epatient-cover

Meet our 2017 Stanford Medicine X ePatient contributors

ePatient and caregiver contributors are vital to our program each year at Medicine X. They are either invited directly by our program development staff or selected to participate in our ePatient Scholar program. The Stanford Medicine X ePatient Scholar program is both a chance to attend the 3-day conference, and an opportunity for learning and growth as an ePatient, providing both educational opportunities and project-based learning throughout 2017.  The Stanford Medicine X ePatient Scholarship slots are allocated for speakers (Storyteller & Presenter Track),  creative problem solvers in the IDEO Design Challenge (Design Track), entrepreneurially-minded (Entreprenership Track) and those interested in partnering with research organizations (Everyone Included Precision Medicine and Research Track). This year we also added an additional Emerging Leaders Program track partnering patients and health care students together.

0
ePatient Scholarships and Awards fall 2017
0
Student Scholarships and Awards fall 2017
0
Community "CITIZEN ACCESS" Lottery Passes
0
Scholarships and Awards in 2017 (includes 51 ePatient and Student Scholarships in spring 2017)

Everyone Included™ Emerging Leaders Track

Mutual respect, valuing the expertise that each person brings to the health care conversation, and coming together on equal footing are at the heart of true collaboration and participatory health care practice. How might we promote Everyone Included™, and confront misconceptions and misperceptions about patient and provider personas that are barriers to effective communication and collaboration? Finding the answers to these questions through co-creation with patient and health care student teams is the goal of this Everyone Included™ Track.

When one shares their experiences and feelings, it creates an opportunity for dialogue whether it be in concurrence or discord. The resulting exchange engages us to discover answers that standalone facts cannot illuminate — who, what, when, where, why, and how.

Six teams of one ePatient and one health care student each will spend two months sharing their lives with one another — triumphs and failures, appointments and side effects, personal and work lives — in order to learn more about what it’s like on the other side.

cashin

At 24, I was diagnosed with a neuromuscular disease and had major surgery, where I was placed in the Intermediate ICU for recovery. After becoming a mom, and trying to maintain “normalcy” with my chronic health conditions, I began to look for information to support mothers struggling with balancing their pressing health needs, amidst the demands of raising young children. My vision of healthcare is to increase the involvement of patient during the diagnostic, treatment, and recovery processes. Engaging patients and caretakers during discussions for all three phases adds value to the well-being of the patient in many ways, including improving quality of care. One of the biggest barriers between patients and providers is trust. In my experience, providers have lacked the desire to understand how much I know about my medical condition, therefore brushing aside my opinions. I believe trying to work on empathy training with the provider, in order for the provider to better understand the patient perspective, is key to leveling out the relationship between the patient and provider.

ji

I consider myself as a patient, advocate, journalist, and social science researcher.I want to learn from people with different experience, like health professionals and entrepreneurs. By attending Medicine X, I want to learn how patients can partner with professionals to improve their own quality of life and to advocate for their social rights, like social security protections, accommodations in the workplace, and how to use technology to improve conditions as well as productivity. I live with muscular dystrophy and the biggest problems are mobility and respiration. I don’t enjoy being limited by the Chinese stigma that disabled people should stay at home. So I raised funds, studied abroad and traveled to 4 continents, over 20 countries. I blog about my travel and become the first disabled Chinese traveller recognized by LP. I write on tourism, and more importantly, on a healthy and positive lifestyle. I travel to advocate for accessibility and better care.

alexis

As a bereaved mother I come to Medicine X to explore solutions for how we support families after the death of a child. How can a participatory healthcare system cultivate a caring and supportive community around those in grief? The cultural status quo is that ‘babies don’t die’. Because babies don’t die, grief should be invisible and dissipate quickly. The Madness of Grief comes from silence and isolation. I envision a cultural shift in the way the bereaved are supported. Participatory health care has to be an integral and supportive part of the change.

doug

I became homebound at 21 years old. Even a series of specialist medical workups failed to identify what was wrong or what might help me. After the doctors struck out, I tackled my problem like a scientist. I spent the next 11 years confined to a hospital bed in my living room. During that time, I partnered with world experts, identified my rare autonomic-adrenal disorder, developed novel treatments to keep it at bay as best we could, developed new uses for five existing prescription drugs, and eventually developed the concept for the two innovative adrenal surgeries that helped restore my health.

