Plenary HallPart 2: The interconnected lives of patients and doctors
Plenary HallPart 2: The interconnected lives of patients and doctors
CEO/Chairman & Founder, FMD Chat
CEO, Smart Patients
Bon Secours Health System
Among the questions and topics being examined during this session are: What are the things patients are doing online that build social capital and connect them with others? How do patients connect with... Read more
Among the questions and topics being examined during this session are: What are the things patients are doing online that build social capital and connect them with others? How do patients connect with other patients online to form networks of micro-experts? How can doctors communicate and work together to advance the care of their patients? How can doctors and patients connect with each other online? What are the lessons that can be learned from success and failure?
AfternoonNapper blogs as a health advocate fostering the patient voice in medicine. Special interests include the patient experience in healthcare settings, the doctor-patient relationship, the patient-caregiver relationship, chronic illness, health literacy, advance planning and end-of-life issues. She is CEO/Chairman and Founder of FMD Chat, a nonprofit organization supporting those around the world affected by a rare vascular disease. As FMD Chat’s leader, she oversees the organization's consistent achievement of its mission and financial objectives; fundraising; publicity and media relations; domestic and international partnerships; volunteer recruitment and development. She also serves on the ePatient Advisory Board (2012, 2013) for Stanford University's Medicine X conference.
Speaking engagements have focused on the role ePatients are playing in healthcare at the Doctors 2.0 & You healthcare and social media conference in Paris, France; and to med school students at both Stanford and UC Irvine regarding the ePatient experience. Additional conference participation includes HealthCamp DC; Partnership With Patients; HealthCamp Kansas City; ScienceOnline 2013, and Rare Disease Day at the National Institutes of Health. Her work has been recognized with Health Advocate Award nominations from Wego Health, state newspaper and international blog write ups, a Rare Disease Legislative Advocates scholarship to participate in Congressional lobbying on behalf of the rare disease community, and a scholarship to Medicine 2.0 at Stanford University.
Individually she is a member of the Society for Participatory Medicine, National Organization for Rare Disorders, Rare Disease UK, Cleveland Clinic Patient Advisory Panel, and Regina Holliday's Walking Gallery of Healthcare. FMD Chat is a partner organization of the N.C. Center for Nonprofits, Global Genes, EURORDIS, and Rare Disease UK.
AfternoonNapper's day-job is as an award-winning writer and editor of a nationally-published, regional lifestyle magazine covering Western North Carolina, East Tennessee, North Georgia, and Southwest Virginia. She is responsible for the magazine's overall editorial concept and content in addition to business operations including freelancer relations, marketing, sponsorships, and social media.
As her moniker would imply, AfternoonNapper enjoys ruminating from a prone position and napping—mostly in the afternoon, but any time will do.
Dr. Roni Zeiger is the former Chief Health Strategist at Google where he led efforts ranging from Google Flu Trends to Symptom Search. He is now CEO of Smart Patients, which aims to leverage the knowledge of expert patients in order to accelerate the era of precision medicine. Roni continues to see patients part-time at a local urgent care center. He earned his MD at Stanford and completed his internal medicine residency at the University of California, San Francisco. He has served as a Clinical Instructor of Medicine at Stanford University School of Medicine, and also received a masters degree in biomedical informatics from Stanford. Roni co-founded the blog Seduce Health, and writes for ABCNews.com and The Huffington Post. He has written and edited several medical textbooks and has published articles on topics including continuing medical education, clinical decision support tools, and searching for health information on the web.
Dr. Marc Katz received his combined M.D., M.P.H. from Tulane University School of Medicine in 1981. He completed his internship and Residency in General Surgery at the Medical College of Virginia, then a Fellowship in Cardiothoracic surgery under Dr. Richard Lower (co pioneer of heart transplantation with Norman Shumway). An additional fellowship in pediatric cardiac surgery was next completed at Boston Children’s Hospital. He served as Chief of Cardiothoracic transplantation at the Medical College of Virginia, and subsequently founded the Virginia Transplant Center in Richmond, Virginia. During his career in adult cardiac surgery he performed the first combined Heart-Kidney transplant in the eastern US, the first left ventricular assist device in Virginia, and has been a pioneer in minimally invasive and robotic heart surgery. Dr. Katz currently serves as Chief Medical Officer of the Bon Secours Heart & Vascular Institute, which spans 7 hospitals in central and eastern Virginia and involves more than 50 cardiac physicians. He continues an active practice in adult cardiac surgery specializing in minimally invasive and robotic approaches, plus surgery for congestive heart failure and placement of ventricular assist devices.
In 2012, I became a patient guide for Novartis to share my experiences as a patient living and managing Multiple Sclerosis. As patient guide, I have completed over a dozen live speaking engagements, from Pennsylvania to North Carolina. Becoming an ePatient was crucial; I am creating a medium to have meaningful interactions with patients, caregivers, and the general public.
I decided to post my journey and life lessons learned about living and managing MS from an empowered perspective. I started tweeting about my travels, using Facebook to update my friends about the work that I have been doing as well as using Linked In to help me bring awareness to MS. I have made wonderful connections with other people living with MS via Twitter and Facebook that I frequently have conversations around potential treatments, diet, exercise and the like. I am currently working on my own website that is soon to be public to increase awareness and track my MS journey.
I believe that the future of healthcare will be a virtual experience first and then become personal. As a presenter, I strongly advocate to patients that they need to be part of their own healthcare conversation. My hope is that by attending Medicine X, I will be exposed to other like-minded individuals who are interested in and actively moving the needle forward in the utilization and value of patients as experts in their own healthcare. I hope to make great connections with other like-minded individuals, as well as learn best practices and innovative ways to continue the dialogue with patients.
Rajiv Mehta is founder and CEO of Unfrazzle. Rajiv’s work focuses on empowering people to better understand and manage their family’s health. He is also a co-organizer of the Quantified Self, a global movement of people using and creating tools for self-tracking and self-learning; a board member of the Family Caregiver Alliance, a leading advocacy and support non-profit; and leads the strategy consultancy Bhageera Inc that helps firms evaluate and commercialize radical innovation. Rajiv has led disruptive technologies and new business creation for Adobe, Apple, Interval Research, NASA, Symbol Technologies and several startups. He studied at Princeton, Stanford and Columbia.