers: older
adults, who soon will represent one in five Americans.
Amy Berman lives well with stage IV
cancer and is a Senior Program Officer with the John A.
» Read More
Panel Discussions
Sarah E. Kucharski, Alexandra Drane, Alexandra Fine, Karolyn Gehrig, Justin Halls, Matthew Dudley
Just as doctors receive little training as to how to talk to patients about death and thus avoid the conversation to patients’ and caregivers’ detriment, there exists a major gap in doctors’ willingness and ability to talk with patients and caregivers about intimacy and illness. Reclaiming intimacy after an acute medical event is regarded much the same as resuming any physical activity such as riding a bike, gardening or climbing stairs. These mundane tasks do not carry the same weight—they do not require intimacy’s physical and emotional exposure. They do not carry the burden of a body changed—a body that surgery has scarred; a body that healing has fatigued physically, mentally and emotionally.
» Read More
Panel Discussions
Andrea Downing, Steven Keating, Emily Kramer-Golinkoff, Claudia Williams, Matthew Might
On January 30th, President Obama announced a new Precision Medicine Initiative to revolutionize how we treat and prevent disease. The role of the ePatient, and patient-centered design is more important than ever. This panel discussion will look at ways in which this initiative will change precision medicine, and how ePatients can make an impact. We will explore the following:: Why are concepts of equal access to data important? Why does every ePatient need to understand that access to our own genomic data should be our right? .
» Read More
Oral Presentation
Marty Tenenbaum
A cancer diagnosis changes life in an
instant. A patient and their family must make urgent life or death decisions with
no maps or reviews to guide them. The Web is full of disorganized, out of date
and contradictory information. Even physicians are often faced with conflicting
expert opinions and a shortage of actionable data buried within a tsunami of
research.
» Read More
Oral Presentation
Tina Pittman Wagers
Six months ago, I suffered a rare kind of heart attack,
called a Spontaneous Coronary Artery Dissection (SCAD) while swimming across a
lake in Idaho. No one was more surprised
than I was to find myself in the role of a heart patient, for I do not fit
anyone’s profile of one: I am fit, athletic, had just completed a sprint
triathlon two weeks before and have none of the typical cardiovascular disease
risk factors. Although the last 6 months
have sometimes been sad, confusing and scary, I am heartened (pun intended!) to
have made strides as an educated, engaged patient, an involved member of the SCAD
community and as a new researcher of SCAD patients’ psychosocial experiences of
this little-understood and often fatal heart condition.
The proposed presentation covers a bit of my personal experience,
lessons learned, emerging research interests and broader health care lessons. The structure of the presentation would flow
as follows:
My story
Here’s a link to an earlier piece I wrote about my SCAD: http://thesocietypages.org/girlwpen/2014/09/29/our-hearts-our-selves-our-research-agenda/
The use of social
media in gathering and disseminating information about lesser-known health
conditions
Social media is an increasingly important, though imperfect,
source of health information and support for patients, especially for
conditions that are unusual and where both the care and population are widely
and sparsely distributed. It is how I
started accessing much of the literature on SCADs and found the SCAD Alliance.
We will also be distributing our patient survey (discussed below) over social
media.
» Read More
Panel Discussions
Liza Bernstein, Meg Maley, Matt Dudley
What does a truly patient-centered, digital health startup company look like? How does such a company find an ePatient Advisor? Is it really possible to co-design with patients? This session will provide answers to those questions and more. An ePatient and a patient-centered app meet in the #MedX tweetstream, and the rest is co-design history: As is often the case these days, it all started with Twitter. At Medicine X 2014, Liza Bernstein's remarks in contribution to Ann Becker Schutte’s panel about mental health were tweeted by Rachel Crooks and seen by Jon Brilliant, Chief Financial Officer of CanSurround , a fledgling startup at the intersection of mental health, oncology and technology. “ @jabrilliant RT @rachelcrooks_ : Mental health looks invisible, but it’s not - mental and physical health are intertwined @itsthebunk #MedX 10:57 AM - 7 Sep 2014” Jon who was following Medicine X from the East Coast sent her a tweet: “ @jabrilliant @itsthebunk , I would like to share with what we are doing at http://www.CanSurround.com if you have some time.
» Read More
Workshop
Leslie Ruckman, Jakob Boije
We’ve all heard a lot about “patient engagement” but what value is it really providing to patients? Is it really about engagement when in the end, patients don’t care what you call it, they just want the ability to be more autonomous in their care?
