The Age of #CyberWoke

Data Privacy, Transparency and Ethics in the era of Facebook, Cambridge Analytica and Data Breaches. A workshop to understand consumer rights.

Recent political movements in the United States have collectively increased a push for public accountability and consumer involvement in a variety of public domains in unprecedented ways. Demands for social justice, inclusivity, transparency and fair play in workplace practices have begun to transform entire industries through the #metoo and #timesup movements. In the aftermath of the Marjory Stoneman Douglas school shooting, survivors organized a push to increase regulation of firearms in the #neveragain movement. And recent disclosures by Facebook regarding its use of personal data and widespread lack of awareness by the public of how such practices may violate individual privacy have galvanized members of congress and the public to seek increased accountability and consumer involvement in how personal data is collected, shared and used by such companies.

In this special Medicine X Everyone Included™ workshop, we explore the benefits of consumer involvement in defining digital privacy, data transparency, and accessibility rights, barriers or roadblocks to such involvement, and the overall value that might be derived from such efforts if successfully implemented in the US health care system.