12:00 - 1:05 pmFriday, September 5
Plenary Hall
Part 3: Patient with Chronic Illness - The New Self-Tracker?
Plenary Hall
Part 3: Patient with Chronic Illness - The New Self-Tracker?
Organizer & Community Builder, Quantified Self
Self-tracking ePatient and PhD candidate, Karolinska Institute
ePatient Scholar; Founder, Databetes
ePatient Scholar; The Hurt Blogger
Co-Founder, Quantified Self
CEO, EngagedIN, Consulting Faculty, Stanford AIM Lab
The public perception of self-tracking has matured in just a few short years, transforming from a buzzworthy curiosity into a powerful tool with implications for how we engage with our health, data, and... Read more

Description

The public perception of self-tracking has matured in just a few short years, transforming from a buzzworthy curiosity into a powerful tool with implications for how we engage with our health, data, and technology. What does the rise of self-tracking mean for the local, national, and global ePatient community? How can patients use self-tracking tools to empower themselves and support one another? How can we influence the existing self-tracking culture and community in ways that will encourage greater inclusion of chronically ill populations? Join our moderator Ernesto Ramirez, an esteemed organizer and community builder in the Quantified Self  movement, as we discuss new directions and ideas in self-tracking.

Ernesto Ramirez is currently a PhD candidate in the Joint Doctoral Program (Health Behavior) at San Diego State University and University of California, San Diego. He is currently working at the Center for Wireless and Population Health Systems (CWPHS). He focuses on how to use existing and new technologies to create persuasive systems that positively impact health behaviors. He is also the community organizer for Quantified Self, a global collaboration among users and makers of self-tracking tools.

Sara Riggare is an engineer and an unusually engaged patient. She was diagnosed with early-onset Parkinson’s Disease in 2003 when she was just 32. After learning she had Parkinson’s, Sara used her engineering and passion for measurement to better understand her disease.

Doug Kanter is the founder of Databetes, a graduate of NYU's Interactive Telecommunications Program, a designer and photographer

At ITP, Doug expanded his creative skills with a focus on interaction design and data visualization. His work has been featured in the BBC, Fast Co. Design, Flowing Data and Quantified Self. His blog of ITP work is available here.

While at NYU Doug launched Databetes, a company developing software to help diabetes patients better manage their condition. As a type-1 diabetic since 1986, Doug is interested in creating new ways to better use medical and lifestyle data to improve health outcomes. Doug led Databetes to a win in the 2013 NYU Entrepreneurs Challenge. Databetes also took part in the NYU Sumer Launchpad and has received support from First Round Capital's Dorm Room Fund. Doug has also been named an ePatient for the Stanford MedicineX conference. He blogs about living with diabetes at databetic.com.

Britt Johnson is a spondyloarthropathy and rheumatoid arthritis ePatient and blogger of TheHurtBlogger. Britt was a 2012 Medicine X ePatient scholar who was selected to give a talk about her experiences on the Stanford Medicine X main stage in 2012, participated in the 2013 IDEO Design Challenge, and has become an invaluable advisor to Medicine X.

Gary  Wolf  is the co-founder of The Quantified Self, a global collaboration among users and makers of self-tracking tools exploring “self-knowledge through numbers.” Wolf is also a contributing editor at Wired magazine. His work has appeared The Best American Science Writing (2009) and in The Best American Science and Nature Writing (2009). In 2010, he was awarded the AAAS Kavli Science Journalism prize. In 2005-2006 he was a John S. Knight Fellow at Stanford University. You can find him on Twitter: @agaricus or email him: gary@quantifiedself.com

Kyra Bobinet is a 1998 graduate of the University of California, San Francisco School of Medicine and a recipient of the 1997 James Comer Fellowship (American Academy of Child and Adolescent Psychiatry), 1998 UCSF Martin Luther King Jr. Award, and 1998 Echoing Green Graduate Fellowship in Community Service. She is of Ojibway, Lakota, and Czech descent, and a mother of two.

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