Through our workshop we would like to explore the following questions/topic areas:
How can we design for autonomy- what does it look, feel, behave like? How do we find the balance between dependence and independence? What can we learn from those who are bending the system to achieve this now? What systems can be created to support them? What’s missing altogether? How can we speed the spread of best practices?
In this workshop we’ll work together with e-Patients who will co-facilitate this session to help us think and create around these topic areas.
Our e-Patient co-facilitators will kick-off the workshop ahead of time by asking their communities to give examples of where the healthcare system has failed to give them autonomy and workarounds they’ve used to have more autonomy. We’ll use these learnings to jumpstart the workshop then open up the floor to our participants to hear about personal experiences they’re willing to share. From this we’ll build a picture of the current landscape of challenges and opportunities to design for autonomy.
» Read More
Oral Presentation
Rebecca Stoeckle
With the implementation of
the ACA requirements for mental health parity, the increase in mental health,
trauma, and substance abuse diagnoses in a range of populations, and the
relative paucity of mental health clinicians trained to deliver evidence-based
therapies, the gap between demand and supply of mental health care has arguably
never been higher. This gap is
especially apparent among veterans, who face additional, sometimes
self-imposed, barriers to accessing mental
health care: the perception that mental health treatment is poorly aligned with
the Veteran’s needs and experiences, as well as logistical or psychological
challenges that arise between treatment sessions and foster attrition. The
urgent need for new approaches to effectively mitigate these barriers is driven
in part by the size of the population in need.
Approximately 1 in 4 Veterans
who receive care in VHA have a confirmed diagnosis of a mental disorder. [i]
After more than three years, 75% of OEF/OIF/OND Veterans with psychiatric
diagnoses had not engaged in minimally adequate mental health treatment in VHA.
E-tools for patient self-management are rapidly emerging, but have typically
been designed for empowered, techno-literate users and focus on wellness issues
such as diet and fitness. Fewer digital
self-management tools specifically designed for challenging populations and
difficult conditions have been tested. In light of these realities, EDC in
collaboration with Boston University and VA’s NCPTSD developed a novel,
veteran-centric digital tool, VetChange; a veteran-directed adaptation of an
evidence-based therapy for co-occurring PTSD and problem drinking. Vet Change extends and applies promising
approaches to patient self-management in a novel design, using the virtuous
cycle of “hook-actions-rewards-investment” [ii]
demonstrated in technology product development, and applying innovative
persuasive technology techniques to deliver triggers for behavior change when
motivation is high and the threshold for action is low.
» Read More
Practice Track
Oral Ignite! Talk
Jocelyn George, Caitlin Hubmaster, John Starr
Patients who are eager to participate in clinical research usually discover – far too late – that the demands of trial participation are surprisingly too great to bear. And so many decline. Solvers from the William Tennent – Lilly High School Challenge showcase their multimedia approach to help improve the understanding of trial participation in a meaningful, timely way.
Panel Discussions
Simon Mawer, Kim Pardini-Kiely
How might we use design thinking to advance patient safety? We’ve been on a journey exploring that question – from the creation of our Innovence Lab at TRA Stanford, to building an interdisciplinary team from across Stanford University and our adult and children’s hospitals and then using design thinking to tackle the thorny issue medication safety. In this session, we’ll share our journey, the innovative ideas that sprang to life along the way, our lessons learned and future directions.
Oral Presentation
Brandi Sinkfield
Digital health is an evolving term that is broadly used to describe the convergence of digital technologies with health, healthcare, and wellbeing1,2. Technologies used in digital health are unique and usually distinct from traditional hospital-based IT systems and include: wearable sensors, Internet of Things (IoT), telemedicine, mobile connectivity, social networking, and cloud-based computing systems which are leveraged in a manner designed to improve health. In this article, we attempt to make a case for digital health in the context of perioperative medicine. We propose a framework of four pillars of digital health that provide opportunities for innovation and improvement of perioperative medicine in the 21st century: 1) patient engagement, 2) behavior change, 3) prediction and prevention, 4) connection.
» Read More
Oral Presentation
Brian Loew
Brian Loew created Inspire with the goal of improving patient engagement through the creation of a trusted, health-focused social network. Today, Inspire's 85 health association partners and over 360,000 members provide fertile ground for medical research, patient insight and health advocacy. Brian believes that patient contributions to medical progress have been historically undervalued, and great progress may result from fully valuing contributions to medical research derived from the active involvement of patients.