amy

I work with editors and patients to build a path for patient review at the BMJ where I am a research fellow and I am part of the Patient Panel.  I am working with guideline developers to change guidelines to be dynamic and include patient-reported outcomes and shared decision-making. I inspired med students from low-resource countries to publish, apply for places, write grants for social care, shared decision-making and user-centered health. Recovering from a brain injury and acquired learning disability is not easy but brain injured persons are not stupid–they are impaired and in many cases strategies and solutions where patients join with technology can change lives and rebuild identity and function. I am a patient, student, reasearcher and clinician so am interested in resolving barriers for all perspectives.

jasmine

At the age of 22, I have done many things in my short life. I am a college grad with a B.S. in Chemistry, I am a future pharmacology graduate student, and I have had Parkinson’s disease for the past 8 years.

I was 14 when the disease hit me and the following year I discovered my passion for chemistry. As my physical health declined and I spent more and more time in the hospital, my interest in science and desire to take my health into my own hands grew. I take pride in coming up with solutions to my complex health care needs by bringing the latest scientific research with me to my appointments, as well as sharing that knowledge with the PD community in layman’s terms so we can all be educated patients. I do so via social media and my youtube channel.

I have always said that my Parkinson’s is an over-achiever. It has continued to break the rules, progressing faster than anyone expected and I have developed the rare and life threatening complication of gastroparesis and digestive tract paralysis. I have a feeding tube for medication and a central line for TPN, which is intravenous nutrition. Frustrated with the lack of medical options for me, I keep finding new ways to challenge the status quo by bringing in some innovation and science to secure my quality of life and the future ahead of me following my passion for medical research and the patient community.

Design Track

The Design Track provides an opportunity for ePatients and caregivers to serve as the inspiration for and nexus of a patient-centered design project. Successful applicants will work with a designer from IDEO, an award-winning global design firm that takes a human-centered, design-based approach to solving problems. Scholarship recipients will be challenged to—in one day prior to the 3 day conference—brainstorm, innovate and create a solution to a self-identified problem using the collective knowledge and creativity of a team of fellow conference attendees. Those in the Design Track also will provide a patient voice to conference proceedings, while sharing and disseminating their knowledge to educate and inspire others.

bloomquist-crop

I define good design as something that works for everyone (or can be easily modified) who currently uses the system or will use the system in the future.

buchanan

Good design is something that works and achieves the intended outcome. However determining what a good outcome is, truly defines good design. In health care, solutions exist within a complex system, a well-designed solution in health care should look beyond immediate users toward patient outcomes.

For 10 years, I helped companies design technology solutions to organize, analyze and disseminate competitive intelligence data, to improve strategic decision making. After the birth of my son and his extended hospitalization, I transitioned into studying for my PhD in health services research.

farrell

Good design should aid function, comprehension, and usability. As Dieter Rams said less design is good design. This is true of any type of design. I think that in many scenarios, good design has some adaptability. In some case this “adaptability” is closely connected to “timelessness”.

At RISD my education was designed focused. I majored in illustration but crossed into graphic and industrial design. I have experience in production design working on commercials and print jobs. I would like to learn more about interaction and systems design within health care.

When I became sick, I was a freshman in college. Life plans were in question. I resolved to give myself as many options as possible. As I gained physical strength, I rediscovered the goals that mattered most. As I developed my craft, I was learning to manage my disease. I graduated with honors in 2016

louwers

We may notice good design as aesthetically pleasing (in the case of product design) but we barely notice that good design also brings out the best in us. It achieves this by making a task easier and more intuitive. Subtly, good design helps us feel we can accomplish things with minimal effort.

I visited the emergency room many times with Ahmad when he was an advanced cancer patient. We often found the experience draining, frustrating, and dehumanizing. I would like to brainstorm, via design, how to make the ER easier for advanced cancer patients.

mackay

Good design is both useful and aesthetically attractive. It fills a gap or perceived need for the user/community, incorporating feedback from a variety of individuals in different roles who collaborate to ensure the end result is the best possible. It is new or significantly improved over other creations.

