10:10 - 11:40 amSaturday, September 17
Dean's Conference Room
Workshop: Patients as Peer Reviewers - Helping to Make Health Research More Relevant and Useful
Dean's Conference Room
Workshop: Patients as Peer Reviewers - Helping to Make Health Research More Relevant and Useful
Director of Communication, PCORI
A special Patient-Centered Outcomes Research Institute (PCORI) workshop at Medicine X 2016. One of the basic concepts in health research is that of “peer review,” the independent assessment of the... Read more

Description

A special Patient-Centered Outcomes Research Institute (PCORI) workshop at Medicine X 2016. 

One of the basic concepts in health research is that of “peer review,” the independent assessment of the quality of research proposals for potential funding or articles submitted to medical journals for potential publication. Traditionally, this has been the province of scientific, clinical and technical experts. In recent years, however, we have seen a growing trend to engage patients in the process, drawing on their lived experience as the experts in their own particular condition or circumstances.


For example, we at PCORI ask patients (and other stakeholders) to join scientists in assessing all research proposals, something other funders have done as well. Now, PCORI will ask patients to join scientists and other stakeholders as part of the process PCORI must pursue by law to peer review all of its primary research, as a step toward making the results of those studies widely available to the public. Patients will be asked to weigh in on how well those studies addressed the requirement that they be patient-centered and engage patients and other stakeholders in the conduct of the research, as well as how useful the study results could be to them in making healthcare decisions.


A small but growing number of medical journals ask patients to serve as peer reviewers for the manuscripts they consider publishing, adding their experiences to the process of deciding whether a particular paper should be published. However, no major research funder will apply this concept as broadly and systematically as we plan to do. And to do the best job possible, we need your help.


PCORI will hold a special workshop during this year’s Medicine X to review its plans for the peer review and public release of the results of its funded studies, then test drive the process with attendees. We’ll provide background materials, including sample research reports, and invite you to join us for live mock peer reviews to see how well we bring the patient’s voice and point of view to our process. We’ll also talk about what we plan for the public summaries we plan to produce based on the results of our funded studies and how we can use your assistance in ensuring that those are as useful as possible for patient, their families and the general public.

Bill Silberg is the Director of Communications for the Patient-Centered Outcomes Research Institute. He is responsible for developing and implementing PCORI’s strategic communications plan, managing media engagement, and assisting in the formation of strategies to broadly disseminate health information generated by PCORI-supported research. Silberg brings more than three decades of experience in communications and publishing to PCORI, and joined the Institute from Silberg Consulting and the American Journal of Preventive Medicine, where he was editor-at-large.

Previously, Silberg held positions as Vice President for Publishing and Communication at the New York Academy of Sciences, Senior Vice president for Communications and Publishing at the Commonwealth Fund, and Senior Vice President and Executive Editor at Medscape. He spent 13 years at the American Medical Association, holding numerous editorial positions, including web editor at the Journal of the American Medical Association. Silberg began his career as a reporter, editor, and eventually bureau manager at United Press International. He earned his bachelor’s degree in Natural Resources from Cornell University.

 

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