10:35 - 11:30 amFriday, September 5
Plenary Hall
Part 2: The New Pharma
Plenary Hall
Part 2: The New Pharma
ePatient Scholar, MS Advocate
Executive Director, Organized Customer Collaborations, Boehringer Ingelheim Pharmaceuticals, Inc.
Pharm.D., Associate Professor, College of Pharmacy, Lipscomb University
ePatient Scholar
Senior Advisor in Clinical Development Innovation, Eli Lilly
ePatient Scholar; CEO/Chairman & Founder, FMD Chat
Leaders in the pharmaceutical industry are turning to their end users—patients—to gain valuable insights during the drug and device development process. How can patients work with Pharma to discover... Read more

Description

Leaders in the pharmaceutical industry are turning to their end users—patients—to gain valuable insights during the drug and device development process. How can patients work with Pharma to discover innovative health care solutions that provide maximum benefits with minimal side effects? What are the best methods of encouraging and soliciting input from patients throughout the development process? What are  some of the unique ways in which partnerships between patients and industry leaders have led to surprising and effective new treatments? We'll explore these questions and many more during this panel discussion on the future of the pharmaceutical industry.

More speakers to be announced.

Jamia Crockett became a patient guide for Novartis in 2012 to share her experiences as a patient living and managing Multiple Sclerosis. As a patient guide, she has completed over a dozen live speaking engagements, from Pennsylvania to North Carolina. Becoming an ePatient was crucial; she is creating a medium to have meaningful interactions with patients, caregivers, and the general public.

She decided to post her journey and life lessons learned about living and managing MS from an empowered perspective. She started tweeting about her travels, using Facebook to update her friends about the work that she has been doing as well as using Linked In to help her bring awareness to MS. She has made wonderful connections with other people living with MS via Twitter and Facebook, and she frequently has conversations about potential treatments, diet, exercise and similar topics. She is currently working on her own website to increase awareness and track her MS journey.

She believes that the future of healthcare will be a virtual experience first and then become personal. As a presenter, she strongly advocates to patients that they need to be part of their own healthcare conversation. Her hope is that by attending Medicine X, she will be exposed to other like-minded individuals who are actively moving the needle forward in the utilization and value of patients as experts in their own healthcare. She hopes to make great connections with other like-minded individuals, as well as learn best practices and innovative ways to continue the dialogue with patients.

Ruchin Kansal is the Executive Director, Organized Customer Collaborations at Boehringer Ingelheim Pharmaceuticals, Inc. In this role, he is working on achieving the objective of improving lives of patients and their families through strategic collaborations with large US payers and providers. Such collaborations are focused on driving product innovation, clinical trial innovation, care innovation grounded in collaborative real world evidence generation, and provider and patient engagement innovation utilizing traditional and digital health technologies.

Mr. Kansal has global experience as an executive, strategic advisor and an entrepreneur in biopharmaceutical and medical devices industry. Prior to Boehringer Ingelheim, he held leadership roles at Campbell Alliance, Deloitte Consulting and Cap Gemini Ernst & Young. He holds an undergraduate degree in Architecture from Indian Institute of Technology (IIT), Roorkee and MBA from NYU-Stern.

Kevin A. Clauson, Pharm.D., is an Associate Professor at Lipscomb University College of Pharmacy in Nashville, TN. He previously served as Associate Professor at Nova Southeastern University and as the Founding Director of the Center for Consumer Health Informatics Research, which was the first of its kind designated as a World Health Organization Collaborating Center. Dr. Clauson received his Doctor of Pharmacy from the University of Tennessee – Memphis and completed a Research Fellowship at the University of Missouri – Kansas City.

Dr. Clauson has published numerous articles in peer-reviewed journals as well as abstracts, proceedings and book chapters; most recently serving as an editor for Get the Residency: ASHP’s Guide to Residency Interviews and Preparation. He has presented nationally and internationally on the topics of consumer health informatics, social media in healthcare, and mobile health (mHealth). His research has generated coverage by sources including the New York Times, CBS-TV, Forbes.com, Good Housekeeping, Forskning & Framsteg, and BBC Radio.

Dr. Clauson has consulted for organizations including the World Health Organization, Global Observatory for eHealth, held Advisory Board positions for Stanford Medicine X and Medicine 2.0 @ Harvard, and served as a reviewer for the Centers for Disease Control and Prevention (CDC) National Center for Public Health Informatics, Canada Foundation for Innovation, and the Patient-Centered Outcomes Research Institute (PCORI). He has similarly served his profession in capacities including as an Item Writer for the North American Pharmacist Licensure Examination (NAPLEX) and as a reviewer and editorial board member for pharmacy and informatics journals. His current research includes mHealth initiatives such as the use of bidirectional text message reminders to improve medication adherence in patients with type 2 diabetes.

Joseph Kim is a Senior Advisor in Clinical Development Innovation at Eli Lilly, working to radically change how they engage patients in research. In 2013, CenterWatch recognized him as one of “20 Innovators Changing the Face of the Clinical Trials Industry." He holds a B.S. in Molecular Biology, a Masters in Secondary Education and an MBA.

Sarah Kucharski, or AfternoonNapper, blogs as a health advocate fostering the patient voice in medicine. Special interests include the patient experience in healthcare settings, the doctor-patient relationship, the patient-caregiver relationship, chronic illness, health literacy, advance planning and end-of-life issues. She is CEO/Chairman and Founder of FMD Chat, a nonprofit organization supporting those around the world affected by a rare vascular disease. As FMD Chat’s leader, she oversees the organization's consistent achievement of its mission and financial objectives; fundraising; publicity and media relations; domestic and international partnerships; volunteer recruitment and development. She also serves on the ePatient Advisory Board (2012, 2013) for Stanford University's Medicine X conference.

Speaking engagements have focused on the role ePatients are playing in healthcare at the Doctors 2.0 & You healthcare and social media conference in Paris, France; and to med school students at both Stanford and UC Irvine regarding the ePatient experience. Additional conference participation includes HealthCamp DC; Partnership With Patients; HealthCamp Kansas City; ScienceOnline 2013, and Rare Disease Day at the National Institutes of Health. Her work has been recognized with Health Advocate Award nominations from Wego Health, state newspaper and international blog write ups, a Rare Disease Legislative Advocates scholarship to participate in Congressional lobbying on behalf of the rare disease community, and a scholarship to Medicine 2.0 at Stanford University.

Individually she is a member of the Society for Participatory Medicine, National Organization for Rare Disorders, Rare Disease UK, Cleveland Clinic Patient Advisory Panel, and Regina Holliday's Walking Gallery of Healthcare. FMD Chat is a partner organization of the N.C. Center for Nonprofits, Global Genes, EURORDIS, and Rare Disease UK.

AfternoonNapper's day-job is as an award-winning writer and editor of a nationally-published, regional lifestyle magazine covering Western North Carolina, East Tennessee, North Georgia, and Southwest Virginia. She is responsible for the magazine's overall editorial concept and content in addition to business operations including freelancer relations, marketing, sponsorships, and social media.

As her moniker would imply, AfternoonNapper enjoys ruminating from a prone position and napping—mostly in the afternoon, but any time will do.

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