Storyteller Track

Humans connect with one another through narrative. When one shares his or her experiences and feelings, one creates an opportunity for dialogue whether it be in concurrence or discord. The resulting exchange engages us to discover answers that standalone facts cannot illuminate — who, what, when, where, why, and how.

As a Medicine X Storyteller, ePatient delegates will be tasked with sharing not only their stories, but those of the Medicine X community. Before, during, and after the conference in September, delegates will work independently and in conjunction with Medicine X affiliates as members of a media corps. Delegates are to use traditional, digital, and emerging media tools to tell stories relevant to Medicine X’s audience.

aspell

Storytelling is a way to reveal the real human emotions behind an idea/issue. In an area like health care, I believe it is vital to share the patient story and experiences so that all stakeholders: fellow patients, entrepreneurs and healthcare providers can better understand those the system serves.

burtchell

Storytelling means taking your audience on a journey to a place they’ve never been–or giving them a new perspective on something they thought they knew well. Storytelling is the gift of making others feel the world around them through your words, your video, your art.

mcGallard-cropped

I’ve always considered storytelling to be the ability to translate someone’s experience and getting the reader the empathize with a situation they would otherwise have no other ability to relate to. A really great example in the realm of health care is the essay “A Sudden Illness,” by author Laura Hillenbrand.

sue-wah-cropped

Storytelling means sharing an experience or and adventure (narrative) with others. It is a way to “break the ice “or entertain. To share knowledge and common experiences. It is a way to connect with others. Often I think of finding common interests or values.

wexler.jpg

Due to a heart defect, I had oxygen levels in the high 60’s my first 6 years of life. My parents were told I would lag academically, and not to expect much. I graduated college with a nursing degree and became a pediatric cardiac ICU nurse at the very hospital, on the very unit that saved my life. Full circle.

Precision Medicine and Research Track

ePatient Delegates in the Everyone Included™ Precision Medicine & Research Track will explore how personalized data influences heath care decision making and issues surrounding data collection and dissemination.

IMG_2549

A 2017 Endocrine Society study found while 80% of endocrinologists have treated a trans patient, 81% of them never received any training for trans patients. If more health data exists within community conversations than med school, then how can providers safely treat? It is a patient’s duty to share health data to advance research in unknown areas.

henning-cropped

I believe that patients need to be involved in the entire research process, from start to finish. This includes designing the study, selecting methods, collecting the data, and sharing in the dissemination of study findings. My perspective is heavily influenced by the mission and values of PCORI; the patient is our true north.

salmi-cropped

As a person living with cancer, precision medicine absolutely pertains to my future health. Last spring the WHO released a new classification of central nervous system tumors, which included new protocols related to unique biomarkers found individual tumors.

The National Brain Tumor Society (NBTS) is great example of an organization connecting researchers with stakeholders. NBTS generated a community survey seeking input on research priorities for the brain tumor community. The results of the survey were shared back with the patient community and are used by NBTS when prioritizing research funding.

gabel-cropped

I believe patients should be at the center of the research process. As a valuable stakeholder, the patient role should extend into the design, implementation and data analysis stages of research. Patients’ insights should guide research so that it is wanted, has more credibility and includes a plan of action for dissemination and community impact.

Presenter Track

The purpose of the presenter track is to provide an opportunity for ePatients to attend and speak at the Stanford Medicine X conference. By providing a patient voice to the proceedings, scholarship recipients will help share and disseminate their knowledge to educate and inspire others.

carter-cropped

I’m grateful for my mentors, they helped me understand the evolving digital health ecosystem much faster. I’m also grateful that I’ve been given the opportunities to network with some of the world’s greatest minds in health IT and earn credibility, which has enabled me to advocate more powerfully.

julia_kg-cropped

My twin sister, best friend and other half recently experienced a life-threatening medical crisis. While she fought for her life, I was her relentless voice. This role was terrifying. I made sure doctors fought with all their might to restore my sister back to her powerful, funny and bossy self.

prior-cropped

Aristotle said our purpose comes from where our greatest skill meets the world’s greatest need. My skill as a journalist meets the world’s need to tell about my disease myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which affects 1 million Americans and has no approved treatments.

sharpe-cropped

There was an incredible outpouring of love and support when I was diagnosed with Stage IV melanoma. Having cleared multiple hurdles to get on clinical trials and recover, sharing my experiences will help pave the way for the next generation of patients/caregivers on trials and immunotherapies.

wilson-cropped

I am most proud of raising my younger sister Adrienne from the time she was eight years old until she died from primary liver cancer at the age of 15. My second proudest achievement is starting a nonprofit to honor her memory: Blue Faery: The Adrienne Wilson Liver Cancer Association.