Oral Ignite! Talk
Sarah Kugler, Robert Fredericks
All knowledge is some form
of information, however not all information is knowledge. It is important that
patients are equipped with the proper resources and tools in order to
distinguish between what is knowledge and what is information in making decisions
regarding their health care. Knowledge is defined as information utilized and
mobilized to produce a result. Information rather is defined as a collection of
data that in itself has no practical purpose until it is processed and
mobilized into a coherent language that can be utilized as a resource.
» Read More
Workshop
Bonnie Feldman
It’s still lonely in the world of autoimmune disease. Twenty years after the promising biologicals of the 1990s, we need big data to advance further. Despite $4B in digital health funding, autoimmune diseases have been wallflowers at the party. But we aren’t just standing around: the community is generating a digital pandemonium of self-help advice, especially dietary.
» Read More
Oral Presentation
Christopher Campbell
This presentation will pose a question that should be
simple but is not: who is using my healthcare information? In the first half we
will discuss the myriad ways healthcare data is being manipulated through
distribution, analysis and profiling outside of the healthcare profession and community,
much of it through mHealth, web applications, targeted advertising
and marketing. The second half will address security best practices on both
sides of the coin – the ePatients on one side and technology professionals on
the other. The intention is to discuss mitigating strategies that are unique to
each, and the transparency that is needed in order to better align the goals of
both sides: 1. The ePatients and consumers who need to ensure the integrity and
security of their own health and identity information, in order to guard
against medical record and identity theft. Specific strategies for safeguarding
one’s personal data will be presented, such as identifying social engineering
tactics and understanding how to lock down privacy controls in social media.
» Read More
Oral Presentation
Marjorie Stiegler
Adverse events happen in medicine, and their impact is felt not only by the patient and the patient’s loved ones, but also by the physicians and other medical team members caring for the patient. These medical professionals who suffer after-effects are called “second victims”. Patients who are cared for subsequently, while the team is still impacted by the earlier adverse events, may be subject to distracted care and medical errors, and have been called “third victims”. Savvy patients have begun asking about caregivers’ mental state. Patients often ask if we are well-rested, where we trained, if we have a lot of experience with procedures and other team members. And people intuitively know that death or near-death experiences (even when vicarious) are impactful, even for seasoned professionals. Do our patients have the right to decide whether or not they wish to be on the receiving end of our best efforts after a catastrophe? Do we have an obligation to inform patients? How can we deliver best care to our patients, and best support ourselves and our colleagues? Medicine is losing many excellent doctors and nurses, either due to career change or even suicide, as a result of this unspoken epidemic.
Oral Presentation
Felix Jackson
Introduction: The International Medical Corps
have sent Emergency Response teams to the outbreak of Ebola in Sierra Leone,
Liberia and Guinea. Their teams care for patients, operate Ebola treatment
centres and implement training programs. The returning volunteers can share their
real experiences at Stanford Medicine X to help other healthcare professionals
and businesses learn from this epidemic and be better prepared for the next
epidemic. In a “talk show” style round-table event the volunteers can give a
view point that is under represented by the media once the interest in an
epidemic passes.
» Read More
Oral Ignite! Talk
Felix Jackson
We
are setting up a GP advice service with Dr Jacques Mizan form Southwark CCG using
DefinitiveDx to share and discuss cases with specialists at Evelina Children’s
Hospital (with Dr Claire Lemer ), Imperial and Chelsea and
Westminster.
Both
the GPs and specialists want to reduce the number of unnecessary referrals from
primary to secondary care. GPs, like Jacques, are using DefinitiveDx to share cases and get specialist
advice so they can continue to manage patients in primary care. This is much
better for patients and reduces the healthcare costs.
» Read More
Poster Presentation
Kyan Safavi, Sounok Sen, Michael Lindsay
Background
In the U.S., one
in five patients is readmitted within 30 days of discharge resulting in more
than $41 billion in losses to Medicare annually.( 1) It is estimated
that over 836,000 patients each year are readmitted under “preventable”
circumstances with a potential savings of $17 billion.( 2) Moreover,
patients view readmission as a failure of the healthcare system.( 3)
The emergency department (ED) is at the forefront of this problem because it is
where decisions about readmissions and early, expensive testing are made, yet
it is often where the least information is available about the patient.( 4-6)
While several products have attempted to reduce readmissions with at-home
monitoring, a significant opportunity to reduce preventable readmissions exists
at the very moment the patient arrives at an ED. track ER , a mobile health solution,
is designed to intervene at
this moment to improve information exchange.
