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Page 246 – Stanford Medicine X
Erin Moore
Medicine X ePatient Scholar

About Me

Erin Moore's work in the cystic fibrosis community began when her son was born in 2010. Her initial involvement was in fundraising and then she began working at the State Advocacy Chair for the Ohio Chapter of the Cystic Fibrosis Foundation. In 2012, Erin started working with Cincinnati Children's Hospital in their Pulmonary Department on quality improvement work, bringing all stakeholders to the table in designing systems and tools to better meet the needs of patients, clinicians and researchers to improve health and care in the cystic fibrosis community. Erin is a member of the Committee for Patient Engagement at the Cystic Fibrosis Foundation and works on the Committee for Patient & Clinician Engagement on the New York CDRN. She also leads the patient engagement work for the development of a Collaborative Chronic Care Network (C3N) for Cystic Fibrosis. 

At Medicine X 2015

Sunday, September 27 2:05 pm (LK 120)
Running down a dream: experiences building peer-produced learning health systems
A collaborative chronic care network (C3N) is a peer-produced learning health system. It is a platform that facilitates collaboration among patients, clinicians, and researchers to produce information,... Read more
Saturday, September 17 11:30 am (Upper Lobby)
A partnership focused on what we have rather than what we need
“The terror of sickness and old age is not merely the terror of the losses one is forced to endure, but also the terror of isolation. As people become aware of the finitude of their life, they do not... Read more
Sunday, September 18 1:30 pm (Lower Lobby)
The collaborative process of creating the cystic fibrosis care model of the future
Imagine a system of Cystic Fibrosis care in which the average patient health-related quality of life is no different from that of the general population, in which people with CF and their families are... Read more
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