Entrepreneurship Track

Just as end users are uniquely equipped to discover a product’s design flaws, those who have experienced the medical system as a patient, caregiver or provider see opportunities for change — and a market. Drawing on the best traditions of Stanford — an incubator of Silicon Valley — Medicine X encourages combining personal experience with business acumen and innovation.

Medicine X has a history of inspiring new businesses and changing the marketplace. Steven Keating, a 2015 Medicine X ePatient, was named to Forbes’ list of 30 under 30 entrepreneurs fixing the health care system while researching the genome of his own brain tumor and pushing for patients to have greater data access to their own records. ePatient-in-Residence and MedX Executive Board Member Michael Seres’ health care technology company 11 Health launched the first-ever connected device and app to monitor ostomy pouch output.

sangeeta-cropped

As an oncology nurse at Stanford, The Mayo Clinic, and UCSF, I saw that while my patients were fighting cancer, they had little options when it came to side effect management, psycho-social support, and resources to “survive” life as a cancer patient.

The problem I am solving is a lack of connected, effective, and trustworthy sources for symptom and chronic care management using Integrative Medicine (IM) treatment modalities.

oberding-cropped

In 2008, I was diagnosed with Rheumatoid Arthritis. I went from being an active women with a career and family, to barely being able to get out of bed or care for myself or my family. My experience tracking and quantifying my own flare-ups combined with machine learning became the basis of our work.

nuzi-cropped

I have Crohn’s Disease and while having to manage my own chronic illness, I’ve experienced how hard and frustrating it can be to collect and piece together all my health data simply to send to a different doctor or even view myself. There should be one place for me to access all my health data. I want to create a mint.com for Electronic Health Records centered around the patient, so they can access all their data in one place.

hutchison-cropped

I have a cross-disciplinary background: being involved in the arts in high school; studying communications, literature, and international politics at university while studying in four countries; working in the startup innovation ecosystem; practicing yoga; and becoming my own personal health advocate.

ePatient Advisors

 

Each year Medicine X provides scholarships, travel, lodging and important leadership roles for patients to advise and mentor our ePatient delegates before, during and after their Medicine X experience. We are proud to have a group of outstanding ePatient program advisors join us for 2017.

flygare-cropped

Julie Flygare, JD is the founder of Project Sleep, a leading narcolepsy spokesperson, published author, blogger and runner diagnosed with narcolepsy and cataplexy in 2007. She received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009.

leilani-cropped

Leilani Graham is a four time cardiac arrest and four-time open-heart surgery survivor, former Implanted Cardioverter Defibrillator owner, Heart Transplant Recipient, and Avascular Necrosis endurer. She is a Stanford Medicine X ePatient Scholar and TEDMed Frontline Scholar. Leilani spends her time as a public speaker, patient advocate, performer, techie, and writer.

jameson-cropped

Elizabeth Jameson is an artist specializing in the intersection of art and science. She transforms her brain scans to spark curiosity and conversation around what it means to live with an imperfect brain and body.

ekg-cropped

Emily Kramer-Golinkoff, a 31-year-old with advanced stage Cystic Fibrosis, is Co-Founder of Emily’s Entourage and an internationally recognized patient advocate and speaker.

