9:00 - 9:40 amSunday, September 7
LK 130
The missing link? Mental health as a turning point for whole person health
LK 130
The missing link? Mental health as a turning point for whole person health
Psychologist
ePatient Delegate
Stanford Medicine X ePatient Advisory Board
ePatient Scholar; CEO/Chairman & Founder, FMD Chat
Our ever-growing understanding of human biology, combined with advances in technology, have led to the movement called Health 2.0.  However, Health 2.0 still fails to consider the critical impact of cognition,... Read more

Description

Our ever-growing understanding of human biology, combined with advances in technology, have led to the movement called Health 2.0.  However, Health 2.0 still fails to consider the critical impact of cognition, emotion, motivation and behavior. Inspired by stories shared during Medicine X Live! segments, tweet chats, and blog posts, this panel will explore Julie Steele (@jsteeleeditor), editor at Strata’s, suggestion (in this article)that the next logical movement in health will -- or should -- involve addressing mental health while treating and managing physical illness.

Two issues that emerged repeatedly at the Medicine X conference in 2013 were the value of patient stories and the critical importance of listening to patients as experts in their own experience.  Because of mental health’s long history of patient-centered practice, this panel seems to take a natural step in expanding these themes. This panel was inspired by patient stories that appear via social media time and again, in which the emotional and cognitive stresses of physical illness are ignored or minimized.  

Panelists will explore the critical role of mental health in overall health care. They will also discuss how social media tools might be used to improve awareness and integration of mental health services.We hope to generate more open discussion of these issues and their importance relative to the future of health care.

Ann Becker-Schutte is a licensed counseling psychologist practicing in the midtown area of Kansas City, MO. Her goal in therapy is to create a safe, supportive environment for her patients and caregivers affected by serious illness.

Her practice specialties include the intersection of physical & emotional health, grief & loss, and infertility. She firmly believes that our emotional and physical health are strongly related. There is great research supporting this belief. So one of her primary goals in her practice is to create a space for those who are coping with serious or chronic health issues to receive support and gain understanding of how their mind and body affect one another.

Scott Strange has been a Type 1 diabetic since 1970. Strangely Diabetic is his story of how diabetes has affected his life and how his life was changed when he learned that he wasn’t alone in this chronic condition. Scott wants to share his experiences with other diabetics, so they can hopefully avoid some of the things that made him truly suffer.  Diabetes was probably the least of those things.

He advocates for patients to become actively engaged, not only in managing their condition, but in stepping forward to lead their healthcare team and to communicate with others either online or in person.

It took him nearly 40 years to realize that he was not alone in living with diabetes. At the time, Scott didn't even know that he needed the support of other diabetics who truly understand, but he finally found the support he needed and it has changed his life.

Blogging and participating in the Diabetic Online Community is Scott's way of giving a little back to all those who have helped him.

Liza Bernstein is a three time cancer survivor, first diagnosed in 1994, who has used Twitter and social media to extend her patient advocacy work by helping others become engaged patients and partners in their own care. She was a 2012 Medicine X ePatient scholar who was profiled in a Stanford Medicine X film on peer-to-peer healthcare.

Sarah Kucharski, or AfternoonNapper, blogs as a health advocate fostering the patient voice in medicine. Special interests include the patient experience in healthcare settings, the doctor-patient relationship, the patient-caregiver relationship, chronic illness, health literacy, advance planning and end-of-life issues. She is CEO/Chairman and Founder of FMD Chat, a nonprofit organization supporting those around the world affected by a rare vascular disease. As FMD Chat’s leader, she oversees the organization's consistent achievement of its mission and financial objectives; fundraising; publicity and media relations; domestic and international partnerships; volunteer recruitment and development. She also serves on the ePatient Advisory Board (2012, 2013) for Stanford University's Medicine X conference.

Speaking engagements have focused on the role ePatients are playing in healthcare at the Doctors 2.0 & You healthcare and social media conference in Paris, France; and to med school students at both Stanford and UC Irvine regarding the ePatient experience. Additional conference participation includes HealthCamp DC; Partnership With Patients; HealthCamp Kansas City; ScienceOnline 2013, and Rare Disease Day at the National Institutes of Health. Her work has been recognized with Health Advocate Award nominations from Wego Health, state newspaper and international blog write ups, a Rare Disease Legislative Advocates scholarship to participate in Congressional lobbying on behalf of the rare disease community, and a scholarship to Medicine 2.0 at Stanford University.

Individually she is a member of the Society for Participatory Medicine, National Organization for Rare Disorders, Rare Disease UK, Cleveland Clinic Patient Advisory Panel, and Regina Holliday's Walking Gallery of Healthcare. FMD Chat is a partner organization of the N.C. Center for Nonprofits, Global Genes, EURORDIS, and Rare Disease UK.

AfternoonNapper's day-job is as an award-winning writer and editor of a nationally-published, regional lifestyle magazine covering Western North Carolina, East Tennessee, North Georgia, and Southwest Virginia. She is responsible for the magazine's overall editorial concept and content in addition to business operations including freelancer relations, marketing, sponsorships, and social media.

As her moniker would imply, AfternoonNapper enjoys ruminating from a prone position and napping—mostly in the afternoon, but any time will do.

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