Erin Moore
ePatient; Family Partner, Cincinnati Children's Hospital Medical Center; Blogger, 66 Roses

About Me

Erin Moore's work in the cystic fibrosis community began when her son was born in 2010. Her initial involvement was in fundraising and then she began working at the State Advocacy Chair for the Ohio Chapter of the Cystic Fibrosis Foundation. In 2012, Erin started working with Cincinnati Children's Hospital in their Pulmonary Department on quality improvement work, bringing all stakeholders to the table in designing systems and tools to better meet the needs of patients, clinicians and researchers to improve health and care in the cystic fibrosis community. Erin is a member of the Committee for Patient Engagement at the Cystic Fibrosis Foundation and works on the Committee for Patient & Clinician Engagement on the New York CDRN. She also leads the patient engagement work for the development of a Collaborative Chronic Care Network (C3N) for Cystic Fibrosis. 

At Medicine X 2015

Friday, September 5 9:05 am (Plenary Hall)
Part 1: The New Team
What might the medical team of the future look like? How can patients partner with healthcare providers, hospitals, pharmacists, and all stakeholders as valued members of the healthcare team? This panel... Read more
Saturday, September 6 5:25 pm (Plenary Hall)
Depression in chronic illness and coping through online communities
Studies have shown that depression is a common co-morbidity with chronic illness and that social support systems positively impact patients' symptoms of depression and those relating to chronic illness.... Read more
Sunday, September 7 1:50 pm (Plenary Hall)
Patients as partners: The story of a citizen scientist
I have a 3 year old son who has cystic fibrosis, a progressive and fatal genetic disease that does not have a cure. Over the past 50 years, many new drugs and therapies have become available to patients... Read more
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