4:30 - 4:50 pmSaturday, September 17
LK 102
How patients take control of their precision cancer care by accessing their own molecular profiling data
LK 102
How patients take control of their precision cancer care by accessing their own molecular profiling data
Founder & Chief Strategy Office, Cure Forward
Advancements in technology and science are making precision medicine more possible every day. However, these innovations remain just out of reach for so many patients. We built a new company based on the... Read more

Description

Advancements in technology and science are making precision medicine more possible every day. However, these innovations remain just out of reach for so many patients. We built a new company based on the hypothesis that regular people, armed with their data, can effectively access treatment options that were otherwise unavailable to them. Cure Forward recently launched for cancer patients, giving them access to their molecular profiling test data from any lab. People can use that data to learn about their disease, participate in a clinical trials exchange, and meet matched patients to problem-solve together.

2016 is the year that we plan to validate our hypothesis. We will be monitoring patient activity on the website: data uploads, posts to the trial exchange, clinical trial matches, and stories where using one’s data changed the course of their care. We will be collecting data to understand the impact we are having on patient’s lives and to improve to make an even bigger difference.

In this presentation, we will share the story of Cure Forward and our progress to-date with hard metrics and activity-based insights. We believe that a movement is underway for citizen science and patient-powered medicine, and we want to contribute our experience to the dialogue.

 

Martin Naley founded Cure Forward to solve critical needs in patient care and drug development. Patients had heard of precision medicine but didn’t know how to access tests or targeted therapies. Clinical trials were struggling to find patients. The opportunity became apparent for patients to engage in precision medicine and use their own data to find relevant and specific treatments. Martin incubated the idea at Apple Tree Partners, a healthcare venture capital firm, and the company was formed in 2014. Now the Cure Forward website is launched, helping hundreds of patients who are seeking options in their cancer care. Earlier in his career, Martin spent 15 years at Life Technologies, a manufacturer of the tools that power precision medicine.  There, he held various leadership positions including CEO Chief of Staff, Head of Medical Science Informatics, and VP Cell Culture Research. Martin holds a B.A. in Biological Sciences from Cornell and an M.B.A. from Yale.

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