Aims
To reduce
preventable readmissions and redundant testing in the ED within 30 days of
discharge by catalyzing information exchange in real time from the previous
inpatient team that discharged the patient to the ED team actively caring for
the patient. The mobile technology has the ability to:
1.
» Read More
Oral Presentation
Ken Weingardt
Innovative mobile and web applications designed
to support evidence-based behavioral health practices are having a disruptive
influence on mental health service delivery systems around the world. These technologies
can provide a means of scaling up behavioral health services at the population
level by shifting tasks related to monitoring and tracking patient progress
from licensed providers to paraprofessionals, care managers or coaches. They
also have the potential to improve the efficiency of traditional clinician-delivered
services by automating some of the more routine aspects of psychotherapy, thereby
allowing therapists to achieve similar client outcomes with less hours of
direct client contact.
Although it is seldom cited by American companies
working in this space, much of the innovative research on the use of these
technologies to improve mental health services has been conducted in Europe and
Australia. For example, The Improving
Access to Psychological Therapies (IAPT) initiative in the UK National Health
Service has embraced the use of web applications as a first line intervention
for individuals with mild-to-moderate depression and anxiety. In the IAPT model “low-intensity workers” are
trained to support clients who are working through “Computerized Cognitive
Behavioral Therapy (CCBT) programs like Beating the Blues ( http://www.beatingtheblues.co.uk/ ) and
Fear Fighter ( http://www.fearfighter.com/ ). Similarly, Australian researchers have
demonstrated how clinicians, peer counselors, and even tech support personnel,
can play a critical role in facilitating engagement with, and deriving benefit
from, web and mobile mental health programs (e.g.
» Read More
Oral Presentation
Paul Grant
Healthcare professionals have discovered the immense value of public
social media for peer-to-peer networking, collaboration, and for sharing health
information and content on the Internet. Likewise, patients have found (and in some cases founded) communities
for sharing or learning about personal experiences with treatment, management
of disease, and living ‘well’. In recent years, technology developers have also contributed great advances
in the ability to diagnose or monitor individual health issues, through mobile
devices or other ‘smart’ sensors and applications. Yet for some communities, access to such ‘connected’ resources is
limited.
» Read More
Oral Presentation
Frank Lee
Prescription painkiller abuse is an
epidemic and a serious public health problem in the United States. In 2013, 16,235 drug overdose deaths were related to opioid
analgesics (1). For every drug
abuse death, there were 10 treatment admissions for abuse, 32 emergency
department visits, and 130 patients who abuse or are dependent on prescription
medications (2,3,4). The estimated
cost of prescription opioid abuse in the United States in 2007 was $55.7
billion, of which 46% was attributed to workplace costs, 45% to healthcare
costs, and 9% to criminal justice costs (5). Despite
new laws and guidelines to curve abuse, the continued growth of painkiller overdose
in part reflects the lucrative business of painkillers for the healthcare
industry. According to IMS Health,
in 2011, U.S.
sales of prescription painkillers amounted to $9 billion. In one “pill-mill” in Florida, a
physician had the potential to earn roughly $37,500 a week, or
$1.95 million a year by prescribing such painkillers indiscriminately (6). Between the pharmaceutical industry,
the opium fields in India and Turkey, and the thousands of pharmacies and
doctors offices, there is plenty of profit to be shared. United States holds 5% of the world
population, yet it consumes 80% of painkillers in the world. Physicians
are the current gatekeepers of painkiller prescriptions. Due to increasing abuse and pressure by
the Drug Enforcement Administration, a recent survey showed that nearly half of
the primary care physicians were less likely to prescribe painkillers today
compared to a year ago (7). Unfortunately, the major casualty of war against painkiller
abuse is the good patient with pain who can be difficult to discriminate from a
painkiller abuser.
» Read More
Oral Presentation
Aaron Sklar
Our healthcare system is
undergoing a major technology revolution. So many truly amazing innovations
are now available through this new technology. But if we are honest,
the impact on patients and doctors often falls FAR short of the promises being
made. The bottleneck is often the user experience of the digital tools being
offered—many of which inspire resentment, avoidance and at best,
indifference. The mantra underlying this
this talk is “Technology as the enabler; Design is the engager”.
