Stanford MedicineX epatient delegate 2015. Mom to two daughters, Alexandra and Aria, ages 7 and 6. Alexandra was born with Heterotaxy Syndrome, Complex Congenital Heart Defects, and Abernethy Malformation. Alexandra has undergone 5 heart surgeries and an abdominal surgery all before the age of 4. Passionate about advocacy for medically complex children, and the parents/caregivers that care for these children. Tweets, blogs, Facebook's her story daily. Not only is her story about her medically complex daughter, it is also about her journey as a Mother and how she deals with the ins and outs of the medical system.