Named a White House Precision Medicine “Champion of Change,” Emily has given talks at The White House, TEDx, University of Pennsylvania’s Annenberg School for Communication graduation, and Stanford University’s Medicine X conference. Her story has been featured on CNN.com, People.com, Time.com, Yahoo Health, AOL, CBS’s The Doctors, and more. She is the recipient of the Global Genes 2016 Rare Champion of Hope for Advocacy Award.

seres-cropped

Michael Seres was diagnosed aged 12 with the incurable bowel condition Crohn’s disease. In late 2011 he became the 11th person to undergo a small bowel transplant in the UK at the Churchill Hospital in Oxford. He started blogging about his journey through bowel transplantation. His blog has over 95,000 followers, and he uses social media to develop global on line peer to peer communities covering more than 20,000 patients.

staley-cropped

As an ePatient, I will work tirelessly to motivate, educate, and inspire others in the cancer communities to achieve their best health. By sharing my personal experiences with others facing a cancer diagnosis, I will do my best to improve their treatment and survivorship experiences. I will reach out to all cancer community partners including health care providers, pharma companies, and medical institutions to ensure everyone experiencing a life touched by cancer will always have the best resources and support available to them.

tenderich-cropped

Amy is the Founder and Editor-in-Chief of DiabetesMine, a leading online information destination for people with diabetes and one of the top health blogs around the country and the world. As of January 2015, DiabetesMine became part of San Francisco-based Healthline Networks, where Amy now also serves as Editorial Director, Diabetes & Patient Advocacy.

liza-bernstein-cropped

Liza Bernstein is NED (No Evidence of Disease) after three primary cancer diagnoses. She uses Twitter and social media to extend her patient advocacy work by helping others become engaged/empowered patients and partners in their own care.

campos-cropped

Hugo Campos is a thought-­leading crusader in the e­Patient movement. He is passionate about participatory medicine, connected health, and patient empowerment through the use of technology. After fainting on a train platform in 2007, two misdiagnoses, and the urgent implant of a cardiac defibrillator, he realized how crucial it is for patients to fully engage in their own health care. Campos advocates for the rights of patients with pacemakers and implantable defibrillators to gain electronic access to the data collected by their devices.

fagan-cropped

Lawrence Fagan’s research interests have covered a number of clinical informatics areas, including: medical expert systems, decision support systems concentrating on temporal reasoning, knowledge acquisition of clinical guidelines, user interface design including spoken and gesture-based interfaces, and semantic information retrieval of medical knowledge. He helped run the Biomedical Informatics Training Program at Stanford University for nearly thirty years.

Invited ePatient and Caregiver Speakers

Each year Medicine X provides scholarships, travel, lodging (when needed) to patients and caregivers who we invite to speak in core theme topic areas of our program. We would like to acknowledge the expert contributions of these individuals to our program here.

eric-amador-cropped

Eric Amador, Navy Veteran and former security chef to Presidents Obama and George H.W. Bush. He’s presented at Medicine X 2016 talking about his experience adapting to life with ALS.

toni-amador-cropped

Toni Amador is a caregiver and an ALS advocate. She appeared with her husband Eric Amador in Medicine X 2016 to share their experiences struggling to receive care after Eric was diagnosed with ALS.

melany-baldwin

Loving mother & wife, entrepreneur, executive and ever-grateful supporter of BJ Miller and Zen Hospice Project in San Francisco, CA.

bellatti-cropped

Tonya Bellati is a ten year survivor of advanced Triple Negative Breast Cancer. She participates in several online cancer support groups and finds hope by communicating with other with the same diagnoses. Tonya is a wife, mother of two teenagers and enjoys volunteering in her community.

carbajal-cropped

I’m a photographer that can’t carry a camera anymore… but I’m still making it happen! Two years ago, I initially gave up my passion for photography after I was diagnosed at 26 years old with an incurable neurological disease called ALS… my mom has ALS too. We’re slowly becoming completely paralyzed. Yes it sucks… this disease is stealing our strength, but not our happiness.

I hope those who view my work, will better understand this different perspective I’m experiencing. A perspective in which  no one is intimidated by your physical appearance and eager to have a conversation with you.

bodo_hoenen

Bodo is a social entrepreneur working on grand challenges by using open innovation. His projects include empowering youth to take on the global sustainable development goals, and providing education to the 250 million out of school children. He recently used the same open innovation approach to enlist the help of hundreds of experts to build a robotic assistive arm for his recently paralyzed daughter.

hooman-cropped

Hooman Noorchashm MD, PhD is a physician-scientist. He is an advocate for medical ethics and women’s health. He and his 6 children live in Pennsylvania.

