1:20 - 2:05 pmSunday, September 27
LK 120
Older adults taking hold of their health: Technologies that foster transparancy and engagement (OpenNotes, online communities, and apps)
LK 120
Older adults taking hold of their health: Technologies that foster transparancy and engagement (OpenNotes, online communities, and apps)
John A. Hartford Fdn.
Harvard Medical School
Wasatch Internal Medicine
As people age they are engaging increasingly with technology in order to manage their health, better understand illness, and make informed choices about care.  Evolving technologies allow older adults... Read more

Description

As people age they are engaging increasingly with technology in order to manage their health, better understand illness, and make informed choices about care.  Evolving technologies allow older adults and their families to take hold of their health and health care more actively, and today people can connect readily with others who share similar challenges.  Electronic medical records can enable fully transparent relationships among patients, families and providers. And technology is even helping both providers and patients with the most complex health problems understand the likely course of a disease. This panel will highlight efforts to harness innovative technologies that support the needs of the largest segment of health care utilizers: older adults, who soon will represent one in five Americans.

Amy Berman lives well with stage IV cancer and is a Senior Program Officer with the John A. Hartford Foundation.  She is a nationally recognized e-patient and an award-winning author for Health Affairs, The Washington Post, The Health Care Blog, and Health AGEnda. She will serve as panel moderator and will frame the discussion with her story featuring examples of technologies that enhance communications, foster shared decision-making and respect for treatment preferences, and encourage greater understanding of our own health.

Tom Delbanco, professor of general medicine and primary care at Harvard Medical School, is the co-founder of the OpenNotes movement whose members now invite five million Americans to read the notes written by their health providers. He will discuss the effects on patients, families and clinicians of fully transparent, shared medical records, pointing to notes as therapeutic interventions as they affect patient safety, the value of care, caregivers, and the education of the next generations of consumers and health professionals.

Sei Lee, associate professor in the Division of Geriatrics at UCSF School of Medicine, will discuss the role of technology in helping clinicians, patients, and caregivers make decisions about the future. He will highlight the utility of tools designed to help elders and their families take prognosis into account as they consider how to maximize the benefits of prevention, while minimizing potential harms.

Michelle Litchman, is a blogger at Health in the Presence of Social Media, a nurse practitioner, and research scientist exploring the role of social media and peer relationships among aging adults with diabetes. She will discuss emerging issues in online communities, such as self-disclosure and anticipatory guidance to younger individuals living with chronic disease.

Amy Berman is a Senior Program Officer with the John A. Hartford Foundation. She heads the Foundation’s development and dissemination of innovative, cost-effective Models of Care that improve health outcomes for older adults. Among these efforts, Ms. Berman is responsible for the Foundation’s work to advance palliative care led by Diane Meier and the Center to Advance Palliative Care. She also directs a number of collaborations with federal partners including the Centers for Medicare and Medicaid Innovation, the Office of the National Coordinator for Health Information Technology, and the Administration for Community Living.

Ms. Berman openly shares her experiences living with Stage IV breast cancer. She has presented to the Institute on Medicine and has authored numerous pieces about her health care choices, palliative care and implications for patients, practice and policy. Her piece in Health Affairs, Living Life In My Own Way—And Dying That Way As Well, was among the journal’s most read in 2012. She has been featured in New York Times, Forbes, and on NPR’s Diane Rehm Show. She blogs on the Hartford Foundation’s HealthAGEnda site (www.jhartfound.org/blog) and can be followed on Twitter as @jhartfound and @notesonnursing.

Prior to the Foundation, Ms. Berman served as Nursing Education Initiatives Director for the Hartford Institute for Geriatric Nursing at New York University College of Nursing. Among her responsibilities at New York University, Ms. Berman developed resources and programs to improve the geriatric expertise of nursing educators and clinicians. She conducted a national survey on gerontological nursing content in baccalaureate programs cited in the Institute on Medicine’s report, Retooling for an Aging America: Building the Health Care Workforce.

Before joining New York University, Ms. Berman worked in home health care administration for twenty years with responsibility for quality improvement, health information technology, accreditation, and regulatory compliance. She served as JCAHO coordinator and as accreditation consultant in performance improvement for a variety of health care institutions. Ms. Berman served on the New York State Department of Health's Emergency Preparedness Task Force and on the professional advisory boards of health care institutions in New York City.

Ms. Berman is an appointed member of the Office of the National Coordinator for Health Information Technology's Consumer Workgroup, and was appointed to CMS’ Partnership for Patients Patient and Family Engagement Network and the Aging Task Force for Healthy People 2020. She is a member of Academy Health, the Gerontological Society of America, and the honor society of nursing, Sigma Theta Tau.

Ms. Berman has been the recipient numerous honors for her advocacy on behalf of older adults and those facing serious illness. She received the Presidential Award from the National Coalition for Cancer Survivorship, the President’s Award from the National League for Nursing for reshaping nursing education, and the Civitas Award from the American Academy of Nursing for her policy and advocacy efforts. The international honor society of nursing, Sigma Theta Tau, established the Amy J. Berman Geriatric Nurse Leadership Award in 2012, which is awarded at their biennial meeting.

She earned a Bachelor of Science degree in nursing from New York University College of Nursing, a Bachelor of Science degree in health care administration from the University of Massachusetts, Amherst, and a Geriatric Scholar Certificate from the Consortium of New York Geriatric Education Centers.

I am working in a private practice as a family nurse practitioner specializing in diabetes care in adult and geriatric populations. My research examines peer health in the diabetes online community.

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