» Read More
Oral Presentation
Michael Fratkin
An electrified conversation
is rising in our society about how we will care for each other as life
approaches completion. Rather than collectively continuing to avert our
gaze, we are turning our attention directly at the truth of our mortality
and beginning to address the human, social, and economic impact of our
fragmented and disease-directed healthcare system. The recent 2014 Institute of Medicine report, Dying in
America, is a wholesale call-to-action for more and better care for people
approaching death. Too often we provide inadequate support for quality of life,
generate a distressing patient experience, and low value: high cost healthcare
that can exploit people with serious illness rather than serve them. In rural America, this is magnified by
primary and specialty provider shortages, the burden of travel for patients,
and inadequacies in basic skills of symptom control and reality-based
communication about the truth of aging and the limitations of medical
technology. The cost is avoidable
suffering, loss of trust, provider burnout, and a mountain of wasted
money. As the approaching wave of
aging Americans brings the impact of their demographics, they also bring a new
sensibility and empowerment to decision-making. They want guidance, not guidelines.
The medical specialty of
Palliative Care brings person-centered care to people with serious illness by
attention to exquisite symptom control, effective communication and planning,
and shared decision-making with a disciplined focus on the quality of life
defined by that person and their family.
This teamwork is interdisciplinary, time intensive, and poorly
compensated in the fee-for-service system.
» Read More
Oral Presentation
Daniel Hommes, Adriana Centeno, Welmoed van Deen, Natalie Duran, Alberto Montilla
What to do about the "Three Trillion Dollar"
health care crisis? Today, over 70% is spent on management of chronic diseases
and the number is growing. The Affordable Care Act finds its stakeholders
unprepared: Patients see their premiums and co-pays rise; Providers have
difficulties shifting from Fee-for-Services to Quality Payments; and Payers are
pressured to enter ACO’s but only few have been successful so far. Pure
capitation looms which will accelerate further the downward spiral of quality
of care without really solving the problem. In 2012, a small group of UCLA providers pioneered a brand
new approach for chronic disease management: Value-Based Health Care.
» Read More
Oral Presentation
Bob Messerschmidt
There is a coming revolution in medicine! Perhaps you have heard
about it? It's all over the news. In reality, ’revolution' might be the
wrong word for what’s coming. Maybe something more
like 'systematic improvement through technical advancements, clinical validation, and data-driven
diagnosis.’ But that does not flow
off the tongue quite as easily.
It’s wrong to think of this as a revolution for several
reasons. For one thing, medicine is a
slow moving beast, and revolutions are fast.
We should not expect fast changes.
For another, the romantic idea of a revolution must have a bad guy, an
old regime, an antagonist just holding things back. But here there is no
villain. For the most part our
field is filled with good intentions.
There are certainly many important changes afoot. History will show that
one of the most important changes is the drive toward actionable data-driven
medicine. The need is undeniable. In the future, your health
care provider will be less well trained, younger, less experienced. She will be less likely
to have the wisdom of the ages, that ability to diagnose you and treat you,
almost instinctively. This model no longer
works, if it ever did. Intuition is great,
except when it isn't . Health care consumers
will no longer accept a system where life itself can depend on whether you had access to a top
doctor.
In the future, there will be no magazine issues with glossy
photos proclaiming your city's "top doctors." There will be no need. In the future, everybody
will have access to a data-driven diagnosis and treatment plan, because the
data will speak the truth.
And where will this data come from? From you of course. Mostly from your
molecules. Sometimes from your DNA,
but most importantly from your blood. Blood has always been
the gold standard for diagnosis, and that will not change. But the answers will
become more immediate, more complete, and more actionable. Answers will need to
arrive at the point of care, right along with vital signs and equally fast. The price for these
answers will be a simple finger stick followed by rapid spectroscopic chemical
analysis.
» Read More
Oral Presentation
Robert Wachter
In 2013, a 16-year-old patient at UCSF was given 39 Septra (a common antibiotic) tablets, instead of the one he should have received. He suffered a grand mal seizure and spent 10 days in the intensive care unit as a result. This error is all the more remarkable because it occurred in one of America's top hospitals, despite – check that, because of – state of the art computerized order entry and bar coding systems. The error is described in my new book, "The Digital Doctor: Hope, Hype, and Harm at the Dawn of Medicine's Computer Age," which will be published in April and has already had pre-launch sales of approximately 10,000 books. In the presentation, I will describe this remarkable case and how problems such as alert fatigue, poor user interfaces, and overtrust in technology open up the opportunities for new kinds of harm.
