Hugo Campos*

Larry Chu, MD

Jamia Crockett

Nick Dawson

Gilles Frydman

Britt Johnson

Sarah Kucharski

Christopher Snider

Hugo Campos* (Alumnus, non-voting) is a blogger and patient advocate who is passionate about participatory medicine. He has been featured on NPR and has spoken at TedX. Campos also advocates for the rights of patients with pacemakers and implantable defibrillators to gain electronic access to the data collected by their cardiac devices. A native of Rio de Janeiro, Campos moved to the United States in the early ‘90s to study graphic arts.

Larry Chu, MD, MS is a practicing physician who runs the Anesthesia Informatics and Media (AIM) lab at Stanford University. He is an associate professor of anesthesia on the faculty of the Stanford University School of Medicine. Dr. Chu teaches two courses at Stanford University, Engage + Empower Me (a patient engagement design course) and Design for Health (applying design innovation to improve healthcare). He collaborates with researchers in simulation and computer science at Stanford to study how cognitive aids can improve medical team performance in a crisis. Dr. Chu also has an RO1-funded NIH-funded clinical research laboratory where he studies opioid analgesic tolerance and physical dependence. Dr. Chu is the Executive Director of Stanford Medicine X.

Jamia Crockett became a patient guide for Novartis in 2012 to share her experiences as a patient living and managing Multiple Sclerosis. As a patient guide, she has completed over a dozen live speaking engagements, from Pennsylvania to North Carolina. Becoming an ePatient was crucial; she is creating a medium to have meaningful interactions with patients, caregivers, and the general public.

Nick Dawson MHA, is a proponent of patient empowerment and autonomy in healthcare. Nick is the Executive Director of the Johns-Hopkins Sibley Innovation Hub. In the Innovation Hub he helps lead a human-centered design team to tackle both simply and complex challenges for patients, staff and providers. Currently, he also serves as the president of the Society for Participatory Medicine. His past roles include hospital leadership of departments including strategy, finance and operations.

Gilles Frydman is a pioneer of medical online communities. He is the founder, in 1995, of the Association of Cancer Online Resources (ACOR), which became the largest online social network for cancer patients, composed of nearly 200 support groups for individuals with cancer. ACOR has served over 600,000 cancer patients and their caregivers to optimize patient care, for which Frydman was named by CNN in 2008 as one of six Empowered Patient’s Health Heroes. In 2012, he co-founded with Dr. Roni Zeiger Smart Patients, an online community where patients and caregivers affected by complex illness learn from each other about treatments, challenges, and how it all fits into the context of their experience.

Britt Johnson chronicles the absurdity of living with chronic disease through her blog and related social media platforms, “The Hurt Blogger.” She is a writer sharing honest experiences of life with chronic pain and illness while always looking for the humor in life. She works as a consultant with a wide range of health groups to ensure patient input is being incorporated to better shape the future of healthcare. Having lived with autoimmune arthritis since age seven, she aims to change the perception of ‘arthritis’ while challenging what is possible by training for her childhood dream of climbing Denali (Mt. McKinley). Having lived in Texas, Alaska, and Montana, she currently resides in Los Angeles, CA with her husband and one very stubborn cat, and works for Stanford Medicine X as the Community Outreach Coordinator. Follow her on Twitter: @HurtBlogger.

Sarah E. Kucharski is a consultant, public speaker and advocate fostering the patient voice in medicine through storytelling, social media and design thinking for innovation. She is a rare disease patient with a complex medical history — among other events, she survived a stroke at age 27 — which motivated her to share her experiences and found a peer-to-peer support group for patients who share her diagnosis. Perhaps better known as @AfternoonNapper, Sarah has been part of Medicine X since its inception and serves as Coordinator of ePatient Programs. She has a B.A. in journalism, a M.A. in liberal studies, and a certificate from Columbia University’s Narrative Medicine program. She lives in North Carolina.

Christopher Snider is a type I diabetic and blogger who focuses primarily on his life with type 1 diabetes, sharing first-person experiences with this disease using humor and (hopefully) objective observations. He is a two-time Medicine X ePatient scholar and also produces the podcast JustTalking.