12:35 - 1:20 pmSaturday, September 6
LK 101
Redesigning the food allergy experience: pediatrician moms innovate through social media and participatory design
LK 101
Redesigning the food allergy experience: pediatrician moms innovate through social media and participatory design
Pediatrician
Pediatrician
Associate Professor, University of Michigan
Food allergies are a life-threatening illness affecting over 6% of children and 3% of adults in the US. Among food allergic children, 38.7% have a had a history of severe food-induced reaction, and it... Read more

Description

Food allergies are a life-threatening illness affecting over 6% of children and 3% of adults in the US. Among food allergic children, 38.7% have a had a history of severe food-induced reaction, and it is estimated that 150-200 fatalities occur every year.  Although avoidance of allergens is the prescribed solution for parents of children with food allergies, this is easier said than done given the complexity of reading ingredient labels, identifying a variety of safe foods to eat, instructing daycare providers/teachers about medication management and food preparation, and finding a supportive community of families who face similar struggles.

In this presentation, three pediatricians will discuss their experience innovating with entrepreneurism, participatory design, and social media to change the patient experience of food allergy management.

After her newborn son was diagnosed with multiple food allergies, pediatrician Dr. Lama Rimawi recalls trying to read labels as a sleep deprived mom in the aisles of the grocery store to find safe food options.  She spoke with other parents with similar frustrations, and out of this she created https://tasterie.com a business that finds and sends allergen free foods to people with a variety of food allergies and intolerances in an easy and convenient manner.

Pediatrician Dr. Joyce Lee, who has children with multiple food allergies, was frustrated by the design and format of the educational materials provided by physicians to educate caregivers (babysitters, schools) about managing food allergies.  She, therefore, partnered with her son B to create a series of YouTube videos written and narrated by B himself. These videos, which can be found at http://ihavefoodallergies.tumblr.com/ went viral, and she is now on a mission to infuse participatory design and design thinking into every crevice of the healthcare and educational system. http://www.slideshare.net/joyclee/doctor-as-designer-26625644

Dr. Kim Newell, pediatrician for Kaiser Permanente, is officially known as @KPBabyDoctor on Twitter. She is passionate about the fact that social media can reach parents and patients on their health journey well beyond the office encounter. Through her blog and social media activity, including blogging to reach parent communities such as Kinsights, which has a large community of parents helping kids live with food allergy, she uses the massive power of social media to disseminate health information real-time, curate evidence-based information in a sea of confusing facts, and build community among parents.
Startups, patient and caregiver initiated design and social media have great potential for transforming the patient experience in food allergy and beyond.

Lama Rimawi, MD is a pediatrician, entrepreneur and food allergy mom. She is a founder of Tasterie, a food allergy company that is building a community and a brand around healthy and safe foods for people with food allergies and intolerances.

Joyce Lee, MD, MPH (“Doctor as Designer”) is a patient-centered design thinking evangelist, and a social media and technology enthusiast from the University of Michigan. As a pediatrician, diabetes specialist, and researcher, she is passionate about the notion that patient-centered participatory design combined with emerging technologies like social media, and mobile technology can transform the clinical research enterprise and the delivery of clinical care.

She is Associate Professor of Pediatrics at the University of Michigan Medical School and the Department of Environmental Sciences at the School of Public Health and sees patients and families at Mott Hospital. The main focus of her research is on pediatric diabetes and obesity, and she uses a variety of methodologies to study these areas, including epidemiologic analyses, modeling techniques, applied clinical research, cost- effectiveness analysis, and social media/mobile technology.

She is a co-creator of HealthDesignby.us, a collaborative innovation network of individuals promoting participatory design and the creation or “making” of health by a community and she is co-director of the Mott Mobile Technology Program for Enhancing Child Health. She also serves as Social Media/Web Editor for JAMA Pediatrics. She blogs about design and health at https://medium.com/@joyclee encourages you to follow her on Twitter https://twitter.com/joyclee! and would love for you to join the health + design community here: http://healthdesignby.us7.list-manage1.com/subscribe?u=a7017016cdfe04b1abe03d358&id=60d148385c.

Contact Us

We're not around right now. But you can send us an email and we'll get back to you, asap.

Not readable? Change text. captcha txt

Start typing and press Enter to search