» Read More
Oral Presentation
Joan Saba
Research shows that the
design of hospitals can have a positive or negative effect on patient
satisfaction, recovery times, readmission rates, staff productivity and family
comfort. As the healthcare industry prepares to spend $200 billion on
healthcare facilities between now and 2020, architect Joan Saba argues
designers and their clients should take a balanced approach in the creation of
new facilities, one that values aesthetics and LEAN processes without wasting
precious resources on superficial elements. Using case studies of hospital
designs for Massachusetts General Hospital in Boston and Seattle Children’s
Hospital in Washington State – plus research into how big data, robotics and
the rapid pace of technological innovation effects healthcare and hospital
design – Ms. Saba will outline five design strategies hospitals should
implement to ensure their environments support performance, healing, comfort
and experience.
» Read More
Workshop
Sara Riggare, Maria Hagglund, Eva Helmersson, Ola Cornelius, Nina Sellberg, Johan Eltes
Sweden is known around the world for IKEA, the Nobel Prize and social welfare. The Swedish government has taken a clear position in the area of e-health and the future of connected healthcare. In this workshop we will present a number of ongoing Swedish projects and initiatives with one common goal: enabling patients and citizens to take a more active role in managing their own health. The aim is to optimize patient work, particularly in care processes relating to chronical diseases.
» Read More
Poster Presentation
Xiaolong Li, Jonathan Sills
Background: Many older adults age unsuccessfully and develop conditions
such as depression which may exacerbate the effects of normal aging or dementia. In addition, neurological and physical limitations
deprive increasing numbers of older adults of functional independence which
necessitates extended care services. These
individuals may benefit from Reminiscence Therapy, that consists of a semistructured
review of past activities, events and experiences of personal significance
aided by videos, pictures or music, and has been shown to aid psychological
well-being. Furthermore, if these
individuals are trained to use the many technological tools available to help
manage the effects of debilitating chronic conditions, they may be able to
sustain more years of independent living in their community. The purpose of our pilot case study was to
examine the feasibility of a learning procedure using Adobe Voice © digital
storytelling software on the iPad to help facilitate reminiscence and promote
better technological aptitude and utilization for an older adult. Pilot Procedure: We piloted our procedure on a WWII veteran in his 90’s who had
no prior experience with computers and conducted two 90 minute sessions with
the veteran. We first trained the participant on how to interact with an iPad
(pre-loaded with free Adobe Voice digital storytelling software) using a
standard touchscreen interface. We then guided the participant on use of the
software to create meaning-making narratives with recordings of his own
voice. Music and Creative Commons
license-free graphics and photographs are used to enhance the reminiscence and
narratives.
» Read More
Panel Discussions
Rishi Bhalerao, David Blaser
Background Idiopathic pulmonary fibrosis
(IPF) is a progressive and debilitating pulmonary disease with a median survival
of three to five years. PatientsLikeMe (PLM) is an online, patient-powered
research network with a community over 3500 patients with IPF. PLM allows
patients to share structured (conditions, symptoms, treatments) and
unstructured (community forums, qualitative reports) data with other patients
and researchers to accelerate research. The objective of this pilot program was to understand the’
willingness to use wearable devices and usage patterns, specifically activity
monitors and pulse oximeters, as part of disease self-monitoring within a
subset of patients with IPF in the PLM community.
» Read More
Oral Presentation
Steve Tierney
In partnership with
the Alaska Native people, Southcentral Foundation (SCF) developed the
customer-owned and -managed, relationship-based Nuka System of Care and
transformed its health care delivery system into an integrated customer-centric
model. The success of this approach is largely due to the co-located,
multidisciplinary integrated care teams, which consist of the primary care
provider, the case manager, the certified medical assistant, and the case
management support. This efficient, collaborative unit functions in
approximately 3 feet of modular space, elbow-to-elbow, in constant
communication around the electronic health record. Other disciplines, shared
across several pediatric/primary care teams, are seamlessly woven into the
teams such as behavioral health consultants, dieticians, the pharmacists, and,
midwives.