schlicting-cropped

Diagnosed at age 19 with Behcet’s disease, a rare autoimmune condition, Emily Schlichting decided to become an activist for health insurance coverage for chronically ill patients like herself. In 2011 she testified before Congress about the Affordable Care Act (ACA), and her work eventually led all the way to the department of Health and Human Services, where she has done work to confirm FDA Commissioner Robert Califf and negotiate the 21st Century Cures Act. Most recently, Emily served on the Democratic staff of the Senate Health, Education, Labor and Pensions Committee where she worked to defend the ACA.

ashley-elliot

Ashley Elliott was born in raised in Garrett County, Maryland. While in high school, Ashley turned to drinking and drugs to escape her feelings. She spent over 10 years battling the disease of addiction. On December 28th, 2012, she would use any mind or mood altering drug for the last time. Ashley has experienced everything from being arrested, domestic violence, rehab, and halfway houses. She is currently a Psychology Major, emphasizing in Counseling and Addictions. Since entering college, Ashley has earned honors such as being on the Dean’s List, and becoming a member of Phi Theta Kappa Honor Society.

joe-cropped

Joe Riffe is also known as the Prosthetic Medic. He literally fell into his role as an ePatient and amputee activist when he fell 110 ft off of a waterfall. After several surgeries to save his limb, Joe was told that his only option was to have the knee and ankle fused. He refused, fired that doctor, and voluntarily had his left leg amputated above the knee in January 2012. Joe is also a chronic pain patient dealing with both physical and neurological pain from his amputation. As a paramedic Joe is on the front line of the opiate epidemic in Central Kentucky.

johnson-cropped

Britt Johnson is a spondyloarthropathy and rheumatoid arthritis ePatient and blogger of TheHurtBlogger. Britt was a 2012 Medicine X ePatient scholar who was selected to give a talk about her experiences on the Stanford Medicine X main stage in 2012, participated in the 2013 IDEO Design Challenge, and has become an invaluable advisor to Medicine X.

alice-wong-cropped

Alice Wong is a San Francisco-based night owl, tv watcher, cat lover, and coffee drinker. She is the Founder and Project Coordinator for the Disability Visibility Project™ (DVP), a community partnership with StoryCorps and an online community dedicated to recording, amplifying, and sharing disability stories and culture created in 2014. Alice is a co-partner in #CripTheVote, a nonpartisan online movement activating and engaging disabled people on policies and practices important to the disability community.

annie-kg

Annie is a graduate of HMS School for Children with Cerebral Palsy and Haverford High School. She currently juggles five jobs! She works as an office assistant at JEVS Human Services and CareerLink. She is an ambassador at Trader Joe’s, a volunteer at HMS School, and both a participant and intern at the Center for Creative Works, an art center allowing individuals with intellectual disabilities to express their creativity. In addition to her busy work life, Annie is a founding member – and the honorary president – of Emily’s Entourage, a nonprofit organization that fast tracks research for rare nonsense mutations of Cystic Fibrosis.

hicks-cropped

After receiving a vague diagnosis, Melissa Hicks went to the internet to learn what she could, and find some support. What she found was very little information related to her condition. In 2013, she began blogging about her experience as a patient in an effort to make more information and support available online to people who shared her “non-diagnosis.” That was the start of her patient advocacy experience. Since then, she has become very active on social media and online patient communities, and her focus has expanded beyond her original diagnosis to include chronic pain and illness in general, and improving patient experience and outcomes. That interest in patient experience and outcomes has led her to participate in conferences, travel to Washington DC to meet with her members of congress, and serve as a patient peer reviewer for The BMJ and PCORI. She is also a Stanford Medicine X ePatient Scholar. She finds all of her advocacy work very rewarding, and thinks of it as “making lemons into lemonade,” taking an unpleasant situation and making it into something positive.

Emerging Leaders Track – Health Care Students

Mutual respect, valuing the expertise that each person brings to the health care conversation, and coming together on equal footing are at the heart of true collaboration and participatory health care practice. How might we promote Everyone Included™, and confront misconceptions and misperceptions about patient and provider personas that are barriers to effective communication and collaboration? Finding the answers to these questions through co-creation with patient and health care student teams is the goal of this Everyone Included™ Track.

