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Page 349 – Stanford Medicine X
Dianne Johnson
Patient Investigator, SIMBA

About Me

Dianne’s love of coffee, walking the dog, gardening and hiking are a reflection of living in the Seattle area all her life. Her career path has included time as a programmer for the Boeing Company, self employment as consultant and the past 15 years as an Outreach Minister in a Lutheran congregation - advocating for malaria work in Africa and on behalf of the homeless community in Renton, leading teams to Tanzania, organizing service event One wouldn’t imagine that participating in a Women Walk for the Cure event would lead to a role in a study grant for Breast Cancer Imaging. Dianne had participated to mark the movement of being a cancer patient to a celebration of life. At the walk there were fliers announcing a focus group the following week concerning imaging post treatment. Out of gratitude for the benefits received by the participation of patients before her, Dianne agreed to participate. It was a pleasant surprise to later be asked to work as a patient investigator if the grant proposal was accepted. In the fall of 2013 the adventure began as fund was granted and the work of including patients in that work was to be explored. In the past year the role of Patient Investigator has grown to include informing other team members about experiences from a patient perspective, participating in the planning of upcoming meetings and focus groups, attending focus groups and being an advocate for those who have shared their stories and to presenting findings to the Advisory Board and Stakeholders Board. It has been a great experience to use the many skills learned in other jobs and combine them with work that will shape the medical care for women post treatment.

At Medicine X 2015

Sunday, September 27 11:35 am (LK 120)
Journey of a patient partner in research: an example in a PCORI funded project
In 2015, the Patient Centered Outcomes Research Institute (PCORI) will spend $460 million on research of importance to patients and caregivers. All awardees must have a component of patient engagement... Read more
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