11:00 am - 12:30 pmSunday, September 18
LK 304/5
Workshop: Human-Centered Design for Quality of Life in Cancer Care
LK 304/5
Workshop: Human-Centered Design for Quality of Life in Cancer Care
Stanford University
Background Care for people experiencing chronic and serious illness should focus as much on quality of life as on the treatment of disease. However, the current system is not designed to address these... Read more

Description

Background 

Care for people experiencing chronic and serious illness should focus as much on quality of life as on the treatment of disease. However, the current system is not designed to address these needs. Further, what does “quality of life” mean for patients, families and providers? How do we equip our healthcare teams, our system, and families with the tools to assess and support quality of life? Our team is focusing on tailoring and applying a clear set of tools from palliative care (PC) to general practice so we might treat the whole person and improve a range of outcomes. We are utilizing human-centered design methods to rebrand PC (from an end of life service) and develop novel interventions that bring quality of life central to cancer care.

Project detail 
Our data collection to date has revealed need for improvements in: 

  • protocols and role definition for addressing patient distress, 
  • resources and tools to address needs, 
  • clinician education in palliative skills such as communication, symptom management and identifying patient goals, 
  • relationship-building to encourage interdisciplinary care, 
  • feedback mechanisms to track impact on quality of life and other outcomes over time. 

In 2015, we convened a multidisciplinary group of 25 patients, family members, oncology clinicians and experts in patient experience and health services research to evaluate current data and generate ideas for optimizing support for symptom management and quality of life. Several themes were generated from the workshop and the group was engaged in small groups to work on pilot projects in these areas. Proposed solutions, such as a subspecialist “hub” that allows single referrals and streamlined access to supportive care, began testing and iteration at the Stanford Cancer Center in June 2015.

Workshop outline 

During this workshop, participants will have the opportunity to utilize a rapid design process to explore and create for a specific theme around quality of life that we heard through work with patients and families. Together, we will discuss this theme and the cancer care experience. In small groups, participants will identify root causes and generate ideas to address them. Groups will converge around a single prototype and map the inputs and process required to ready it for testing. They will also create potential metrics for measuring success. At the end of the workshop, participants will have worked through the design process and generated a prototype to share with a small group of stakeholders. These prototypes will inform future work to improve quality of life care for patients and families.

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