2:00 - 2:05 pmSunday, September 18
Upper Lobby
The ICanFunction international partnership - from diagnosis to function
Upper Lobby
The ICanFunction international partnership - from diagnosis to function
Associate Professor/McMaster University
The paradigm shift in healthcare in the last 20 years is characterized by an increase of chronic health conditions. Those usually present as a spectrum of limitations of functioning modified by the interactions... Read more

Description

The paradigm shift in healthcare in the last 20 years is characterized by an increase of chronic health conditions. Those usually present as a spectrum of limitations of functioning modified by the interactions between persons and environment (physical and social).

The World Health Organization (WHO) provides a framework to describe and classify such variability among individuals with the International Classification of Functioning, Disability and Health (ICF).

Currently there is no user-friendly and cost efficient method in social and healthcare systems to comprehensively collect and monitor a person’s functional and contextual health-related data using ICF or any other structural framework by the patient or their caregivers. To address the needs for universal health coverage and patient-centeredness, an easy to use, mobile based version of the ICF – mobile ICanFunction app (mICF) – is proposed to facilitate patient-driven and -owned data, and interprofessional holistic care by addressing the needs of service users through shared decision-making and patient-reported outcome measures. mICF could facilitate the dawn of a new era of universally affordable, accessible, personalized, predictive, sustainable, integrated, community-based interprofessional and transprofessional healthcare.

We represent an international partnership with 284 collaborators (professionals and ePatients) from 39 countries engaged in developing the mICF – ICanFunction platform that will enable citizens to build their own functional profiles based on the taxonomy of the ICF.

It is envisaged that mICF will:

  1. ensure accurate, efficient and standardized capture of functional status and contextual information, thereby facilitate the systemic understanding of health by service users and frontline service providers,
  2. convey information securely between different service settings, improving effective communication between service providers and/or users,
  3. facilitate shared decision-making for intervention (including prevention and prediction) by making person-driven and patient-owned data readily available and by defining meaningful goals and outcomes,
  4. facilitate administration and reporting through the aggregation of data, and
  5. minimize the need for repeat data collection.

In 2015 we received funding for a first prototype of our application through the Finnish Social Insurance Institution. By demonstration and live discussion with ePatients we hope to engage partners and sponsors worldwide to join our efforts to provide personalized healthcare based on function increasing social participation.

Dr. Olaf Kraus de Camargo is an Associate Professor in the Department of Pediatrics at McMaster University. He completed his medical education and pediatric training in Brazil, followed by a residency in Germany where he received training in developmental-behavioural pediatrics and child neurology. 

Prior to joining the faculty at McMaster, Dr. Kraus de Camargo held positions as a Professor of Social Medicine at the University of Applied Sciences Nordhausen and as CEO and Medical Director of Kinderzentrum Pelzerhaken gGmbH in Germany, an inpatient and outpatient facility for children with developmental-behavioural disabilities and chronic neurologic disorders. The centre is also a teaching institute for professionals in developmental pediatrics.

Since 2001, he has been involved with the implementation of the International Classification of Functioning, Disability and Health program (ICF), initially in neuro-rehabilitation and later in implementing it into Early Intervention Centres in Germany. Together with Judith Hollenweger, he edited the german translation of the ICF-CY. He also co-authored with Liane Simon the first book about clinical applications of the ICF-CY in Germany. 

At McMaster, he is currently introducing ICF into education models, clinical practice and research. His goal is to develop an electronic version of the ICF (the ICanFunction App) to empower patients to better describe their needs to clinicians.

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