8:30 - 9:00 amSaturday, September 6
Plenary Hall
Keynote Discussion
Plenary Hall
Keynote Discussion
Chief Communications Officer, Stanford School of Medicine
Data Journalist, DocGraph Journal
President and CEO, Tidepool
ePatient Scholar; Program Analyst and Chronic Illness Advocate
PhD, MD, MBA, Senior Vice President, University of Utah Health Sciences
Senior Reporter, ProPublica
Charles Ornstein will join a distinguished panel of thought leaders in this exploration of how data can be used as a powerful tool for increasing patient engagement. Read more


Charles Ornstein will join a distinguished panel of thought leaders in this exploration of how data can be used as a powerful tool for increasing patient engagement.

Paul Costello is the School of Medicine's chief communications officer. He hosts the award-winning podcast 1:2:1, a series of conversations about advances in health-care policy and biomedical research. He has a rich and varied professional background in communications having served in government in the White House, the Ohio Governor's office and the Mayor's office in Washington, D.C.; the private sector at Home Box Office and the Chicago retailer Marshall Field; and in academia as a vice president at the University of Hawaii System. The Chicago native holds an MSW from the University of Illinois at Champaign-Urbana. He is an avid cyclist and swimmer.

Fred Trotter is a healthcare data journalist and author. He is a founder of CareSet Systems and The DocGraph Journal, a technical blogger for O’Reilly Radar, and co-author of the first Health IT O’Reilly book Hacking Healthcare.

CareSet’s Patch creates a comprehensive map of the healthcare system, by showing how healthcare providers collaborate to deliver healthcare. The DocGraph Journal seeks to create and disseminate new open healthcare data sets, and to foster a community of data scientists who contribute tools and expertise to the analyses of open healthcare data.

Fred’s technical commentary and data journalism work has been featured in several online and print journals including Wired, Forbes, U.S. News, NPR, Government Health IT, and Modern Healthcare. As a technology entrepreneur he is an alumni of multiple successful technical startups including Rackspace, Exault (purchased by Verisign), and ClearHealth (the top Open Source EHR company).

In recognition of his role within the Open Source Health Informatics community, Fred was the only Open Source representative invited by the NCVHS to testify on the definition of ‘meaningful use’ under ARRA. He also represented the Open Source EHR community in negotiations with CCHIT, a leading EHR certification body. He currently serves on the Consumer Technology Workgroup for the Health IT standards committee which advises the Office of the National Coordinator for Health IT.

Fred Trotter is deeply involved in the e-patient movement, the quantified self movement, the health 2.0 community. In all of those environments, he has focused on building tools that help empower patients to improve their own health, with a specific focus on behavior modification. Fred is a founder of the programmable self concept, and frequentspeaker on the topic. He was once a member of the Security and Trust Working Group for the Direct Project, and co-creator of the Direct Trust Model.

In addition, Fred  is a recognized expert in Free and Open Source medical software and security systems. He has spoken on those subjects at the SCALE DOHCS conference, Health 2.0, Academy of Health Care Journalists conference, Strata RX, Strata, LinuxWorld, DefCon and is an MC for the Open Source Health Conference and sometimes the healthcare track at OSCON.

He has a B.S in Computer Science, a B.A in psychology and a B.A in philosophy from Trinity University. He minored in Business Administration, Cognitive Science, and Management Information Systems. Before working directly on health software, he  passed the CISSP certification and consulted for VeriSign on HIPAA security for major hospitals and health institutions. He was originally trained on information security at the Air Force Information Warfare Center. 

Howard Look is the CEO and President of Tidepool. He was on the founder’s team at TiVo where as VP of Software and User Experience he led the efforts that made TiVo as easy to use as it was disruptive. He was also VP of Software at Pixar, where he led the team developing Pixar’s proprietary film-making system, and at Amazon where he ran a secret software project to develop devices that leverage cloud services. At Linden Lab, he led the team that delivered the open-sourced Second Life Viewer 2.0 project. Howard has a BS in Computer Engineering from Carnegie Mellon University. His teenage daughter has T1D.

Carly Medosch has been living with Crohn's disease for 20 years and with fibromyalgia for one year. She spent many years too sick to do much beyond essentials. Now, still not in remission, she has earned a BFA in graphic design and MBA, run a local IBD support group, managed a Facebook group, curated sickhacks.tumblr.com, and written about chronic illness at blog.chronicarly.com. Carly is passionate about breaking down silos between patient communities so we can share knowledge, support and increase our advocacy power. Based in Washington, DC, she is excited to expand my opportunities to advocate and partner with health care professionals and designers.

Dr. Vivian Lee graduated from Harvard-Radcliffe College at age 19 and was awarded a Rhodes Scholarship to study at Oxford University, where she received a Ph.D. in medical engineering. Returning to Harvard Medical School, she earned her M.D. with honors. She completed her residency in Diagnostic Radiology at Duke, where she also served as Chief Resident and trained as a fellow in Body and Cardiovascular MRI and Thoracic Imaging at NYU. In 2006, she added three more initials after her name, graduating as valedictorian with an MBA degree at NYU's Stern School of Business. She went on to serve as the inaugural Vice Dean for Science, Senior Vice-President and Chief Scientific Officer of New York University Langone Medical Center. Lee’s research credentials are equally impressive. She’s published more than 150 peer-reviewed studies, is the author of Cardiovascular MRI: Physical Principles to Practical Protocols, and is currently the principal investigator for three NIH R01 grants. She’s also the acting chair of the Association of American Medical College's advisory panel on research. In July, 2011, Lee headed West with her husband, Benedict Kingsbury and their four daughters to settle in Salt Lake City. She currently leads the University of Utah Health Sciences, which includes five major schools (School of Medicine, School of Dentistry, and colleges of Nursing, Pharmacy and Health) and a health care system comprised of four hospitals, dozens of clinical and research specialty centers, a network of 10 Salt Lake City-area health centers, a health plan, and over 1,000 board-certified physicians serving patients from six western states. Lee sees the current challenges around health care not as a threat but as an unprecedented opportunity to rethink everything we do and transform our system.

Over the past 2 years, she’s focused on streamlining processes and improving efficiency in health care to provide the highest quality care at the lowest possible cost. Two of her key initiatives have been implementing Lean Management principles into the health care system and creating a new costing tool called Value-Driven Outcomes (VDO). She is dedicated to ensuring that patients in the University of Utah's Region have access to the best and most efficient health care available. When not working, Lee and her family have been exploring Utah’s backcountry and discovering all of the different activities made possible by what the state claims is “the greatest snow on Earth.”

Charles Ornstein is a senior reporter for ProPublica covering health care and the pharmaceutical industry.

In collaboration with Tracy Weber, Ornstein was a lead reporter on a series of articles in the Los Angeles Times titled "The Troubles at King/Drew" hospital that won the Pulitzer Prize for Public Service, the Robert F. Kennedy Journalism Award and the Sigma Delta Chi Award for public service in 2005. His ProPublica series, with Tracy Weber, "When Caregivers Harm: California's Unwatched Nurses" was a finalist for a 2010 Pulitzer Prize for Public Service.

Ornstein reported for the Times starting in 2001, in the last five years largely in partnership with Weber. Earlier, Ornstein spent five years as a reporter for the Dallas Morning News. He is a past president of the Association of Health Care Journalists and a former Kaiser Family Foundation media fellow.

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