JERRY MATCZAK EVERYONE INCLUDED PLENARY SESSION
Simon Denegri, OBE and Kristen Honey, PhD to keynote
Traditional clinical research begins with investigator-initiated concepts that translate to patient participation at the bedside or in the clinic room. How might we shift our focus from the existing research model towards a more collaborative one? What shifts in ways of thinking and doing are needed to create opportunities for patients and caregivers to contribute meaningful expertise together in clinical research? Learn how researchers, patients and the public share expertise as they partner through Everyone Included™ co-production in medical research.
In the changing landscape of Big Data, Artificial Intelligence, patient-generated data, and even self-experimentation: how are the boundaries of research and collaboration being redefined for the 21st century? In the shifting sands of research, is there room for patients themselves to lead research efforts? Is co-production in research defined by traditional roles, or by the expertise people on the team have to contribute to the effort? Is self-experimentation research? Are such efforts bound to the same ethical and scientific standards as traditional research? Is there a role for greater collaboration between patients, clinicians and the larger scientific community? And in these collaborations, who should lead and who should follow?
In this keynote co-presentation, Simon Denegri, OBE and Kristen Honey, PhD will take the stage to present perspectives on patient collaboration and co-production with researchers in medical research.
ABOUT THE JERRY MATCZAK EVERYONE INLUDED PLENARY SESSION
Eli Lilly & Co. lead consultant Jerry Matczak, understood the power of social media and had the openness to listen and meaningfully engage with the activist patients he found there. Jerry was an early supporter of Medicine X and our Everyone Included™ way of seeing the expertise all stakeholders bring to co-create solutions to health care problems. He described himself as a “respectful fan” of Medicine X and the ePatient movement.
Our goal in creating the Jerry Matczak Everyone Included™ Plenary Keynote Session in his name is to honor important discussions at Medicine X that raise awareness about Everyone Included™ and inclusive co-production in advancing research, education and clinical care closer to the shared vision of the Medicine X community.
Matczak passed away suddenly in 2017 at age 54. Friends and supporters of Jerry have organized a social action campaign, #belikejerry, to support patient and caregiver partnership in health care