5:10 - 5:55 pmSaturday, September 17
Plenary Hall
Patient privacy: can we have it all?
Plenary Hall
Patient privacy: can we have it all?
Senior Reporter, ProPublica
Executive Director, PersonalGenomes.org & Faculty, Icahn School of Medicine at Mount Sinai & Director, Sharing Lab
Expert in Health Information Privacy and Consumer Rights
Judging by media reports, patient privacy is under assault. Information on millions of patients was potentially exposed when the databases of large health insurers were breached and recently, hospitals... Read more

Description

Judging by media reports, patient privacy is under assault. Information on millions of patients was potentially exposed when the databases of large health insurers were breached and recently, hospitals have been subject to ransomware attacks. Quietly, across the nation, another group of patients has found their information accessed by friends, former spouses or enemies seeking to cause harm or satisfy curiosity. And the latest wearables and health apps fall outside the federal privacy law known as HIPAA.

 

In a very different way, some patients are saying the concerns about patient privacy have impeded needed research and sharing of information. Is there a way to both protect privacy from unwanted intrusions and enable needed research? Is there a middle ground?

 

Charles Ornstein is a senior reporter for ProPublica covering health care and the pharmaceutical industry.

In collaboration with Tracy Weber, Ornstein was a lead reporter on a series of articles in the Los Angeles Times titled "The Troubles at King/Drew" hospital that won the Pulitzer Prize for Public Service, the Robert F. Kennedy Journalism Award and the Sigma Delta Chi Award for public service in 2005. His ProPublica series, with Tracy Weber, "When Caregivers Harm: California's Unwatched Nurses" was a finalist for a 2010 Pulitzer Prize for Public Service.

Ornstein reported for the Times starting in 2001, in the last five years largely in partnership with Weber. Earlier, Ornstein spent five years as a reporter for the Dallas Morning News. He is a past president of the Association of Health Care Journalists and a former Kaiser Family Foundation media fellow.

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