medicine x and white house ostp | engaging participants as partners in research

thank you–and a call to action

1. Relive the event

We trended #1 on Twitter in the US during our June 2, 2016 event at the White House, and we’ve collected some highlights of the day in Storify #ICYMI.

2. Inspiring images

View some select photographs from our event at the White House on Engaging Participants as Partners in Research, co-hosted jointly by the White House OSTP and Stanford Medicine X.

3. Share your views

Please consider spending 8-10 minutes to participate in a research study aimed at understanding views on partnering with participants in research.

Add your voice to the conversation

Stanford Medicine X is working with Christopher Snider, host of the Just Talking podcast series to create a special podcast episode of our Everyone Included™ web series focused on this event. We’d love for you to add your voice to the conversation!

4. Leave a message, tell a story

Medicine X is creating a special audio podcast episode to share the big ideas, needs and offers of help that resulted from our White House event. We need your help!

  • Why should we engage participants as partners in research?
  • What was your major take-away from the day’s event?
  • Do you have any big ideas to share?
  • What are the opportunities and challenges you see?
  • How can others help you turn your idea into actions?
  • Please make sure to say your name and where you’re from so we can properly credit you during the podcast.

Add your voice to the conversation and dial our Medicine X call-in line to leave a message for our Everyone Included™ guest podcast host, Christopher Snider. Please note voice messages are limited to 3 minutes. You can call back multiple times if you have a lot to share!

blog posts and publications from the event

learn how others have been inspired by the event


   Sean Erreger created a Storify of the day's tweets.

   ePatient Sara Rigarre from Sweden discusses the human right to science and the need to rethink the process of scientific research.

   Medicine X ePatient and designer Katie McCurdy shares her takeaways from our White House event on engaging participants as partners in research.

   ePatient Scholar Erin Moore shares her insights into reimagining research at the White House.

   Third year OHSU medical student Roheet Kakaday shares his inspirations, offers of help, and key take aways from the event.

   Pharmacist, educator and researcher Kevin Clauson shares his impressions of the event at the White House.

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