Carly Medosch
ePatient Scholar; Program Analyst and Chronic Illness Advocate

About Me

Carly Medosch has been living with Crohn's disease for 20 years and with fibromyalgia for one year. She spent many years too sick to do much beyond essentials. Now, still not in remission, she has earned a BFA in graphic design and MBA, run a local IBD support group, managed a Facebook group, curated sickhacks.tumblr.com, and written about chronic illness at blog.chronicarly.com. Carly is passionate about breaking down silos between patient communities so we can share knowledge, support and increase our advocacy power. Based in Washington, DC, she is excited to expand my opportunities to advocate and partner with health care professionals and designers.

At Medicine X 2015

Saturday, September 6 8:30 am (Plenary Hall)
Keynote Discussion
Charles Ornstein will join a distinguished panel of thought leaders in this exploration of how data can be used as a powerful tool for increasing patient engagement. Read more
Sunday, September 7 11:00 am (LK 102)
Unmasking invisible illness: What does pain look like?
Unmasking Invisible Illness: What does pain look like?Watching the 2013 MedX ePatient panel, I was struck by the gasps from the audience when Emily Bradley disclosed her current pain level was a 9 on the... Read more
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