12:05 - 12:50 pmSaturday, September 26
LK 102
CanSurround: Co-Creating With ePatients At The Intersection of Cancer Mental Health And Technology
LK 102
CanSurround: Co-Creating With ePatients At The Intersection of Cancer Mental Health And Technology
Stanford Medicine X ePatient Advisory Board
Medicine X ePatient Scholar
Medicine X ePatient Scholar
Can Surround
What does a truly patient-centered, digital health startup company look like? How does such a company find an ePatient Advisor? Is it really possible to co-design with patients?This session will provide... Read more

Description

What does a truly patient-centered, digital health startup company look like? How does such a company find an ePatient Advisor? Is it really possible to co-design with patients?

This session will provide answers to those questions and more.

An ePatient and a patient-centered app meet in the #MedX tweetstream, and the rest is co-design history:

As is often the case these days, it all started with Twitter. At Medicine X 2014, Liza Bernstein's remarks in contribution to Ann Becker Schutte’s panel about mental health were tweeted by Rachel Crooks and seen by Jon Brilliant, Chief Financial Officer of CanSurround, a fledgling startup at the intersection of mental health, oncology and technology.

@jabrilliant RT @rachelcrooks_: Mental health looks invisible, but it’s not - mental and physical health are intertwined @itsthebunk #MedX  10:57 AM - 7 Sep 2014”

Jon who was following Medicine X from the East Coast sent her a tweet:

@jabrilliant @itsthebunk, I would like to share with what we are doing at http://www.CanSurround.com  if you have some time.  Perhaps you can send me a DM. 11:46 AM - 7 Sep 2014

DMs were exchanged, and a period of intense mutual due diligence began via conference calls, emails, and finally an in person meeting between Liza and CanSurround’s CEO and Medical Advisor, Meg Maley and Suzanne Clough, respectively. The in-person meeting sealed the realization that there was a meeting of the minds and hearts and she was invited to join the CanSurround team as an ePatient advisor to represent the patient voice, aid in creating a future ePatient advisory board, and co-design and co-create with the team.

In this session, our goals are:

  1. Present CanSurround—an offering at the intersection of mental health and technology—to the Medicine X audience.
  2. Discuss the reasons for engaging an ePatient advisor. Is this something any company in healthcare can and should do? What are the pros and cons and frame of mind required by the company?
  3. Discuss the reasons for wishing to become a particular company’s ePatient advisor: are some companies better suited to that relationship than others? How might some issues unique to ePatients (fatigue, other symptoms) affect their work, and how might they and the companies work around/through these issues together
  4. Engage in a co-design panel discussion about CanSurround’s features with Medicine X ePatients with a cancer diagnosis (Matt Dudley; others TBD, pending announcement of final list of delegates) - this discussion will be an authentic exchange of critiques and ideas and will model for the Medicine X audience the kind of open exchange and dialogue that co-design requires.

Liza Bernstein is a three time cancer survivor, first diagnosed in 1994, who has used Twitter and social media to extend her patient advocacy work by helping others become engaged patients and partners in their own care. She was a 2012 Medicine X ePatient scholar who was profiled in a Stanford Medicine X film on peer-to-peer healthcare.

Marie Ennis-O'Connor is an award-winning health blogger and international conference speaker with a passionate interest in the role of social media in healthcare.

Stanford Medicine X ePatient scholar, Marie is regularly invited to speak at international conferences on the ePatient movement. She has extensive experience of working with healthcare practitioners and patient advocates and is interested in how both can engage and learn from each other at the level of social media.

A keynote speaker on digital media strategy, Marie co-founded #BCCEU, Europe's first breast cancer social media chat and is a founding member of Health2.0 Dublin, part of the Health2.0 international movement.

I am a family medicine trained physician who works as a Hospitalist in Anchorage Alaska with the Alaska Hospitalist Group. I was diagnosed with AML in 2013 and underwent treatment including a stem cell transplant. I was born and raised in Colorado where I was a avid Nordic ski racer, soccer player and mountain biker through college before going into medicine. I continue to be very active despite my cancer. I have two wonderful little boys 3 and 6 who were the reason I started writing. My wife is a physical therapist who has not only pushed me through my cancer but been my greatest friend in life.

Twenty-seven of Meg’s twenty-eight year health care career has been devoted to improving the lives of people living with cancer. She has founded, owned, operated and sold oncology health care companies. From 2010-2O13, she served as an executive of WellDoc, a pioneering healthcare company that is trailblazing in the space of mobile health. Meg helped with the early work of what will ultimately be WellDoc’s oncology solution. It was through working with WellDoc that Meg fell in love with the possibilities of what technology, and patient generated data, can do to improve health care. Currently, Meg is serving as the CEO of the start-up CanSurround PBC. CanSurround is an exceptionally personalized, innovative web and mobile experience for individuals living with cancer. CanSurround is focused exclusively on helping people learn to reduce needless distress and create emotional well being. CanSurround provides information and inspiration to guide participants toward choices that foster personal growth and healing.

Born of her belief that people living with cancer deserve specialized care at home, Meg’s first company, Oncology Care Home Health Specialists was the first and only oncology specific home care company in the country and delivered hands on multidisciplinary care for almost 17 years. It was in this setting, that Meg experienced an “in the homes and in the arms” view of the emotional toll that the cancer experience places on the patient and family. Today, Oncology Care is a national company focused on delivering a comprehensive, turnkey solution for community-based health care providers seeking to implement cancer specialty programs.

Viewed as a national expert in the field of oncology home care services, Meg has influenced legislation and clinical practice in this sector. She has served in leadership positions on numerous, national and local boards and industry-specific initiatives over the last 28 years, and has been a founding board member of several thriving non-profit organizations including Cancer Care Connection, a remarkable cancer coaching and referral service.

Since 2003, appointed by two Governors of Delaware, Meg has chaired the Environmental Committee for the Delaware Cancer Consortium. She also founded and chairs the Delaware- based “Living with Cancer Fund,” which gives financial assistance to cancer patients who are struggling to meet their basic daily needs. Meg received her Bachelor of Science Degree in Nursing from The University of Delaware.

The theme of Meg’s professional life has been to ease people’s pain and suffering. She derives great personal satisfaction from helping people through intensely difficult chapters in their lives and guiding them to find meaning and growth from the experiences. She lives in Landenberg, Pennsylvania with her wonderful family and super cool dog.

 

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