4:40 - 5:00 pmSaturday, September 6
LK 130
Reducing barriers to patient engagement
LK 130
Reducing barriers to patient engagement
COO CareSync, Board Member Cure JM, Mom of Morgan
Most epatients I have met started with a frustrating experience with healthcare. They were inspired to do something to make the system better.When patients aren't engaged, there are many problems that... Read more


Most epatients I have met started with a frustrating experience with healthcare. They were inspired to do something to make the system better.When patients aren't engaged, there are many problems that happen.

When patients are not engaged, there are significant issues that arise in care.
1. Lower patient activation measure scores have higher costs per capita from the Patient Activation Measure (PAM) study - Health Affairs Feb 2013
2. 32% of tests ordered are unnecessary duplicates because the results are not easily available at that moment. 
3. When patients report their medications in the ER by memory, it is incomplete or incorrect 39% of the time. 
4. 70-80% of diagnoses can be made by listening to the patient's story without ordering a single test, and tests have costs and risks.
5. 60-80% of what patients are told at a visit is forgotten or remembered incorrectly within 3 days.

Many epatients have found their own solutions and have much better results. However, as we try to get more and more people engaged in their health, I believe there are four main barriers to getting more patients to be engaged. If we can solve these barriers, we can get more of the patient population to become more active participants in their care and begin changing the health system in more dramatic ways.

The barriers to patient engagement are:
1. Access to their information. Patients need access to ALL of their health information without requiring expensive payments per page, multiple logins to different portals, or having to go in person to sign a request on a specific form. This process to get information is currently difficult for the average patient to navigate.
2. Information that is meaningful. If the access is provided but the information isn't provided in a meaningful way, the average patient cannot use that information to his or her benefit. For example, if you get all of your lab results for 10 years on paper lab reports, it isn't as meaningful as if it is already graphed to show you the trends of that information. Currently, it is very difficult for your average patient to take the information that they can get and make it meaningful.
3. Communication. It is rather difficult to communicate with health providers today. We need to make it much easier for patients and their caregivers to communicate their needs, successes, failures, values, and goals. Depending on the patient, they have communication styles and preferences, and the health system should match those communication styles and provide easy access for the patients and their families to communicate.
4. Collaboration.As patients and their caregivers go through their journey in healthcare, collaborating with their family care team and with other patients who are going through the same struggles can improve the experience, adherence, and treatment opportunities. 

With access, meaningful information, improved communication, and enhanced collaboration, the healthcare experience can drastically improve and the outcomes can result in healthier patients and lower costs.

Amy Gleason began her career in nursing and quickly found that she loved technology. She went from the emergency room to a start up EMR company where she learned how much technology can make healthcare better. Amy spent over 15 years  implementing and building Electronic Medical Record and Practice Management applications at small companies as well as Misys Helathcare, Eclipsys, and Allscripts, where she lead Product Management and Development teams for physician office, laboratory, radiology, and medical records management solutions.

In June 2010, her daughter was diagnosed with a rare autoimmune disorder, which opened her eyes to a whole new set of challenges in the healthcare system.  As a caregiver, she had a new role to play in keeping her daughter's care organized, efficient, and effective. At CareSync, Amy draws upon this experience as a caregiver to create solutions that help patients and their families. 

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