12:50 - 1:10 pmSaturday, September 6
LK 102
Patient driven, patient centered care: Examining engagement within a health community based on Twitter
LK 102
Patient driven, patient centered care: Examining engagement within a health community based on Twitter
PhD Candidate, Brandeis University
Patient Driven, Patient Centered Care: Examining Engagement within a Health Community Based on TwitterBackgroundHealth is a series of everyday choices and experiences that may or may not involve a formal... Read more

Description

Patient Driven, Patient Centered Care: Examining Engagement within a Health Community Based on Twitter

Background

Health is a series of everyday choices and experiences that may or may not involve a formal health care system, and being engaged in one’s own health can profoundly affect health care utilization, costs and outcomes. While a great deal of literature exists regarding the intersection of social media and health as well as the importance of patient activation, there are to date no studies specifically investigating the use of a public social network as a means of influencing patient activation. Additionally, while previous work has examined discussion of health conditions on Twitter, little research to date focuses in depth on a specific community. This research seeks to attend to these gaps.

Objective

The aim of this study is to explore a novel online health community, Breast Cancer Social Media (BCSM), and assesses the role of BCSM in influencing patient activation – meaning a person’s ability, confidence, and willingness to take on the role of managing their health.

Methods

Data collection will use a blended approach combining (1) an online ethnographic framework known as netnography to capture and analyze online interactions with (2) semi-structured individual interviews to get deeper contextual meaning and to administer The Patient Activation Measure (PAM-13), a validated survey tool assessing patient activation. Data collected online include a minimum of three months’ tweets tagged #bcsm, extracted and stored using TweetArchivist. A total of 30-50 BCSM community members will be solicited, via invite tweets to #bcsm, to be interviewed at two points in time via phone, approximately three months apart. All data will be joined within NVivo for thematic analysis through a combination of a priori and emergent coding about the role of social media, the level of patient engagement, and the interaction of these two broad themes.

Results

Research is in progress. Data collection is scheduled to complete in September 2014, with preliminary analysis and findings available during this period.

Conclusions

Results from this research will inform the types of information and support that is provided and desired, and will be valuable in considering the ways in which patients, caregivers, and others are encouraged to participate. If this type of forum positively influences health outcomes by providing an additional, rich channel for social support and information exchange, further consideration as a complement to current treatment regimens is warranted.

Jodi Sperber, MSW, MPH, has been involved in public health research, communications, policy, and program development for over fifteen years. Her areas of technical expertise include curriculum development, writing, survey instrument design, qualitative research methodology and analysis, and the strategic creation and management of social media channels. In addition to more traditional research and evaluation roles, she helps to develop and create written content for digital communications (social media channels, websites, and the mobile web) as well as eLearning modules. Recent projects include development of a CDC-funded interactive mobile app for Android and iOS focused on HIV medication adherence, content development for a social media toolkit for the National Minority AIDS Council entitled, “HIV Prevention Goes Social: Using Social Media to Create, Connect, and Come Together” and creation of a web-based training module aimed at clinical providers and community partners to encourage HIV medication adherence. 

Contact Us

We're not around right now. But you can send us an email and we'll get back to you, asap.

Not readable? Change text. captcha txt

Start typing and press Enter to search