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Oral Presentation
Marc Katz, Teresa Pendleton
Following lessons learned from attending Medicine X and the IDEO challenge the CoPilot project was born. Patient and provider representatives from three healthcare systems (Johns Hopkins, Sibley Hospital and Bon Secours) convened in the nations capitol to develop collaborative plans for improving the patient experience. We will present the Bon Secours system experience. Our team consists of 3 patients, chosen to represent different age groups and healthcare experiences; 4 nurses from different levels of patient care and one physician.
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Poster Presentation
Jacob Schaff, Charles Hill, Larry Chu
Introduction: Cardiopulmonary
bypass (CPB) involves transferring over the functions of the heart and lungs from
the patient to a bypass machine that is managed by a specialist – the
perfusionist. This allows the surgeons
to operate on the heart in many ways that would have been impossible otherwise. Once the operation is complete, the work is
transferred from the machine back to the heart and lungs of the patient – this requires
that the anesthesiologist, perfusionist, and surgeon communicate efficiently
and effectively.
The Targeted Problem: Cardiothoracic
anesthesia is challenging and exciting, particularly for first rotation
anesthesiology residents. While it
varies somewhat from institution to institution, the cardiac operating rooms introduce
new medications, workflows, and members of the OR team. There is a dynamic that exists between a
seasoned anesthesiologist, perfusionist, and surgeon that is like a well-oiled
machine. As a result, this often leaves
the anesthesiology resident quite confused at best.
Current anesthesia
textbooks often provide some information about CPB, hidden amongst chunks of
text within a broad chapter on anesthesia for cardiac surgery that approaches
100 pages. As this is usually the first
real-life exposure to CPB, anesthesiology residents often lack an understanding
of the overall process of CPB, making assimilation of this knowledge difficult.
The Proposed Solution: Many different learning modalities were reviewed and assessed for the optimal
platform to present this material.
Ultimately, the iBooks / iBooks Author platform was chosen for several
reasons. Foremost, it provides an
interactive tool that allows learners to engage learning. It also allows residents nationwide access to
the modules via an individual file on a protected server or the iBooks store.
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Oral Presentation
Katherine Stephenson
While almost any clinician or engineer can recall a case
study in the last five years that highlights a remarkable application of
additive manufacturing to a medical challenge, far fewer would be able to
accurately discuss how and how soon such technology would be translated into
the standard of care. This is because the technology has reached a pivotal point
in its development. Thus far, the efforts to advance medical 3d printing have
focused on the highly technical challenges of imaging conversion, fabrication
techniques and biocompatible materials. While challenging and expensive, highly
skilled multidisciplinary teams have achieved remarkable results with the
technology.
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Oral Ignite! Talk
Gina Neff
The concept of disruption has become something of a mantra
within data-driven health innovation. Eric Topol refers to technology’s ability
to drive the the “creative destruction” of medicine (2012) and to social media as
turning “medicine upside down” (2015). Clayton Christensen and his co-authors
have used disruption to talk about an “innovator’s prescription” for medicine
(2008). Disruption itself has itself
become a powerful way that Silicon Valley talks about the capacity of
technology to change the social forces that slow industry growth or hinder
innovation. From Techcrunch’s “Disrupt”
conference to medical school-sponsored hackathons, health innovators are
adopting disrupt as word to describe
the change they seek.
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Oral Presentation
Adam Connor
As we work to improve healthcare experiences, services, devices and more, most of us do so as members of teams and organizations. As such, in order to be productive and execute on the innovative ideas we have, we must collaborate with others. This collaboration requires us to share our work; to communicate our ideas with one another and to collect other’s thoughts in order to know whether our creations are meeting the objectives we seek. But often we wrestle with collecting this feedback. We get comments that are less than helpful because they seem irrelevant or unclear.
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Oral Ignite! Talk
Richard Capps, Carrie Bush
One of the
most critical aspects to delivering remarkable care comes through engaging
patients with their needs and preferences. Novant Health has been successful in
encouraging its patients to become more engaged in their health care through
several of the most innovative, affordable and convenient options available.
During this presentation, presenters from Novant Health will discuss a unique,
but effective, strategic approach for building an online patient experience
around the patient instead of around the patient portal technology.
Furthermore, presenters will also outline how a patient-centered strategy
instead of technology-centered engagement strategy helps build the foundation
for provider engagement—a vital component to empowering connectivity and
authentic relationships. Further discussion will look at the
speakers' perspectives, as two practicing providers, on the importance of focusing
on innovation to keep patients interested in new features. The health care
industry has traditionally been a laggard in regards to technology adoption and
typically only pilots new technology instead of implementing it.
