Erin Moore, B.S., works at Cincinnati Children’s Hospital Medical Center as a Healthcare Innovation Consultant. As such, Erin collaborates with the clinical staff to identify unmet needs, design and test innovations to improve care and outcomes, bridge the patient and clinician communities, and ensure the perspective of families and patients are represented. She is a leader in the effort to create a Collaborative Chronic Care Network (C3N) for Cystic Fibrosis, which will bring patients, clinicians and researchers together to test existing and create new solutions and tools to better manage health and care and improve outcomes in the CF community.
Erin has served as a board member at the Cincinnati Chapter of the Cystic Fibrosis Foundation. She works closely with the Cystic Fibrosis Foundation’s national office where she is a member of their Partnerships for Sustaining Daily Care Committee.
Erin has advised national and international efforts.
In 2014, Erin served as an external innovation advisor with Genentech, providing insights on how increased focus on patient centeredness and real world evidence is changing the healthcare ecosystem and how these trends may affect drug development. Erin served as a briefer to the JASONs 2014 Data for Individual Health report that is now being use by the Office of the National Coordinator for Health IT to create a culture of health in the country.
In 2015, Erin served as an advisor with The Robert Wood Johnson Foundation’s Data for Health initiative, working to create the framework for how diverse sectors can better collect, share, and use health information to improve health and promote wellness in the country. She currently serves as a US Food and Drug Administration Patient Representative providing a consumer perspective on issues and actions that are brought before the FDA for review, addressing the specific needs and preferences of patients for whom a tool or treatment is intended, and sits on the FDA’s Pediatric Advisory Committee. Erin has worked with the Office of the National Coordinator for Health IT and the White House Office of Science and Technology Policy on the President’s Precision Medicine initiative.
Erin joined Eli Lilly Pharmaceuticals in the spring of 2016 as an ePatient advisor, blogging and helping to guide them through feedback, and keeping the patient voice front and center. In September of 2016 she was awarded Health 2.0’s 10th Anniversary Global Retrospective Award for Patient Activism. She currently serves as an executive board member for Stanford University’s MedicineX Conference.
Title: ePatient Advisor
Company/Affiliation: Eli Lilly