When one shares their experiences and feelings, it creates an opportunity for dialogue whether it be in concurrence or discord. The resulting exchange engages us to discover answers that standalone facts cannot illuminate — who, what, when, where, why, and how.

Six teams of one ePatient and one health care student each will spend two months sharing their lives with one another — triumphs and failures, appointments and side effects, personal and work lives — in order to learn more about what it’s like on the other side.

adrienne

I recently designed and completed a 1-year Albert Schweitzer Fellow project using an art-based, behavioral intervention to support diabetes knowledge and exercise participation among Latinas 45+ with diabetes in Northeast Los Angeles. I believe that the lack of diversity in the nursing field is particularly damaging to a California population that is 40% Hispanic/Latino. Latinos/as represent only 12% of the nursing workforce and Latino/a doctoral researchers represent approximately .5% of the 1% of nurses who pursue doctoral education. As a Latina pursuing an advanced scientific degree, I am familiar with the unique challenges we face, including being 1st generation college students and managing competing family duties. As a Latina nurse, I have often been pulled into a room by a Latino patient who has noticed the lack of licensed, Latino health professionals on the floor and wants me to explain their issues to them in Spanish or just be near them to provide a comforting, “familiar” face. Often I hear details or address concerns that were never verbalized to the other staff members by these patients. While important, it is not enough to provide cultural education to nursing students and expect that they will be accepted and trusted by the diverse populations they serve. We must find a way to move beyond basic cultural diversity literacy supported by the post-modern approach and move into a space that supports individual encouragement and empowerment (for both the patient and provider).

robert

I am currently a candidate of Lipscomb`s University Masters in Healthcare Informatics. Thus far, I have learned a lot about the application of technology to healthcare, but I’m certainly motivated to learn more about the experience from a patient’s point of view. I want to be able to extrapolate new ideas and innovative approaches to solving the needs and problems that patients are encountering within their care process, which is why I value the opportunity to engage with patients. My vision is to create advanced analytics systems which improve the quality of care individuals receive. In the long-term care industry, I see many opportunities to make my vision a reality. And to effectively do this, I understand that data must be attained and analyzed to assess the best approach to reach optimal levels of quality. I always preach personalization, and using technology, I plan to improve the personalization of care through data driven models, and client relation platforms.

shari

My vision of healthcare is one in which all people regardless of race economic status, gender, or medical condition is able to receive their comprehensive and compassionate care from their healthcare providers. My vision does not include health disparities or premature deaths due to lack of access to care. I am very intrigued with the idea of establishing empathy as a two-way street between the patient and the clinicians. There is always a focus on how caregivers view and subsequently treat patients to put their needs first, as it should be. But I think it’s an interesting concept that empathy can be generated from the patient to the clinicians as well. This mutual understanding could deepen the bond between them as they regard each other with mutual respect for their individual complexities. (USC doctoral candidate in occupational therapy)

lerly

I strive to use my energy and passion to be a voice for vulnerable populations and future doctors. I believe medical students are in a special position to make a difference in healthcare. One key barrier that I believe inhibits the opportunity to build trusting relationships between patients and healthcare providers is the incentivization and infrastructure of the healthcare system. The doctors and politicians of today look to us idealistic hopeful future doctors to solve the problems of our current healthcare system. Not yet normalized to the frameworks of thinking of practicing physicians, we are poised to come up with some of the most creative solutions!

schmya

As a student at the Florida State University College of Medicine, I have been taught from day one that as a physician, I am to become a partner with all of my patients. My aim as a physician is not to tell my patients what to do. My aim is to teach my patients about their disease, to work with them as they make decisions to promote their health and wellness. My vision for healthcare allows everyone access to it and regulates drug and insurance companies. People, should not do not have to decide whether to have a roof over their head or their prescription drugs. People should not have to be so fearful the huge bill they will receive when they seek help from medical professionals – this causes people to delay seeking medical treatment only worsening their condition.

tom

I hope to learn how I, as a pharmacist, can make the biggest difference in my outreach and advocacy roles. I want to be able to introduce patients and caregivers alike to new technologies that can help solidify our relationships with those patients and those patients’ understanding of their conditions and treatments. Healthcare as a field not only needs to embrace emerging technologies but also needs to be innovators of those technologies. I believe this is where we will see the greatest change and improvement.