Emily Kramer-Golinkoff
Co-Founder, Emily's Entourage

About Me

Emily Kramer-Golinkoff wears many hats. She’s co-founder of Emily's Entourage, a nonprofit organization that raises funds and awareness to cure Cystic Fibrosis; she works in healthcare marketing at an academic medical center; and she is an active ePatient with advanced stage Cystic Fibrosis.

In 2011, Emily was named AbbVie’s Thriving Graduate Scholar and awarded a $19,000 scholarship. This spring, she served on the Communications Task Force of the Cystic Fibrosis Foundation’s strategic planning process.

Emily recently earned a master’s degree in bioethics and a certification in clinical ethics mediation from the University of Pennsylvania, where she also received her undergraduate degree.

At Medicine X 2015

Saturday, September 28 11:35 am (LK 130)
An ePatient manifesto: prescribing participatory medicine to improve health care
Drawing on my experience as an ePatient with advanced Cystic Fibrosis (CF), I examine the moral, social, political and economic justifications for a widespread shift to participatory medicine in health... Read more
Saturday, September 28 4:05 pm (Plenary Hall)
The Networked Patient: A Collaborative Approach to Resuscitating Healthcare
In an ignite talk, the participant is given five minutes to speak about their ideas and personal or professional passions, to "ignite" the audience on a subject, i.e. to generate awareness and to stimulate... Read more
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