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Oral Presentation
Mette Dyhrberg
Increasingly, the challenges for health care in the 21st century are health concerns that escape the identification of single causes known from the big epidemics of the past. Modern day conditions come from interplay over time of e.g. behavior, mental states, lifestyle, social context, environment, genetic predisposition with causes and effects often removed in time and location. To paraphrase Tolstoy: “All healthy people are alike; each unhealthy person is unhealthy in each their own way.” Unfortunately, current health care practice lacks the incentives, resources, methods, and tools for dealing effectively with these kinds of complex, individual conditions.
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Technology Hub Pavilion
Garrett Locketz
Today, surgical simulation exists as a valuable tool for
surgical training and task rehearsal by reducing the need for cadaver
specimens, allowing trainees to receive structured performance assessment, and
facilitating repetitive deliberate practice. Nevertheless, simulation platforms
are inherently limited by the number of programmed and designed cases/scenarios
available for practice, and the anatomy within the virtual environment will
invariably differ from that which is subsequently encountered in the operating
room. To address these limitations, we have developed CardinalSim – a validated
patient-specific virtual surgical rehearsal platform capable of rendering a
patient’s preoperative imaging data into a 3-dimensional virtual model upon
which a procedure can be rehearsed prior to the actual operation. In its
current form, CardinalSim allows a surgeon to explore a particular patient’s
anatomy quickly and efficiently in a surgically meaningful manner using a
haptic interface, providing valuable insights into the anatomic and physical complexities
expected at the time of actual surgery.
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Oral Presentation
Naranbaatar Dashdorj, Naranjargal Dashdorj
Defined as the MISSION 2020, the main objectives of the Hepatitis Prevention, Control, and Elimination (HPCE) Program in Mongolia are straightforward yet very ambitious:
:
To eliminate cancer-causing hepatitis C virus in Mongolia by 2020 .
To reduce mortalities related to liver cirrhosis and liver cancer by 50% in Mongolia by 2020 .
Prevention, early diagnosis and treatment of infected patients are three pillars of infectious disease control. Viral hepatitis is not only an infectious disease, but also it is the main cause of deadly liver cirrhosis and liver cancer.
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Poster Presentation
Steven Lindley, Dan Wang
Background : Systematically collecting and recording
treatment intervention, outcome, and side effect data and using this data to
inform mental health treatment decisions – also known as measurement-based care
- is essential to excellent patient care. Routine recording and tracking of
mental health treatments and their outcomes into the electronic medical record
(EMR) improves outcomes for individual patients, improves overall quality of
care, and significantly enhances efficacy and implementation research efforts.
But measure-based care is difficult to achieve without the right tools to
assist providers in this task. Tools in use in many medical systems are not
routinely used by providers because they are time consuming to use, impede
workflow, and do not collect data that providers and patients find clinically
useful. Many tools are developed with insufficient
input from provider and patient stakeholder at all stages of the software
development process.
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Oral Presentation
Bahar Hashemi, Lawrence Housel, Steve Sosebee
During the 2014 War in Gaza, called “Operation Pillars of
Defense” in Israel, the Palestine Children’s Relief Fund (PCRF) mobilized
efforts to address the expanding mental health needs of the children affected
by the six-weeks of violence. As an initial step, the PCRF felt it
was necessary to conduct a needs assessment to determine the nature of
psychological symptoms impacting Gazan children exposed to the war. With
the use of innovative technology, five PCRF social workers were trained to
obtain data from 1072 children living in Gaza during the war, looking at both
traumatic event exposure and mental health symptoms. This data was
acquired as a first pass to launch a clinical intervention program within the
organization with a goal of increasing mental health treatment for children
suffering from intense trauma symptoms as a result of the war.
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Oral Ignite! Talk
Priya Jayachandran
Recent months have seen substantial advances in
techniques for computer vision and image recognition. From Google
demonstrations on YouTube videos to Baidu’s Deep Mind project, the machine
learning technique known as “deep learning” has suddenly made it possible for
computers to achieve image recognition accuracies far beyond prior
capabilities. Indeed, Microsoft researchers in February published a paper
reporting an error rate of just 4.94% on the popular ImageNet image set—this is
below the estimated human error rate of 5.1%. In this talk, I share how we and others are
applying many of the same computational advances towards medical imaging, the
challenges of doing so, and the rewards of success.
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