12:30 - 1:30 pmSunday, September 18
Everyone Included™ Precision Medicine Tent
HIPAA is a Valve not a Blockage: Your Rights to Your Health Data
Everyone Included™ Precision Medicine Tent
HIPAA is a Valve not a Blockage: Your Rights to Your Health Data
U.S. Digital Service
Health Data Innovator, Senior Advisor White House OSTP, Former HHS Leader
The President’s Precision Medicine Initiative prioritizes the ability of any American to participate in scientific research by individually donating their health information. This can only be made possible... Read more

Description

The President’s Precision Medicine Initiative prioritizes the ability of any American to participate in scientific research by individually donating their health information. This can only be made possible by robust access to patient data. Please join a roundtable discussion about your rights to your own health data through HIPAA including getting electronic copies of your health information, using email if that’s your preference and having information sent directly to a third party. Special lunchtime session, food will be provided.

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